I am sorry about
your results. And I can completely understand not wanting a lifetime of meds. I am on Humira and I do worry about
the long term effects of being on it that they just may not know about
I'll say a prayer for you for clear thinking about
all of this. I know it is a tough decision-one I can not imagine facing at this point.
Things WILL get better, one way or another!
I did want to add that while I do worry about the effects of the Humira, it has given me my life back. I don't know what the norm is for bathroom visits after a j-pouch, but on the Humira (and Asacol, with Canasa suppositories for any problems that might come up -like antibiotic use and such that cause bleeding), I am going once or twice a day-completely normal, no D, no urgency, and typically, no blood. I am really like a normal person again. I know it isn't approved yet, but I also know Remicade is a good option, and some insurance companies will cover Humira, if not at first, after other options have been tried and failed. And there are trials, like the one I am in. I am not sure if you are interested in any of these meds (and I would understand if you aren't), but wanted to share my experience.