how often do you have blood?

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Sunshineonmyface~
Regular Member


Date Joined Sep 2008
Total Posts : 202
   Posted 7/5/2009 9:12 PM (GMT -6)   
I feel like I am still coming to grips that I have this disease. I still can't believe it, and it has been a year next month that I got diagnosed.  I was curious if other people have blood, and how often. I tried searching it out, but I haven't figured out how to just search this forum yet.

pam222
Veteran Member


Date Joined Jun 2009
Total Posts : 985
   Posted 7/6/2009 8:14 AM (GMT -6)   
I haven't for about a month now, but I did most of the time for the 2 years since I have started having symptoms. Sometimes I would have a lot of bleeding so that it seemed all that was coming out was blood and clots
26 year old female
Diagnosed with unspecified UC 11/08 by flex. sig. as I was pregnant at the time and did not want to be put under for a colonoscopy
Breastfeeding my baby boy (born 4/8/09)
15 mg Prednisone AM, 10 mg PM (tapering from 60mg a day)
Started Remicade 6/11/09 (2 infusions so far)
Was on Asacol (2400mg or 3600mg a day) for 6 months with no success


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 7/6/2009 8:26 AM (GMT -6)   
I lost massive amounts of blood with my second flare. It was like having my period at its heaviest everyday, only with tons of blood clots in it too. I bled every day for six months straight. I've never quite recovered from it.

I'm now eating Cheerios every day. It's about the only cereal that is high in iron, vitamin B12, and folic acid and NOT sugar and am gradually getting stronger.
Joy - 47 yrs and counting; Colitis Dec 06 (also have IBS); Currently in remission

Figuring out how to reduce a flare or get into remission is a trial and error experience. Don't expect your GI to have all the answers. He was trained in making diagnoses, prescribing medications, and surgically removing the colon. He was not trained in alternative treatments. That's why they are called alternative treatments.

Lexapro (for stress), Probiotics and Vitamins, Anti-inflammatory foods, No pro-inflammatory foods when flaring, No HFCS, No foods high in fructose, No artificial sweeteners -- Fecal transplantation worked, Prednisone stopped working, Colazal stopped working, Asacol stopped working


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 7/6/2009 10:16 AM (GMT -6)   
practically every day! Whether it be tiny clumps of bloody mucous, or blood on the stool, or blood on the toilet paper, or pinkish mucous, it's always in the bowl in some form! Currently, I'm seeing more pinkish mucous than usual, I think because I postponed my Remicade infusion a week- I go this Wednesday. After the infusion the bleeding stops for about a week to 10 days, then starts right up. It's not like flare bleeding, when it's literally dripping into the bowl- then you're in rough shape (which you already know!). But honestly, I see blood all the time- which is odd, because that & urgency are my only real symptoms- my stools are totally formed, no D at all, only going about 5-8 times a day (which sounds like a lot- but it's nearly all within the first 2 hours of getting up in the AM). But that darned blood just doesn't go away.
diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade-10mgs/kg- since 4/07
Imuran- 150mgs/day
various probiotics
Fiber supplement
 
 
 


psychocolon
Regular Member


Date Joined Jul 2009
Total Posts : 118
   Posted 7/6/2009 11:26 AM (GMT -6)   
I also have formed stools and have the urgency at times and that darn blood. I have been having some form of blood also for years since diagnosis which was about 6 years ago. It seemed to go away for a day or so when using Rowasa enemas but comes right back. Can never seem to get completely clear. Told my GI that mine is defiantly connected with food. Sweets with a lot of sugar really make me gassy. Also I do not do well with milk. I am now trying the low Fodmap diet....... just started and less gas already.
Now we will see about the bleeding.



Colazol 2 capsules /3 times a day
Fish oil
Large doses of Megaflora probiatic
Rowasa Enemas as needed for flare

Post Edited (psychocolon) : 7/6/2009 11:29:02 AM (GMT-6)


glamourgirl
Regular Member


Date Joined Apr 2008
Total Posts : 460
   Posted 7/6/2009 12:20 PM (GMT -6)   
I've had bleeding for as long as a year, even daily for two years. I think I am just a bleeder. The last few months I have had little to no bleeding which is a huge improvement for me. I still have urgency every day and soft stools. I don't feel like I ever reach full remission where I am completely back to normal.
Female, Age 38
Diagnosed w/c.diff 7/02 when pregnant w/1st and only child during 2nd trimester(wasn't on antibiotics)
C.diff flare within weeks of delivering baby 1/03, Diagnosed with UC 2/03
Current Meds:
Lialda, 6MP
Ferrex Forte
Acidophillus, Sacchromyces Boulardii, Oil of Oregano


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 7/6/2009 5:40 PM (GMT -6)   
I always had blood, a little or a whole lot, all these years. No cause for panic, I learned, my body makes more. It was the urgency that bothered me.
The Remicade has stopped the bleeding, finally.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol maintenance for 20+ years; used prednisone & Rowasa for flares.  Probiotics (Ultimate Flora, 50 billion), salmon oil (omega-3) when I can remember. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated wheat/gluten from my diet.
Bad flare in March, used prednisone. Humira denied, started Remicade 4/12 and doing great~ learning what normal is~ wow


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 7/6/2009 6:09 PM (GMT -6)   

Both of my gastro doctors and my NP told me NOT to worry so much about bleeding unless I had a LOT and become anemic.  More important is the pain (mine if left-sided), diarrhea and urgency!

ElaineNY


 
Senior - New diagnosed with proctosigmoiditis - 6/2008   
Cannot tolerate mesalamines.  New specialist (June) - Cortifoam and Anusol three times a day for now.  Hope it works!
 
Probiotic Align, Prilosec for GERD, Gas-X, vitamins, Calcium/D
Tylenol for knees and arthritis.
 
 
 


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16044
   Posted 7/7/2009 8:30 AM (GMT -6)   
I was bleeding for over a year. It was light in the beginning but got pretty severe and caused me to become anemic. Now I haven't seen blood since the little relapse I had a few weeks ago.
Diagnosed with mild proctitis in March 2007: Treated with Canasa (as needed)
December 08: Began treating with Asacol 400mg (9/day) + Canasa 2x/day - Anemic
May 09: Off Canasa, taking Asacol (9/day)
Back on Canasa every other night + Asacol (9/day) + Probiotics + Iron
Reducing to 6 Asacol/day + Canasa + Probiotics + Iron - So far so good!!! -SPOKE TOO SOON! Back to 9/day...


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 7/7/2009 10:50 AM (GMT -6)   
Sporadic. I had a little blood for one morning several weeks ago. 4-5 months with no bleeding. Almost a year of bleeding before that.
Proctitis DX 1999, Pancolitis DX 2008
Golimumab study (100mg every 4 weeks)
L-Glutamine 5000 mg + 600 mg pyridoxal alpha-ketoglutarate
Probiotis/VitD3 5000IU+Ca/1000mg DHA


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 7/7/2009 11:20 AM (GMT -6)   
I'm a bit of an unusual case. I'm either in a raging flare with 20 bathroom visits a day and bleeding every day (before Remicade) or going 2-3 times a day with no D, no urgency and no blood or mucus ever (with Remicade.)

Like everything else, I think this varies widely with people; if you're having any bleeding, though, you're not really in remission.
Judy
 
Ulcerative colitis forum co-moderator
 
Moderate to severe left-sided UC diagnosed 2001.
Flared for 5 years, finally in remission with Remicade since March 2006.
Avascular necrosis in both shoulders is my "forever" gift from steroids.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. 
"My life is an ongoing medical adventure"
 


psychocolon
Regular Member


Date Joined Jul 2009
Total Posts : 118
   Posted 7/7/2009 3:54 PM (GMT -6)   
My Gi guy also said do not worry so much about the blood unless it becomes a lot. He said it would be the last thing to go.
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