My Remission Story

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UC in TN
New Member


Date Joined Jun 2007
Total Posts : 8
   Posted 7/5/2009 1:09 PM (GMT -6)   
I was diagnosed in the Fall of '04 with Pancolitis.  I remained in a moderate to severe flare-up for the next 2 1/2 years unless I was on high doses of Prednisone.  I started Remicade in June of 2007 which helped, but I still had gas & bloody mucus (yuck).  I took Asacol off and on throughout and it did not seem to make any difference.  Then in early 2008, I began going to a chiropractor for spinal alignment b/c my neighbor said it had helped his IBS.  Now, I know the two diseases are completely different, but I was willing to try ANYTHING at this point (I did the Maker's Diet and the SCD and both just didn't work although I did learn to eat healthier through them).  So, I started chiropractic care and started taking Asacol again at the same time also still doing Remicade treatments every 8 weeks).  Within 6 months I was in total remission and took myself off of the Asacol.  After total remission for a year I stopped going to Remicade treatments.  I am now med free, I eat whatever I want (I try to eat healthy, though), and have zero symptoms, I mean zero, normal everything.  I go to the chiropractor once a week for maintenance, I take vitamins, and I exercise about 5x per week.
I remember how awful I used to feel and wanted to share my story (I tried to keep it short!).  I don't know if it was actually the chiropractor (they are a Christian practice, their motto: "We move the bone, God does the healing") that put me in remission but it does make sense if you learn about how the spine and spinal cord health is connected to all organs in the body.  Anyway, that's my schpeel for what it's worth.  God bless you all.
Mariea in Tennessee

Diagnosed with UC in Sept. 2004 (pancolitis)

Currently in a mild to moderate flare on 100mgs Immuran, hydrocortisone enemas as necessary, and had 1st Remicade 6/5/2007

Also take Culturelle probiotic, biotin, Omega-3 supplement, psyllium husk, and multi-vitamin

 


Hellokitty
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Date Joined Mar 2009
Total Posts : 765
   Posted 7/5/2009 2:40 PM (GMT -6)   
Thats an interesting story. Do you think it is the chiropractor? if so you should talk to Dr-A he is a chropractor. Maybe it has relevied you of stress and that is why?
Female 32 years old
 
Diganosed ulcerative colitis November 2007
Present medication- 1X 500mg pentasa in the morrning and 1 X250g Asacol every other evening
Diet- Back on the raw foods.
 
Other medical problems- Born with asthma- no medication taken for this.
dyslexia- found out that many people with learning difficulties also have food sensitivity


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 7/5/2009 2:51 PM (GMT -6)   
Glad you're feeling well!!!
Dx'd with moderate Pancolits 05/07 better with Pentasa and Cortifoam.
I also take Probiotics, Curcumin, Benefiber and cannot tolerate
artificial sweetners (never could even before UC).
 
 
UC Forum Co-Moderator
I am not a healthcare provider. I am offering support and guidance based upon my own conclusions and/or research. ALWAYS consult with a qualified healthcare provider.


Rio in Maryland
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Date Joined Nov 2007
Total Posts : 891
   Posted 7/5/2009 4:19 PM (GMT -6)   
Great to hear that you're in remission.

If Dr-A, or any other chiropractors on the forum read this thread, it will be interesting to get their feedback on this.
Rio, 33 year old male. Diagnosed with UC in 2006
100 mg Azathioprine (stopped), 4800 mg Asacol
VSL#3 & Primadophilus Bifidus, Metamucil
Vitamin E enema or Asacol suppository occasionally


lucasJ
Regular Member


Date Joined Apr 2009
Total Posts : 178
   Posted 7/5/2009 4:59 PM (GMT -6)   
i have heard these kinds of stories. I know when i first got diagnosed with uc, i was having bad pains in my si joint. I can't say if it helped or not, but i was going often to the chiropractor. I did get into remission though. I was in remission one year before my next flair and diagnosis. Maybe I should go back again.

mbx5
Regular Member


Date Joined Sep 2007
Total Posts : 365
   Posted 7/5/2009 8:03 PM (GMT -6)   
I tried this...no luck... I bet some people with UC truly have had great results with chiropractors...I am glad it worked out for you...just shows how impossible this disease is...it works for some, and doesnt for others....idk..
Stats:35 yr old male. UC for 15 years.
location:North Western PA
DX: Left sided UC, most recent scope 5/20/09 UPMC Pittsburgh Presbeterian
Medications:No longer on Pred as of 6/15/09, 12x pills Asacol per day, 100mg Imuran per day, 1mg Atavan per day (anxiety) when needed, 20mg paxil per day, Super-omega fish oil pills - 1x per day, Flax oil pills - 1x am, 1x pm, Culturelle probiotics - 2x am, 1x pm, Vitamin B-12 injections monthly.
Surgeries: Recent Endonasal brain surgery to remove non-cancerous hormone producing tumor on pituitary gland (and I am still more afraid of my UC!!)

"I poop in the woods because I can"


saposs
Regular Member


Date Joined Nov 2008
Total Posts : 339
   Posted 7/5/2009 9:12 PM (GMT -6)   
wow..that is interesting... even i would like to know more
UC forum : Dx Jan'2009: Canasa suppositories 1000 nightly - worked for 2 months then re-flare
13 may: canasa 1000 X2 daily for 2 weeks; 30May: LialdaX2 started on 30th may.
Symptoms: Mucus, blood, constipated (not always), Lots Gas
Also started Probiotic from 23 Mar & fresh Turmeric root from 25 March'09- stopped both on 10th May
Thyroid Forum: Dx in Dec'08, levothyroxine from 50mcg to 77 mcg in June'09 :-(


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 7/6/2009 12:40 AM (GMT -6)   
Spinal misalignment can cause many problems throughout the body. I too have been to a chiropractor. The chiropractor said my alignment was fine. In fact, he said that it was at the top 98% of people he has seen that are about my age. Must be due to all the yoga I do. However, he did note two packets of air that showed on the x-rays, one on each side of my abdomen. He said the two air packets indicate that I have a digestive disorder. He said that if I had just eaten something like beans, then he would have seen lots of tiny air bubbles. But in this case, it wasn't little air bubbles. It was two big packets of air, each about the size of a toddler's fist.

Anyway, in my case, my colitis is not related to my spinal alignment.

It's good to share stories though. As we age, our posture tends to deteriorate if we don't do some form of exercise to improve/maintain our posture. A chiropractor can help. So can a massage therapist. I get seated massages at the mall every once in awhile. It's convenient, inexpensive, and helps work out muscle tension.

I took some massage classes after my second flare. One of my instructors is a chiropractor. You are supposed to tell the massage therapist and chiropractor if you are having a flare or are taking/have taken prednisone. Inflammation and bone loss are considered contradictions. Treatment might be modified depending on the severity of your condition.
Joy - 47 yrs and counting; Colitis Dec 06 (also have IBS); Currently in remission

Figuring out how to reduce a flare or get into remission is a trial and error experience. Don't expect your GI to have all the answers. He was trained in making diagnoses, prescribing medications, and surgically removing the colon. He was not trained in alternative treatments. That's why they are called alternative treatments.

Lexapro (for stress), Probiotics and Vitamins, Anti-inflammatory foods, No pro-inflammatory foods when flaring, No HFCS, No foods high in fructose, No artificial sweeteners -- Fecal transplantation worked, Prednisone stopped working, Colazal stopped working, Asacol stopped working

Post Edited (subdued) : 7/6/2009 12:56:23 AM (GMT-6)


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 7/6/2009 7:58 AM (GMT -6)   
You should update your sig to indicate you're now in remission.

Probiotic supplementation to rebuild healthy gut bacteria and omega-3 supplementation to reduce inflammation, as indicated in your sig, certainly played a role in helping you get into remission.
Diagnosed with ulcerative colitis spring 1999. Have been in remission for years with only a few minor blips. Scope on 6/22 showed no inflammation at all.
 
Maintenance dose sulfasalazine. Probiotics, vitamin D, fiber supplement and fish oil caps. George's aloe vera juice and l-glutamine for gut healing. Mostly grain-free and dairy-free low carb diet.
 
 


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 7/6/2009 6:28 PM (GMT -6)   
I think a large part of the success of unusual therapies is simply believing it will work.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol maintenance for 20+ years; used prednisone & Rowasa for flares.  Probiotics (Ultimate Flora, 50 billion), salmon oil (omega-3) when I can remember. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated wheat/gluten from my diet.
Bad flare in March, used prednisone. Humira denied, started Remicade 4/12 and doing great~ learning what normal is~ wow


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 7/6/2009 7:19 PM (GMT -6)   
Congrats on the Remission!!

We can help alot of stuff people would usually just shrug off that we couldn't. I don't know that it's helped my UC. It helps the rest of me stay in pretty good shape which indirectly affects my UC. Sometimes the reason it started has nothing to do with the electrical wiring so working with that isn't gonna heal it, no matter how many times you move the bone, lol. Anyone doctor that claims otherwise is just naive.

Our profession can be a frustrating one at times. I could save people ALOT of money if they would just come in to see me. After driving 14 hours over weekend I was having burning scapular pain radiating around to my heart. Some people would run to the ER for that but I understand that 3 or 4th rib runs all way around to front of heart. Got another Doc to adjust me today and I am fine now. Of course I tried to get my wife to do it showing her how, and she liked to kill me, lol.

Had a lady last week who I hadn't seen in over a month, call in and ask me if I could xray her hip. She had fallen two months ago, didn't hurt at time, now she could hardly walk. Horrible hip pain into back of leg burning around upper left SI joint. Her orthopedist that did her hip surgery couldn't see her that day so on a whim she called me to see if I could check for a fracture. Did quick xray on her, checked her out, adjusted her, and she was back to normal when she left the office.

Had one young girl couple years ago hadn't been to bathroom without taking something for her constipation for a year. Saw her for 2 weeks, and she went for first time without assistance. I am not the constipation doc, but it helped, lol.

Sometimes its just one of those things that happens. In 06' I had a lady I was working on come in for bad hip and LBP. Rode horses, and had been that way for a couple years. Got her doing better then didn't see her for 2 months. She comes back in and let's me know that she had also been trying to get preggo for the last two years and was having no success. Already had 2 boys. Within a month of her feeling better she became pregnant. Does it help with fertility? I can't say. I just know it gets your body functioning better. Most pro athletes understand that concept of it too.

I focus people in on their health, and get to do that for a living. Helps me cope with my UC too.
Proctitis DX 1999, Pancolitis DX 2008
Golimumab study (100mg every 4 weeks)
L-Glutamine 5000 mg + 600 mg pyridoxal alpha-ketoglutarate
Probiotis/VitD3 5000IU+Ca/1000mg DHA

Post Edited (Dr-A) : 7/6/2009 7:22:33 PM (GMT-6)


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 7/6/2009 9:25 PM (GMT -6)   
Dr-A - just wanted to add my success story. I had a ski injury my freshmen year of college. I landed on my head skiing w/o a helmet. I was young and foolish and thought I was fine and didn't seek medical treatment. Upon returning home several days later I could barely move and my parents made me go to the hospital I had a concussion and a sprained neck. I was put in a neck brace but didn't really have much for follow up treatment.

Fast forward a year or so and I started having horrible headaches and jaw pain. The headaches got so bad I had an emergency cat scan. Doctors just couldn't figure it out. My dentist suggested I see his chiropractor. He found all kinds of scar tissue from my neck injury that was causing all my pain. After some manipulations and ultra sound treatments (I think that was what it was called) he worked out a lot of the lumps and the headaches went away within a week. It was amazing. Now whenever they come back I see a chiro and I'm good as new. He couldn't believe I hadn't been given any physical therapy or anything to prevent the scar tissue build up from the injury.

Oh, and I always ski w/ a helmet now.
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night.  I take xanax prn for situational anxiety (aka no easy bathroom access). 


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6448
   Posted 7/7/2009 8:13 AM (GMT -6)   
Yes, great to share and hear success stories! I too have been very happy with Chiropractic care. Now I've started a regimen with a massage therapist and it's working out well.
Carol

Remicade - will have my 29th infusion on July 8
Vitamin B-12/Biotin, Probiotics, Vitamin D-3 (2000 IU)
 
Co-Moderator for the UC Forum
 
 


dudewhrsmybike
Regular Member


Date Joined Dec 2007
Total Posts : 38
   Posted 7/9/2009 8:34 PM (GMT -6)   
Thanks for sharing, I've been thinking about how my alignment and pinched nerves are effecting my body. Perhaps they are the cause of my UC? That is something I have been wondering for some time now. March of 08 I got into a motorcycle accident and went to the chiropractor afterward to get checked out. To be honest, I had some back and neck pain before the accident but never knew I had pinched nerves. Basically, what I found out from the X-RAYS was my spine is misaligned and I have a pinched nerve in my neck and my mid/lower back. So maybe the pinched nerve in my back is not allowing my colon/digestive system to operate properly thus causing the UC? Not sure. I went to the chiro for a month or so and it didnt help me at all with UC. My insurance money from my claim ran out and I couldnt justify spending all that money on the simple little treatment that was not helping me and who knows how long it would have taken?? I dunno what to do, maybe I should get these pinched nerves worked out since I need to do it anyway but looks like I'll have to sell some things and stop spending any kind of money to make that happen. I do know one thing though, about a year ago I tried the sunflower seed diet and it worked within 2 weeks! A month later or so multiple things re did the damage and I was flaring again. That was my fault I suppose, some things set me off and I wasn't aware that they would. Haven't had much luck since then but I try. Sunflower seeds and sweet potatoes. They help a good bit but are not the end all be all. I truly believe if I eat the right foods and get a lot of beta carotene and magnesium, I will start having solid BM's and feel better again despite the pinched nerve. Well, hope I didn't get too off track but that is what has been on my mind for some time now since I don't post here much. Just getting it all out at once.
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