liver symptoms

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bookgal77
Regular Member


Date Joined Jul 2009
Total Posts : 83
   Posted 7/9/2009 2:22 PM (GMT -6)   
(Cross posting from CD forum)
 
I've read a lot about people with Crohn's having liver problems or liver disease that pops up because of either the CD or the many meds we are on for CD. So knowing I'm at risk for that, I have no idea what type of symptoms I should be looking for in terms of liver problems. I had my gallbladder removed about two years ago in addition to the CD, but had no complications from that surgery.
**Diagnosed with ulcerative colitis in 2001; diagnosis changed to Crohn's disease in 2009 (but still only impacts colon)
**Asacol (4800 mg daily), 6-MP (100 mg daily -- recently switched from Imuran), Prednisone (8 mg daily...for a few more weeks), Flagyl (250 mg every other day), Nexium (40 mg daily)
GOAL of one day being immunosuppressant free...still working on my doctor on this one but I am a world traveler who desperately wants to go to Africa one day!


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 7/9/2009 2:43 PM (GMT -6)   
I just started taking milk thistle. I used to drink a lot of beverages with HFCS, which is known to cause fatty liver. Research suggests that milk thistle prevents and repairs damage to the liver from toxic chemicals and medications. Interestingly, I'm no longer feeling thirsty all the time.

Here are some of the symptoms of a diseased liver:

A yellowish tinge to the skin and eyes.

Dark yellow urine.

Weight loss due to loss of appetite.

Light-colored stools.

Distended abdomen right under the right lower ribs.

Curved and whitish nails.

Bleeding nose.

Bruise easily.

Excessive thirst.

Frequent urination.

Frequent headaches, dizziness, spasms, irritability, depression and so on.
Joy - 47 yrs and counting; Colitis Dec 06 (also have IBS); Currently in remission

Figuring out how to reduce a flare or get into remission is a trial and error experience. Don't expect your GI to have all the answers. He was trained in making diagnoses, prescribing medications, and surgically removing the colon. He was not trained in alternative treatments. That's why they are called alternative treatments.

Lexapro (for stress), Probiotics and Vitamins, Anti-inflammatory foods, No pro-inflammatory foods when flaring, No HFCS, No foods high in fructose, No artificial sweeteners -- Fecal transplantation worked, Prednisone stopped working, Colazal stopped working, Asacol stopped working

Post Edited (subdued) : 7/9/2009 2:46:59 PM (GMT-6)


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 7/9/2009 3:51 PM (GMT -6)   
Please don't go looking for trouble! Know that liver damage is very rare.
Routine blood work would reveal any problems.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol maintenance for 20+ years; used prednisone & Rowasa for flares.  Probiotics (Ultimate Flora, 50 billion), salmon oil (omega-3) when I can remember. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated wheat/gluten from my diet.
Bad flare in March, used prednisone. Humira denied, started Remicade 4/12 and doing great~ learning what normal is~ wow


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 7/9/2009 6:16 PM (GMT -6)   
I don't think it's a rare as you think.

The occurrence of serious diseases involving the liver is 5% for people with IBD, with fatty liver being the most common liver disease for people with Crohn's and UC. That means that for every 100 people on this forum (assuming they all have IBD), an average of five will have some form of serious disease involving the liver.
Joy - 47 yrs and counting; Colitis Dec 06 (also have IBS); Currently in remission

Figuring out how to reduce a flare or get into remission is a trial and error experience. Don't expect your GI to have all the answers. He was trained in making diagnoses, prescribing medications, and surgically removing the colon. He was not trained in alternative treatments. That's why they are called alternative treatments.

Lexapro (for stress), Probiotics and Vitamins, Anti-inflammatory foods, No pro-inflammatory foods when flaring, No HFCS, No foods high in fructose, No artificial sweeteners -- Fecal transplantation worked, Prednisone stopped working, Colazal stopped working, Asacol stopped working

Post Edited (subdued) : 7/9/2009 6:23:16 PM (GMT-6)


Shadam
Regular Member


Date Joined Jan 2009
Total Posts : 307
   Posted 7/9/2009 6:30 PM (GMT -6)   
I was diagnosed with PSC (which is a liver disease) 4  months after i was dx with UC...it kinda stinks knowing that I'll most likely need a liver transplant sometime in my life...
Age: 25 / Male / Florida
Diagnosed: 11/08 / Pancolitis
Diagnosed with PSC: 3/9 --now taking Urso
Asacol - 2 x 3 day (waiting for results)
6MP - 50mg - 5/04/09 - 100mg - started 6/11/09 - back to 50mg 7/8/09
Mens Multi Vitamin - 1 a day
Vitamin A Deficient - 10,000mg a day
Calcium & Vitamin D3 - 1200mc of Calcium and 800iu of Vitamin D3  
Jaro - Dophilus Probiotic (3.4 Billion) - 1 a day
 
~~~Praying for a cure~~~~
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30614
   Posted 7/9/2009 11:46 PM (GMT -6)   
Your doctor should be doing liver enzyme tests. Milk thistle will NOT prevent any UC-related liver disease, unfortunately....since it would be autoimmune as well.

Have you had liver enzyme tests done routinely?

quincy
*Heather* Status: maintenance Asacol 6 daily + Salofalk enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


qazwsx12
Regular Member


Date Joined Nov 2008
Total Posts : 63
   Posted 7/10/2009 1:55 AM (GMT -6)   
I had yellow tinged eyes in the recent past... This was back when I was on Imuran though, and probably Humira and/or Prednisone at the same time. I also binge drink quite a bit. Be careful with what you do!

quincy
Elite Member


Date Joined May 2003
Total Posts : 30614
   Posted 7/10/2009 8:44 AM (GMT -6)   
qazwsx...your liver is already compromised....what other testing have you had done...an MRCP? CT scan? ....???? to make sure nothing else is going on?
Blood testing?


q
*Heather* Status: maintenance Asacol 6 daily + Salofalk enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 

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