what are your daily/weekly symptoms of UC?

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Sunshineonmyface~
Regular Member


Date Joined Sep 2008
Total Posts : 202
   Posted 7/6/2009 1:14 PM (GMT -6)   
Kind of along the lines of my blood topic. How often do you have mucus or blood? bloating or cramps? Is your remission completely without any symptoms? Do you always have a few symptoms, but they are just controlled?
 
This disease really confuses me. I am not sure what "normal, or acceptable" is.

qwerty1
Regular Member


Date Joined Feb 2009
Total Posts : 402
   Posted 7/6/2009 2:41 PM (GMT -6)   
After having this disease for nearly 2 years I've still yet to discover what remission feels like. All I know for the moment is that the days/times when I've been at my best I haven't been overly tired, been down to 1 or 2 BMs a day without blood, mucous or urgency, and no abdo pain or discomfort.

22 year old female, from the UK. Diagnosed with Ulcerative Proctitis Jan '08. Hospitalised Jan '09 for 3 days IV Hydrocortisone - had no effect! Hospitalised Feb '09 for 7 days (5 days - IV Hydrocortisone)
  
Currently taking daily: 
15mg Prednisolone tablets (tapering), 100mg Azathioprine (started taking 11th May),1g Acetarsol suppository, Asacol suppository (alternating nights)1g Mesalazine granules x 2 
Motilium (anti sickness), 1.5mg Zopiclone (taken when needed for sleeping), 10mg Citalopram (anti-anxiety), Probiotic Multivitamins, Nutren Build up drinks. 
                             
                             


pam222
Veteran Member


Date Joined Jun 2009
Total Posts : 985
   Posted 7/6/2009 3:04 PM (GMT -6)   
I haven't been in remission yet (2 years in August). Most of the time I had bleeding (gone for a month now, though). At my best in this time, I'd say I was down to about 5 soft BMs a day. At my worst, I have over 20 a day and mostly diarrhea and mucous. Urgency wasn't a huge issue before, but recently it was bad and now it is somewhat bad. I am not usually in pain all the time except when I have to go. For a long time, I was nauseous all the time and threw up everything I ate or drank, but that would come and go throughout the 2 years (usually a month or two at a time). Right now, I am able to eat. I am tired all the time. When I am at my worst and throwing up a lot, I can't even always leave bed. I spent about 2 months in bed last summer. I get really weak and anemic when I'm at my worst.

I would really like to know what remission is like

Right now I have had 2 infusions of Remicade and am still on Prednisone, and I still go 10-15 times a day
26 year old female
Diagnosed with unspecified UC 11/08 by flex. sig. as I was pregnant at the time and did not want to be put under for a colonoscopy
Breastfeeding my baby boy (born 4/8/09)
15 mg Prednisone AM, 10 mg PM (tapering from 60mg a day)
Started Remicade 6/11/09 (2 infusions so far)
Was on Asacol (2400mg or 3600mg a day) for 6 months with no success


Laura1003
New Member


Date Joined Jul 2009
Total Posts : 3
   Posted 7/6/2009 3:26 PM (GMT -6)   

Hi,

I was diagnosed 16 years ago and have been lucky to have experienced remission a few times (usually lasts 6 months). When not in remission I have blood/mucas daily, diarrhea - and on certain days unable to leave the house as I can't move from the bathroom. Pain mild some days, bad others. I can go on like this for a good 6 months before I end up in hospital on steroids and azathioprine. Dehydration is my problem, and why I end up in hospital. With the aza I have had the longest remission (just over 2 years). Last time the flare was different, I was actually sick for 8 days straight, unable to eat and eventually sent to hospital again. I still find the odd couple of days where I feel really sick - so a new symptom, like we don't have enough already, lol!

Get a lot of bloating even when in remission, but no bleeding or cramps. Like I said just the odd couple of sick days so thanking my lucky stars at the moment. Only in remission completely and for the longest period when taking Azathioprine.

turn  


Ulcerative Colitis diagnosed 1999. Mesalazine, Azathioprine


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 7/6/2009 5:07 PM (GMT -6)   
I was diagnosed in January and have been in remission (off of pred and no urgency, etc) since May. I'm feeling great! No symptoms at all, really. I mean, my poo is still relatively soft, and gets softer when I eat a lot of fruit or beans or something, but that was normal for me for many years before I got UC. I don't think that turds are supposed to be really hard anyway!
Status: Remission since late May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently taking Apriso (4 pills ONCE!! daily), Rowasa twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (25 mg).


JewelsOK
Regular Member


Date Joined Jun 2007
Total Posts : 364
   Posted 7/6/2009 5:16 PM (GMT -6)   
When my kids are in remission, they are totally "normal". Average 1 bm per day, eat what they want - just like any other kid.

Son has flared every summer except summer '08. His flares are anything from 3-12 bms per day of bloody diarrhea and last from a couple of weeks to 13 months being the longest.

My daughter's flares involve more pain than bloody diarrhea. She has flared three times and thankfully all were pretty short lived, but two of them were treated with prednisone. One was just 4 days and went away on it's own.

Both kids now have pancolitis although my son's is predominately left sided and my daughter's right side is worse.
Julie

Mom of Son 17 UC dx 07/02, Prednisone 30mg, Lailda 2 am & 2 pm, Azasan 100mg, Cortafoam (when flaring), folic acid, L. Reuteri, Culturelle, Zyrtec, Iron, Vit/Min

Daughter 10 UC dx 08/07 Prednisone 10mg am & 10mg pm, Colazal 750mg x 4, 6MP 25mg, Iron, Vit/Min., Culturelle


jars05
Regular Member


Date Joined May 2003
Total Posts : 297
   Posted 7/6/2009 11:25 PM (GMT -6)   
Right now I can't achieve full remission. I have formed stools, but I bleed and get mucus a couple of times a week. It's not that bad, but I could be better.
Age: 31
Location: Missouri
Diagnosed with UC in 1997.
Medications: Mesalamine rectal meds, back on 100 mg Azathioprine
 
 
 

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