glaucoma and prednisone

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pam222
Veteran Member


Date Joined Jun 2009
Total Posts : 985
   Posted 7/8/2009 9:20 AM (GMT -6)   
I had my vision test today and there is a concern that I might be developing glaucoma. I have to get it checked again next week when I pick up my glasses.

Apparently this can be caused by prednisone use. Has this happened to anyone? Is 6 months long enough to cause that?
i feel like on treating one disease i have caused more health problems than it was worth (especially since the pred never really treated me). my blood sugar has also gone up to 154 and has to be rechecked after i taper to 20mg
26 year old female
Diagnosed with unspecified UC 11/08 by flex. sig. as I was pregnant at the time and did not want to be put under for a colonoscopy
Breastfeeding my baby boy (born 4/8/09)
15 mg Prednisone AM, 10 mg PM (tapering from 60mg a day)
Started Remicade 6/11/09 (2 infusions so far)
Was on Asacol (2400mg or 3600mg a day) for 6 months with no success


ickypoo
Regular Member


Date Joined Dec 2008
Total Posts : 224
   Posted 7/8/2009 5:36 PM (GMT -6)   
I didn't develop glaucoma, but my vision definitely deteriorated while on prednisone (approximately four or five months). Fortunately, as I tapered down my vision eventually returned to normal. Hopefully you will experience the same result as you taper.
Diagnosed with UC in 1990.
Current Meds: Sulfasalizine (2 g) (1 g) (500mg), Rowasa (now and then), Folic Acid (1 mg)
Supplements: fish oil, flax oil, glucosamine, CoQ10, fiber, aloe vera juice, probiotics.
Other: Raw Milk for breakfast. Currently exploring a raw milk fast one day/week.


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 7/8/2009 6:00 PM (GMT -6)   
I didn't know it could cause glaucoma, but I know it can cause cataracts. Nasty stuff!
Judy
 
Ulcerative colitis forum co-moderator
 
Moderate to severe left-sided UC diagnosed 2001.
Flared for 5 years, finally in remission with Remicade since March 2006.
Avascular necrosis in both shoulders is my "forever" gift from steroids.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. 
"My life is an ongoing medical adventure"
 


Ashley O
Regular Member


Date Joined Jun 2008
Total Posts : 72
   Posted 7/8/2009 6:35 PM (GMT -6)   
I'm so sorry to hear that you're going through this. The WEIRDEST thing is I just came home from the eye doctor myself and found the same thing is happening to me!! What the heck man! I was fine at my check last year and then today I was showing signs of developing glaucoma in my left eye. I have to go back next week to do more tests.

I was on 40-60 mg of Prednisone for one year straight between October 2005 and 2006. I then switched over to Remicade at that point. I'm wondering if the steroids caused me to slowly develop glaucoma or what. I have no other risk factors. I can't believe this is happening on top of all my UC crap.

BTW anything over 2 months is considered long term for consistent prednisone use so I'm sure 6 months is long enough. I'll keep checking this thread to see how it turns out for you and I would love to know what you end up doing because I'm so scared and upset about going through the same thing.
Female, Age 20, DX w/Left sided UC October 2005
DX w/Universal Colitis June 2009
Currently in Flare with moderate symptoms

Present Meds: Switching to Lialda 4 pills 1x daily and Canasa Suppositories (hopefully this combo will work, if not back on the Pred-unless I want to try Humira or Cimzia)

Past Meds: 40 mg Prednisone Daily for 1 year, Miralax Daily, Ginger Supplements, Remicade Aug 2006-June 2009


AMK77
Veteran Member


Date Joined Mar 2008
Total Posts : 678
   Posted 7/8/2009 6:44 PM (GMT -6)   
I felt like my health spiraled out of control the last time I was on pred. It didn't seem to affect my vision just lots of other things.
32 yr old female
Mild Pancolitis
UC since 2000 - in remission for most of those 8 years med free.
Cannot tolerate mesalamine. Currently take probiotics and fish oil. Trying Applied Kinesiology & supplements.


pam222
Veteran Member


Date Joined Jun 2009
Total Posts : 985
   Posted 7/8/2009 7:10 PM (GMT -6)   
Ashley O said...
I'm so sorry to hear that you're going through this. The WEIRDEST thing is I just came home from the eye doctor myself and found the same thing is happening to me!! What the heck man! I was fine at my check last year and then today I was showing signs of developing glaucoma in my left eye. I have to go back next week to do more tests.

I was on 40-60 mg of Prednisone for one year straight between October 2005 and 2006. I then switched over to Remicade at that point. I'm wondering if the steroids caused me to slowly develop glaucoma or what. I have no other risk factors. I can't believe this is happening on top of all my UC crap.

BTW anything over 2 months is considered long term for consistent prednisone use so I'm sure 6 months is long enough. I'll keep checking this thread to see how it turns out for you and I would love to know what you end up doing because I'm so scared and upset about going through the same thing.


Ugh, it's scary. I just feel like we're too young to be having issues like this. Mine is both my eyes. Sorry you are having this problem, too.

Before the age of 24, I could count the number of times I had to go to a doctor on one hand, and now I am going all the time and developing all these problems. It's just ridiculous.
26 year old female
Diagnosed with unspecified UC 11/08 by flex. sig. as I was pregnant at the time and did not want to be put under for a colonoscopy
Breastfeeding my baby boy (born 4/8/09)
15 mg Prednisone AM, 10 mg PM (tapering from 60mg a day)
Started Remicade 6/11/09 (2 infusions so far)
Was on Asacol (2400mg or 3600mg a day) for 6 months with no success


Ashley O
Regular Member


Date Joined Jun 2008
Total Posts : 72
   Posted 7/8/2009 7:21 PM (GMT -6)   
pam222 said...
Ugh, it's scary. I just feel like we're too young to be having issues like this. Mine is both my eyes. Sorry you are having this problem, too.

Before the age of 24, I could count the number of times I had to go to a doctor on one hand, and now I am going all the time and developing all these problems. It's just ridiculous.


I totally know what you mean about feeling like we're too young to be dealing with all of this. When I was first diagnosed with UC at 16 I had no idea what UC was and had never heard about it. Now I know way too much. Now at 20 I might have glaucoma. I didn't know what it was before today either. I even said, "Isn't that for old people?" My doc laughed at me. I can't imagine both eyes, I'm so sorry that you are having trouble with both. Are you scared about going blind? I AM!!

I am in the same boat about never going to the doctor, now I have regular visits and email contact with my GI. To think about developing more problems from the drugs that were helping my UC is just sooooo discouraging. On top of all that we have colon cancer to worry about or look forward to in our 30's and 40's. As a lovely bonus all the drugs we try and rely on can potentially sterilize us. Wonderful. This disease sucks.
I'm happy you gave birth to a healthy baby boy before the disease could take hold. Thank god for small miracles.
Female, Age 20, DX w/Left sided UC October 2005
DX w/Universal Colitis June 2009
Currently in Flare with moderate symptoms

Present Meds: Switching to Lialda 4 pills 1x daily and Canasa Suppositories (hopefully this combo will work, if not back on the Pred-unless I want to try Humira or Cimzia)

Past Meds: 40 mg Prednisone Daily for 1 year, Miralax Daily, Ginger Supplements, Remicade Aug 2006-June 2009


pam222
Veteran Member


Date Joined Jun 2009
Total Posts : 985
   Posted 7/8/2009 7:32 PM (GMT -6)   
Ashley O said...
pam222 said...
Ugh, it's scary. I just feel like we're too young to be having issues like this. Mine is both my eyes. Sorry you are having this problem, too.

Before the age of 24, I could count the number of times I had to go to a doctor on one hand, and now I am going all the time and developing all these problems. It's just ridiculous.


I totally know what you mean about feeling like we're too young to be dealing with all of this. When I was first diagnosed with UC at 16 I had no idea what UC was and had never heard about it. Now I know way too much. Now at 20 I might have glaucoma. I didn't know what it was before today either. I even said, "Isn't that for old people?" My doc laughed at me. I can't imagine both eyes, I'm so sorry that you are having trouble with both. Are you scared about going blind? I AM!!

I am in the same boat about never going to the doctor, now I have regular visits and email contact with my GI. To think about developing more problems from the drugs that were helping my UC is just sooooo discouraging. On top of all that we have colon cancer to worry about or look forward to in our 30's and 40's. As a lovely bonus all the drugs we try and rely on can potentially sterilize us. Wonderful. This disease sucks.
I'm happy you gave birth to a healthy baby boy before the disease could take hold. Thank god for small miracles.


I'm not scared about going blind because I think it's pretty treatable as long as you catch it early. The eye drops should work if it becomes necessary. My eye doctor said the pressure in the eye is often higher in the morning (and I had a 9am appointment), so next time I go in, he wants it to be in the afternoon. Hopefully, it is ok. My husband broke my glasses by sitting on them, and I was really annoyed, but now I guess it's a good thing since this came up, so at least it was caught early.

I am really nervous about the long term effects of these drugs. If I am having this many issues after just a few months, I can't imagine what years of medication will do to me. Plus, Remicade is so new that it does really scare me.

I am very happy I have a healthy son (especially since I was so sick during the pregnancy). My husband originally wanted to wait a few years but then agreed to have a baby now, and I'm so glad because who knows what will happen with me in the future. I know it's rare to have fertility issues and I probably won't have a problem later, but you never know. My OB did tell me not to get pregnant again until I have this completely under control because I was lucky I didn't have more issues with the pregnancy.
26 year old female
Diagnosed with unspecified UC 11/08 by flex. sig. as I was pregnant at the time and did not want to be put under for a colonoscopy
Breastfeeding my baby boy (born 4/8/09)
15 mg Prednisone AM, 10 mg PM (tapering from 60mg a day)
Started Remicade 6/11/09 (2 infusions so far)
Was on Asacol (2400mg or 3600mg a day) for 6 months with no success


Ashley O
Regular Member


Date Joined Jun 2008
Total Posts : 72
   Posted 7/8/2009 7:46 PM (GMT -6)   
It's really good that your broken glasses made you go in and that you caught this early. Hopefully your afternoon appt will show better results. I guess I'm being dramatic about going blind, you're right there are eye drops and surgeries etc that can treat glaucoma.

The annoying thing for me is that I have never needed glasses and had perfect vision and now this is coming out of the blue.
Were your glasses for distance or reading?

Don't get too freaked out about the meds. If we focused on that we wouldn't be able to relax and benefit from the time the meds give us. Plus, docs weigh the pros of treating our uc with the risks of the meds.

Remicade is definitely a little nerve-wracking. I was on it for 3 years every 8 weeks so about 25 infusions or so. I built up antibodies over time so it no longer works for me. I had to stop taking it last month. Who knows what 3 years of Remicade during my reproductive development years will do to me. Or just to my body in general. But while I was on it I didn't care about side effects in the long run because I got my life back for those 3 years for the most part. So enjoy Remicade while you can and don't worry too much.
Female, Age 20, DX w/Left sided UC October 2005
DX w/Universal Colitis June 2009
Currently in Flare with moderate symptoms

Present Meds: Switching to Lialda 4 pills 1x daily and Canasa Suppositories (hopefully this combo will work, if not back on the Pred-unless I want to try Humira or Cimzia)

Past Meds: 40 mg Prednisone Daily for 1 year, Miralax Daily, Ginger Supplements, Remicade Aug 2006-June 2009


pam222
Veteran Member


Date Joined Jun 2009
Total Posts : 985
   Posted 7/8/2009 7:59 PM (GMT -6)   
Thanks. Actually, my eyes are funny. One is nearsighted and one is farsighted.
26 year old female
Diagnosed with unspecified UC 11/08 by flex. sig. as I was pregnant at the time and did not want to be put under for a colonoscopy
Breastfeeding my baby boy (born 4/8/09)
15 mg Prednisone AM, 10 mg PM (tapering from 60mg a day)
Started Remicade 6/11/09 (2 infusions so far)
Was on Asacol (2400mg or 3600mg a day) for 6 months with no success


Ashley O
Regular Member


Date Joined Jun 2008
Total Posts : 72
   Posted 7/8/2009 8:06 PM (GMT -6)   
That's a funny combination. :-)
Female, Age 20, DX w/Left sided UC October 2005
DX w/Universal Colitis June 2009
Currently in Flare with moderate symptoms

Present Meds: Switching to Lialda 4 pills 1x daily and Canasa Suppositories (hopefully this combo will work, if not back on the Pred-unless I want to try Humira or Cimzia)

Past Meds: 40 mg Prednisone Daily for 1 year, Miralax Daily, Ginger Supplements, Remicade Aug 2006-June 2009


pam222
Veteran Member


Date Joined Jun 2009
Total Posts : 985
   Posted 7/11/2009 2:22 PM (GMT -6)   
well, I got it rechecked in the afternoon like the doctor wanted, and it was still high, so I have to go see an ophthalmologist. he said to make sure to do it within the next couple weeks and that i will probably need the eye drops to lower the pressure
26 year old female
Diagnosed with unspecified UC 11/08 by flex. sig. as I was pregnant at the time and did not want to be put under for a colonoscopy
Breastfeeding my baby boy (born 4/8/09)
10 mg Prednisone AM, 10 mg PM (tapering from 60mg a day)
Started Remicade 6/11/09 (2 infusions so far)
Was on Asacol (2400mg or 3600mg a day) for 6 months with no success


Ashley O
Regular Member


Date Joined Jun 2008
Total Posts : 72
   Posted 7/11/2009 3:49 PM (GMT -6)   
Darn it was still high. Well good luck at the ophthalmologist and hopefully all you will need are those eye drops.

Wish me luck for my tests on Monday!
Female, Age 20, DX w/Left sided UC October 2005
DX w/Universal Colitis June 2009
Currently in Flare with moderate symptoms

Present Meds: Switching to Lialda 4 pills 1x daily and Canasa Suppositories (hopefully this combo will work, if not back on the Pred-unless I want to try Humira or Cimzia)

Past Meds: 40 mg Prednisone Daily for 1 year, Miralax Daily, Ginger Supplements, Remicade Aug 2006-June 2009


pam222
Veteran Member


Date Joined Jun 2009
Total Posts : 985
   Posted 7/11/2009 4:00 PM (GMT -6)   
Ashley O said...
Darn it was still high. Well good luck at the ophthalmologist and hopefully all you will need are those eye drops.

Wish me luck for my tests on Monday!


Yeah, it sucks. Hopefully your tests go better
26 year old female
Diagnosed with unspecified UC 11/08 by flex. sig. as I was pregnant at the time and did not want to be put under for a colonoscopy
Breastfeeding my baby boy (born 4/8/09)
10 mg Prednisone AM, 10 mg PM (tapering from 60mg a day)
Started Remicade 6/11/09 (2 infusions so far)
Was on Asacol (2400mg or 3600mg a day) for 6 months with no success


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 7/11/2009 4:11 PM (GMT -6)   
My eyes got worse while on Prednisone. I now have to wear reading glasses. I don't know if my eyes got worse from the Prednisone though, because I'm at that age where most people wear reading glasses. I also got a couple of winkles while on Prednisone. Again the winkles could be age related.
Joy - 47 yrs and counting; Colitis Dec 06 (also have IBS); Currently in remission

Figuring out how to reduce a flare or get into remission is a trial and error experience. Don't expect your GI to have all the answers. He was trained in making diagnoses, prescribing medications, and surgically removing the colon. He was not trained in alternative treatments. That's why they are called alternative treatments.

Lexapro (for stress), Probiotics and Vitamins, Anti-inflammatory foods, No pro-inflammatory foods when flaring, No HFCS, No foods high in fructose, No artificial sweeteners -- Fecal transplantation worked, Prednisone stopped working, Colazal stopped working, Asacol stopped working


Ashley O
Regular Member


Date Joined Jun 2008
Total Posts : 72
   Posted 7/13/2009 8:11 PM (GMT -6)   
Good news. I went back to the eye doctor and he performed more tests and it looks like I'm ok. The other doctor got me all worried for nothing. Thanks for your input and I'm sorry it didn't work out so well for you. Good luck in the future!
Female, Age 20, DX w/Left sided UC October 2005
DX w/Universal Colitis June 2009
Currently in Flare with moderate symptoms

Present Meds: Switching to Lialda 4 pills 1x daily and Canasa Suppositories (hopefully this combo will work, if not back on the Pred-unless I want to try Humira or Cimzia)

Past Meds: 40 mg Prednisone Daily for 1 year, Miralax Daily, Ginger Supplements, Remicade Aug 2006-June 2009


pam222
Veteran Member


Date Joined Jun 2009
Total Posts : 985
   Posted 8/3/2009 10:55 AM (GMT -6)   
I had my appointment with the ophthalmologist today and the pressure in my eyes is normal. He said that likely when I am on higher doses of prednisone, the pressure increases (because I have a predisposition to glaucoma because my grandma had it) and then goes back to normal when I am off it or taking low doses. If I have to take a high dose again (which I don't want to), I will have to have my pressure checked frequently.
26 year old female
Diagnosed with unspecified UC 11/08 by flex. sig. as I was pregnant at the time and did not want to be put under for a colonoscopy
Breastfeeding my baby boy (born 4/8/09)
5 mg Prednisone (tapering from 60mg a day)
Started Remicade 6/11/09 (3 infusions so far)
Was on Asacol (2400mg or 3600mg a day) for 6 months with no success


Ashley O
Regular Member


Date Joined Jun 2008
Total Posts : 72
   Posted 8/3/2009 3:06 PM (GMT -6)   
That's interesting that Prednisone does that. Hopefully you can stay on a low dose or taper off completely. But it's good to know that if you do go on high doses of Prednisone you should get checked frequently because then you can catch the early stages of Glaucoma earlier. But you just started the Remicade, how is that going for you? You may not need Prednisone anymore. I didn't when I was on Remicade.
Female, Age 20, DX w/Proctitis UC October 2005
DX w/Pancolitis June 2009
Currently close to Remission. WHOOOO!

Present Meds: Lialda 4 pills every morning and Canasa Suppositories nightly.

As Needed: Immodium, Clonazepam 1mg for anxiety

Past Meds: 40 mg Prednisone Daily 2005-2006, Miralax, Ginger Supplements, Remicade every 8 weeks Aug 2006-June 2009


pam222
Veteran Member


Date Joined Jun 2009
Total Posts : 985
   Posted 8/3/2009 3:40 PM (GMT -6)   
Ashley O said...
That's interesting that Prednisone does that. Hopefully you can stay on a low dose or taper off completely. But it's good to know that if you do go on high doses of Prednisone you should get checked frequently because then you can catch the early stages of Glaucoma earlier. But you just started the Remicade, how is that going for you? You may not need Prednisone anymore. I didn't when I was on Remicade.


It's not going well. I am doing really bad again, so my doctor told me today to increase to 30mg again. I am having a colonoscopy done and I either have to increase the dose of Remicade or have surgery
26 year old female
Diagnosed with unspecified UC 11/08 by flex. sig. as I was pregnant at the time and did not want to be put under for a colonoscopy
Breastfeeding my baby boy (born 4/8/09)
5 mg Prednisone (tapering from 60mg a day)
Started Remicade 6/11/09 (3 infusions so far)
Was on Asacol (2400mg or 3600mg a day) for 6 months with no success


Ashley O
Regular Member


Date Joined Jun 2008
Total Posts : 72
   Posted 8/3/2009 3:43 PM (GMT -6)   
Oh no! I'm so sorry. :-( How many infusions have you had done? Surgery is such a scary thing to have hanging over your head.
Female, Age 20, DX w/Proctitis UC October 2005
DX w/Pancolitis June 2009
Currently close to Remission. WHOOOO!

Present Meds: Lialda 4 pills every morning and Canasa Suppositories nightly.

As Needed: Immodium, Clonazepam 1mg for anxiety

Past Meds: 40 mg Prednisone Daily 2005-2006, Miralax, Ginger Supplements, Remicade every 8 weeks Aug 2006-June 2009


pam222
Veteran Member


Date Joined Jun 2009
Total Posts : 985
   Posted 8/3/2009 4:36 PM (GMT -6)   
Thanks. I had my 3rd last week. My doctor thinks it should be working by now
26 year old female
Diagnosed with unspecified UC 11/08 by flex. sig. as I was pregnant at the time and did not want to be put under for a colonoscopy
Breastfeeding my baby boy (born 4/8/09)
5 mg Prednisone (tapering from 60mg a day)
Started Remicade 6/11/09 (3 infusions so far)
Was on Asacol (2400mg or 3600mg a day) for 6 months with no success


Ashley O
Regular Member


Date Joined Jun 2008
Total Posts : 72
   Posted 8/3/2009 4:41 PM (GMT -6)   
I would think it would be giving you some relief by now. Maybe if you increase your dosage? Or try humira? Do you want the surgery instead?
Female, Age 20, DX w/Proctitis UC October 2005
DX w/Pancolitis June 2009
Currently close to Remission. WHOOOO!

Present Meds: Lialda 4 pills every morning and Canasa Suppositories nightly.

As Needed: Immodium, Clonazepam 1mg for anxiety

Past Meds: 40 mg Prednisone Daily 2005-2006, Miralax, Ginger Supplements, Remicade every 8 weeks Aug 2006-June 2009


pam222
Veteran Member


Date Joined Jun 2009
Total Posts : 985
   Posted 8/3/2009 4:48 PM (GMT -6)   
Yeah, he said if things look ok when he does the colonoscopy, we will increase the Remicade dose, but if things don't look good, he wants to refer me to a surgeon. He mentioned Humira at one point but I think it's hard to get approved with my insurance or something because he said I probably wouldn't be able to do it until it is approved for UC. It's hard to think about surgery. I don't know whether it's better to do it or to be on medications forever. I also will have a very difficult time getting it done with a 4 month old and school starting again in 3 weeks.
26 year old female
Diagnosed with unspecified UC 11/08 by flex. sig. as I was pregnant at the time and did not want to be put under for a colonoscopy
Breastfeeding my baby boy (born 4/8/09)
5 mg Prednisone (tapering from 60mg a day)
Started Remicade 6/11/09 (3 infusions so far)
Was on Asacol (2400mg or 3600mg a day) for 6 months with no success


Ashley O
Regular Member


Date Joined Jun 2008
Total Posts : 72
   Posted 8/3/2009 6:19 PM (GMT -6)   
I'm sending good thoughts your way and hope your colonoscopy goes well. Hopefully all you will have to do is up your Remicade. Humira does have insurance issues sometimes, maybe you could call your insurance and ask just in case. Surgery is hard to think about with a 4 month old for sure. Especially if it might cause you to have trouble picking him up when you're healing. Let me know how your c-scope goes.
Female, Age 20, DX w/Proctitis UC October 2005
DX w/Pancolitis June 2009
Currently close to Remission. WHOOOO!

Present Meds: Lialda 4 pills every morning and Canasa Suppositories nightly.

As Needed: Immodium, Clonazepam 1mg for anxiety

Past Meds: 40 mg Prednisone Daily 2005-2006, Miralax, Ginger Supplements, Remicade every 8 weeks Aug 2006-June 2009


pam222
Veteran Member


Date Joined Jun 2009
Total Posts : 985
   Posted 8/4/2009 11:01 AM (GMT -6)   
Thanks :)
26 year old female
Diagnosed with unspecified UC 11/08 by flex. sig. as I was pregnant at the time and did not want to be put under for a colonoscopy
Breastfeeding my baby boy (born 4/8/09)
5 mg Prednisone (tapering from 60mg a day)
Started Remicade 6/11/09 (3 infusions so far)
Was on Asacol (2400mg or 3600mg a day) for 6 months with no success

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