im 34 now and have this disease for 9 years or so now....
you gotta tell people the gory details down to the last bloody fart! LOL
it makes for some really funny stories. im always talking about
poos and farts to my fam and its pretty funny.
the more you share, the more they know and can start to attempt to understand.
i always tell when people ask. i hold nothing back!
then they go "oh my god, you poor thing, i cant imagine.." or "that sucks"
and it does suck.
a lot of people have a lot of crap diseases. this certainly isnt the only one or the worst one.
i'd say crohns is way worse.
and some people have really bad other conditions that we can't imagine what its like.
some people aren't in touch with others and how they feel. certainly don't take it personally.
even if its a good or best mate. and if it IS a best mate, then you should tell them long ago that their attitude or behaviour
hurts your feelings. if you cant tell them that, then you're just as much to blame.
when im in remission, i completely forget how bad it is, until i flare again. life is grand and back to normal when in remission, so you cant really blame someone who's never had it before. and im someone who has had a year and a half long super acute severe flare the whole time, was hospitalised and went down to 90 lbs and bled the whole time and was pretty much perma-aenemic. so im not taking this lightly here.
i know its hard and totally cliche, but keep your chin up and just know that you are tougher than the rest to be living thru this horrible disease.
and in saying that, i will have to mention that it is pretty annoying when someone that has gas pains says, 'i know what you're going thru" .... LOL!! yeah right!
steph - 33 - female - gold coast australia - UC since 2000
was in remission until i quit smoking 5 weeks ago o.O now im flaring like a solar flare!
waiting for blood test to see if i can start imuran
mesalazine granules 3g x1 a day (much nicer than a million tablets a day)
just finished 3 months of prednisolone (worked) and now back on 40mg a day (ick)
quercertin tablets, tumeric capsules, vitamin d3, enteric coated fish oil
pre-conception vitamins and minerals (cuz we trying to make a baby)
oxycontin for pain every 4 hours. plastic bags in the loo from the involuntary puking.
i still eat what i want, when i want, if i feel like eating at all ... diet doesn't affect my UC.