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bigpun17
New Member


Date Joined Jul 2009
Total Posts : 3
   Posted 7/4/2009 8:03 PM (GMT -6)   
Been on Salofalk for about 4 weeks, when am I suppose to feel better?
seems like there is little or no improvement. 
 
thanks
 

fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 7/4/2009 8:53 PM (GMT -6)   
Is this an oral med or rectal med? I know that salofalk comes in an enema form, and for some reason, I think oral as well. Where is your UC? Is it limited, or throughout your colon?
Status: Remission since late May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently taking Apriso (4 pills ONCE!! daily), Rowasa twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (25 mg).


bigpun17
New Member


Date Joined Jul 2009
Total Posts : 3
   Posted 7/5/2009 8:09 AM (GMT -6)   
It is the rectal med..  UC is located near the end of the intestined.  I think about the last 2 feet.

quincy
Elite Member


Date Joined May 2003
Total Posts : 30614
   Posted 7/5/2009 9:34 AM (GMT -6)   
Hi..welsome to the forum.


The salofalk enemas aren't enough alone to treat your UC....especially if your UC is into the sigmoid or above.

Your doc should consider to have you on an oral 5ASA as well..such as Salofalk, Asacol, Pentasa or Colazal...

What exactly are your symptoms and what were they before you went on the enemas?

What other supplements are you taking?

How is your diet?


quincy
*Heather* Status: maintenance Asacol 6 daily + Salofalk enemas every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 7/5/2009 10:20 AM (GMT -6)   
Of course I agree with quincy - if you can tolerate oral medications you should include them also.
However, I cannot tolerate any oral meds so my doctor put me on rectal Cortifoam and Anusol suppositories - three times a day.  Most I have been able to manage is 2 times a day but it is definitely helping.  These are steroid rectal meds.  My UC is mostly proctitis and up the sigmoid about 30 cm. 
This is just for your information!  What is working for me right now and what I have to do because of intolerance to mesalamines, etc.
ElaineNY
 
Senior - New diagnosed with proctosigmoiditis - 6/2008   
Cannot tolerate mesalamines.  New specialist (June) - Cortifoam and Anusol three times a day for now.  Hope it works!
 
Probiotic Align, Prilosec for GERD, Gas-X, vitamins, Calcium/D
Tylenol for knees and arthritis.
 
 
 


bigpun17
New Member


Date Joined Jul 2009
Total Posts : 3
   Posted 7/6/2009 2:49 PM (GMT -6)   

Quincy: to answer all your questions, I am just doing the enemas right now (4g).  There was no mention of any oral medication..  should I push the issue on this?  Was told by the doctor to do the enemas every second day..  Usually the nights where I do the enemas, I get cramps in the middle of the night and have to discharge the salofalk before morning. 

Most of the issues happen in the morning.  When I wake up and start my day, as soon as I stand up, I can feel my stomach turn and I have to bolt to the bathroom.  ususally it is gas/mucous/bit of blood..  Second time is usally more gas and more blood/mucous.  Third is finally the BM that I have been waiting for.  I have several more times during the day where I have to run to the bathroom, but usually it is gas and/or mucous.  Blood disappears as the day goes on.   The next day is just a repeat of the previous day.

I would consider my diet to be good..  Lots of fruits, rice/veggies - no real "junk" food.

Not taking any other suppliments at the current time.

Thanks for all you help

 


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 7/6/2009 4:05 PM (GMT -6)   
Definitely ask for oral meds. And if you're in a flare, which it sounds like you are, you should be using the enema EVERY night. Even if you're not able to hold the enema all night, it still does a lot of good.

Also, I suggest you start taking a probiotic.
Status: Remission since late May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently taking Apriso (4 pills ONCE!! daily), Rowasa twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (25 mg).


saposs
Regular Member


Date Joined Nov 2008
Total Posts : 339
   Posted 7/6/2009 4:30 PM (GMT -6)   
yes ask for oral medication ... even i was on rectal initially but when it didnt help i moved to next stage that is oral.... i think 4 weeks is a good wait i suggest you ask your GI for oral medicine as well and get the flare under control as soon as you can.
UC forum : Dx Jan'2009: Canasa suppositories 1000 nightly - worked for 2 months then re-flare
13 may: canasa 1000 X2 daily for 2 weeks; 30May: LialdaX2 started on 30th may.
Symptoms: Mucus, blood, constipated (not always), Lots Gas
Also started Probiotic from 23 Mar & fresh Turmeric root from 25 March'09- stopped both on 10th May
Thyroid Forum: Dx in Dec'08, levothyroxine from 50mcg to 77 mcg in June'09 :-(


quincy
Elite Member


Date Joined May 2003
Total Posts : 30614
   Posted 7/6/2009 11:47 PM (GMT -6)   
Hi bigpun17.....yep, you need both oral and rectal meds...I'm hardcore 5ASA..so would say Asacol oral and Salofalk rectal. You want to help keep the UC from spreading upward..for some it happens, others not...but who's to know when and to whom. Just lessen the risk.

You should be also consuming more meat/protein into your diet.

Your morning experience is because you're flaring..plain and simple. The enemas should be used nightly until your symptoms stop...of course, in conjunction with Asacol (or other).

You might want to consider taking a fibre supplement (start slowly) to help bulk up the stool a bit.
As well, consider a probiotic.

Are you in Canada or the UK or other?

quincy


*Heather* Status: maintenance Asacol 6 daily + Salofalk enemas every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 

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