Black Mucus, Aching + Rowasa

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

sirenshooter
Veteran Member


Date Joined Jun 2009
Total Posts : 2012
   Posted 7/8/2009 8:29 PM (GMT -6)   
Okay, the second night, I held it in for about eight hours. When I woke up my lower left back and parts of my abdomen ached. I also got some black mucus, which made me nervous. Help?? I stopped for now, because I don't want to make anythng worse. I tried calling the nurse but the Univeristy of Michigan is like, too darn busy to help their own patients. sad
---
So tonight I get to become a first time enema user. Whoopee. Anyways, kinda nervous about it. Also, having to retain it for eight hours? I can't wrap my mind around it. Could anyone tell me what it's like? lol

Well, I managed to retain it for three hours, then I woke up and decided to use the bathroom.
When I got in there and sat down, I really had to throw up and I got really dizzy. I had one of those moments where you have to try to decide if you want to poo in the toilet and throw up on the floor or the other way around. I managed not to throw up, but it wasn't fun. After I finished using the toilet I was pretty okay and went back to sleep.
Is that normal?? Am I adjusting or reacting?


19yr old female
Diagnosed with UC (pancolitis) in 2005 at age 15
2.5 tabs of Azathioprine 1xday / 1 Mesalamine enema nightly
2000mg Fish Oil 1xday / 500mg Turmeric 3xday /
Arthritis in both knees
Also: asthma, acid reflux, and Reynaud's Syndrome

Post Edited (ElephantPipe) : 7/12/2009 5:34:03 PM (GMT-6)


BNew
New Member


Date Joined Jul 2009
Total Posts : 3
   Posted 7/8/2009 8:36 PM (GMT -6)   
Enemas can be difficult, because it's not the delivery method of choice, right? But I think being calm (deep breaths) helped me when I first started down the Rowasa enema road. Also, I try to lie down (or at least lounge on the couch)immediately afterward. It prevents any light cramping I have or feelings of my body not wanting to retain the medicine.

I've heard some people lay down on their sides to aid in the delivery (lol...I had a hard time choosing the right word), if not comfortable standing/squatting in the bathroom.

sirenshooter
Veteran Member


Date Joined Jun 2009
Total Posts : 2012
   Posted 7/8/2009 8:38 PM (GMT -6)   
Yeah, I read that too. I'm mostly worried about the retention I guess. How am I s'posed to sleep?
19yr old female
Diagnosed with UC (pancolitis) in 2005 at age 15
2.5 tabs of Azathioprine 1xday / 2000mg Fish Oil 1xday /
500mg Turmeric 3xday / 1c Dandelion root tea 1xday
Arthritis in both knees (thanks UC)
Also: asthma, acid reflux, and Reynaud's Syndrome


BNew
New Member


Date Joined Jul 2009
Total Posts : 3
   Posted 7/8/2009 8:42 PM (GMT -6)   
You might be surprised how quickly you no longer feel the meds in there. I just kind of hang out about 15 minutes and either fall asleep or forget about that I just took an enema.

If you use the enema and can only hold it like 5 or 10 minutes, maybe try again. If you make it an hour, (if it were me) I'd consider it a success, then the next day try to hold it longer.

Good luck!

B

sirenshooter
Veteran Member


Date Joined Jun 2009
Total Posts : 2012
   Posted 7/8/2009 8:48 PM (GMT -6)   
Thanks for checking back, I'll do my best lol. Thanks again!
19yr old female
Diagnosed with UC (pancolitis) in 2005 at age 15
2.5 tabs of Azathioprine 1xday / 2000mg Fish Oil 1xday /
500mg Turmeric 3xday / 1c Dandelion root tea 1xday
Arthritis in both knees (thanks UC)
Also: asthma, acid reflux, and Reynaud's Syndrome


janettzi
Regular Member


Date Joined Jul 2009
Total Posts : 23
   Posted 7/8/2009 8:55 PM (GMT -6)   
Hey,
 
Yeah, I just tried hydrocortizone enemas for the first time last week. Up till then, id only used the suppositories, so it was a bit different. For me, the instructions were to lay on my left side , with my right leg bent for the insertion. I have to say the hardest part is emptying that darn little tube, its kinda a gymnastic effort, if you can picture it. I found that holding it with my right hand (behind my back) at the bottom of the bottle helped me, cause i could fold it up like a toothpaste tube as it emptied. It is tricky, but you get better at it. My GI said to stay in that same position (legs and all) for at least a 1/2 hour, so that your left colon "SUCKS it up". I could actually feel this happening.
I was able to retain them for about 5 hours, best if I never moved outta that position. But I started getting like semi cramps after a few nights, right after insertion and thought Id have to go to the bathroom, but was able to relax, take deep breaths and it always (thankfully) went away....
DOnt know if this will help at all, but thats my experience.
 
p.s. saw your other post, thanks for your input!


sirenshooter
Veteran Member


Date Joined Jun 2009
Total Posts : 2012
   Posted 7/8/2009 9:10 PM (GMT -6)   
Yeah. I think I can safely say this could never become enjoyable for me XD
You're welcome!
19yr old female
Diagnosed with UC (pancolitis) in 2005 at age 15
2.5 tabs of Azathioprine 1xday / 2000mg Fish Oil 1xday /
500mg Turmeric 3xday / 1c Dandelion root tea 1xday
Arthritis in both knees (thanks UC)
Also: asthma, acid reflux, and Reynaud's Syndrome


quincy
Elite Member


Date Joined May 2003
Total Posts : 30993
   Posted 7/8/2009 10:59 PM (GMT -6)   
The first time I used them....oh 20 years ago...my doc said as long as it's in for half an hour the first times, you'll still be getting some medication. But...try to keep it in as long as possible.

Do lay still on your left side, and you may have the urge to run to the bathroom....but grunt, groan, bite the sheets and squeeze those cheeks to ease the urge..it passes within a minute (which seems like an hour).

As your flare eases, that feeling will become less....with time.

Yep, one may believe you can never get used to them...but you do.

Let us know how it goes.

quincy
*Heather* Status: maintenance Asacol 6 daily + Salofalk enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


sirenshooter
Veteran Member


Date Joined Jun 2009
Total Posts : 2012
   Posted 7/9/2009 5:11 PM (GMT -6)   
Well, I managed to retain it for three hours, then I woke up and decided to use the bathroom.
When I got in there and sat down, I really had to throw up and I got really dizzy. I had one of those moments where you have to try to decide if you want to poo in the toilet and throw up on the floor or the other way around. I managed not to throw up, but it wasn't fun. After I finished using the toilet I was pretty okay and went back to sleep.
Is that normal?
19yr old female
Diagnosed with UC (pancolitis) in 2005 at age 15
2.5 tabs of Azathioprine 1xday / 1 Mesalamine enema nightly
2000mg Fish Oil 1xday / 500mg Turmeric 3xday /
Arthritis in both knees
Also: asthma, acid reflux, and Reynaud's Syndrome


sweetmelody
Veteran Member


Date Joined Aug 2007
Total Posts : 650
   Posted 7/9/2009 6:25 PM (GMT -6)   
I don't know if that's normal or what, but here's what helps me retain Rowasa.

I lay on my left side with my right leg bent forward.. put it in.. and then have a pillow handy and i actually pull in two opposite directions really hard till the urge to run to the bathroom leaves.... most of the time its just gas anyways so i just clench my cheeks haha.. and it stays in... after the urge leaves...usually 10 mins.. i roll on my back and im good to sleep
Kara, 22F Married.
Latest - Lialda 2 twice a day. Left Sided Colitis 40cm up...flare. Also IBS.
Medications: Lialda 2 twice a day, Align probiotic, Hyomax as needed, 6mp 50mg a day, Rowasa enemas.
I am so sick of this disease!
 
 


sirenshooter
Veteran Member


Date Joined Jun 2009
Total Posts : 2012
   Posted 7/9/2009 6:27 PM (GMT -6)   
I actually didn't have much of a problem retaining it. I just dunno about being sick. Thanks though! I guess I'll keep doing it and hope it doesn't happen again. If it keeps happening, I quit.
19yr old female
Diagnosed with UC (pancolitis) in 2005 at age 15
2.5 tabs of Azathioprine 1xday / 1 Mesalamine enema nightly
2000mg Fish Oil 1xday / 500mg Turmeric 3xday /
Arthritis in both knees
Also: asthma, acid reflux, and Reynaud's Syndrome


quincy
Elite Member


Date Joined May 2003
Total Posts : 30993
   Posted 7/10/2009 12:51 AM (GMT -6)   
wooHoo for holding it in for 3 hours!

No, the vomiting isn't normal from the enemas unless the extra pressure in the rectum caused some nausea from the excessive peristalsis once you got up.

If it continues nightly, then maybe there's something up with that...but you should persevere in using them and hopefully retention of the enemas will be easy peasy! ;-)

How were you feeling today?

quincy
*Heather* Status: maintenance Asacol 6 daily + Salofalk enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


sirenshooter
Veteran Member


Date Joined Jun 2009
Total Posts : 2012
   Posted 7/12/2009 6:34 PM (GMT -6)   
quincy, I felt good after the first dose (in the morning, that is), but now I have a new problem, as you can see.
19yr old female
Diagnosed with UC (pancolitis) in 2005 at age 15
2.5 tabs of Azathioprine 1xday / 1 Mesalamine enema nightly
2000mg Fish Oil 1xday / 500mg Turmeric 3xday /
Arthritis in both knees
Also: asthma, acid reflux, and Reynaud's Syndrome


quincy
Elite Member


Date Joined May 2003
Total Posts : 30993
   Posted 7/13/2009 2:20 AM (GMT -6)   
what's the new problem? colour change of the mucus? no biggie..normal.

Aching? to the point you can't walk?

Maybe not add the changes to your title...just add new posts to this thread with the changes. Much easier to keep track of.

quincy
*Heather* Status: maintenance Asacol 6 daily + Salofalk enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


sirenshooter
Veteran Member


Date Joined Jun 2009
Total Posts : 2012
   Posted 7/13/2009 7:05 PM (GMT -6)   
Okay, I'll start up again and see what happens. Black just seems scary.
 
I added it to the title hoping it'd draw some attention lol
19yr old female
Diagnosed with UC (pancolitis) in 2005 at age 15
2.5 tabs of Azathioprine 1xday / 1 Mesalamine enema nightly
2000mg Fish Oil 1xday / 500mg Turmeric 3xday /
Arthritis in both knees
Also: asthma, acid reflux, and Reynaud's Syndrome


quincy
Elite Member


Date Joined May 2003
Total Posts : 30993
   Posted 7/14/2009 3:14 AM (GMT -6)   
Definitely continue the Rowasa for at least a few weeks. You should notice some definite improvement over a week or so.

q
*Heather* Status: maintenance Asacol 6 daily + Salofalk enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 

New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, September 21, 2018 8:04 PM (GMT -6)
There are a total of 3,005,591 posts in 329,242 threads.
View Active Threads


Who's Online
This forum has 161784 registered members. Please welcome our newest member, Thunderdaytona.
279 Guest(s), 3 Registered Member(s) are currently online.  Details
mattamx, sebreg, FLBeachgal