Ugh, it's scary. I just feel like we're too young to be having issues like this. Mine is both my eyes. Sorry you are having this problem, too.
Before the age of 24, I could count the number of times I had to go to a doctor on one hand, and now I am going all the time and developing all these problems. It's just ridiculous.
I totally know what you mean about
feeling like we're too young to be dealing with all of this. When I was first diagnosed with UC at 16 I had no idea what UC was and had never heard about
it. Now I know way too much. Now at 20 I might have glaucoma. I didn't know what it was before today either. I even said, "Isn't that for old people?" My doc laughed at me. I can't imagine both eyes, I'm so sorry that you are having trouble with both. Are you scared about
going blind? I AM!!
I am in the same boat about
never going to the doctor, now I have regular visits and email contact with my GI. To think about
developing more problems from the drugs that were helping my UC is just sooooo discouraging. On top of all that we have colon cancer to worry about
or look forward to in our 30's and 40's. As a lovely bonus all the drugs we try and rely on can potentially sterilize us. Wonderful. This disease sucks.
I'm happy you gave birth to a healthy baby boy before the disease could take hold. Thank god for small miracles.
Female, Age 20, DX w/Left sided UC October 2005
DX w/Universal Colitis June 2009
Currently in Flare with moderate symptoms
Present Meds: Switching to Lialda 4 pills 1x daily and Canasa Suppositories (hopefully this combo will work, if not back on the Pred-unless I want to try Humira or Cimzia)
Past Meds: 40 mg Prednisone Daily for 1 year, Miralax Daily, Ginger Supplements, Remicade Aug 2006-June 2009