New to the Forum....my story

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Nick9011
Regular Member


Date Joined Jul 2009
Total Posts : 27
   Posted 7/10/2009 7:55 AM (GMT -6)   
Hi everyone, I recently decided to join this forum because I am having one hell of a year and my colitis is just the icing on the cake.
My name is Nick, I live in Willow Grove PA and I am 25 years of age. 
On the good note before I joined this site, i was about 2 years symptom free of colitis.  I was first told I had colitis my Freshman year in college.  Very bad cramps, going to the bathroom a lot with some of those times a heavy amount of blood.  Needless to say i was scared as hell.  They had put me on Asacol 400 mg tablets 2 pills 3 times a day.  By my senior year, probably the end of my freshman year it was well undercontrol.  Since i had graduated, no blood, no symptoms, life was awesome. 
 
This year, I am not going to even mention the economic down turn resulting in my job loss or go into that story, but just keep in mind it happend, 2 weeks later, i was in a motorcycle accident.  Shattered my knee cap, broke my femur in 3 places, broke my arm in 4 places, factured a vertebre between my shoulder blades as well as a rib, broke my nose, and had multiple bruses. 
 
 after the accident and after battling the emotional and mental distress that was caused, because before the accident, i was a very active person the flare up started.  I was very confused and at first rote it off until one night when me and my wife were looking at houses on the internet i went to the bathoom like 3 times in an hour.  The next day i schedualed an appointment with a GI doctor, not my usual doctor but a person that was filling in for him.
 
He had me go for blood tests and stool samples, which BTW i have never done before and is a very humilating thing especially when they mess up twice and make you go throught it all over again!!!!!  In the office though he had told me some very agressive things that he was planning.  Like Pred, enemas, and sapositories ( dunno how you spell it ).  I was thinking to my self whoa whoa whoa, even when I was first diagnosed they never thrown that at me.  Although I do want to go for a colonoscopy because I haven't had on it 2 1/2 years or so.      I also told him that I was taking a  lot of pain medication for the surgery and was told to take 4 ibuprophen 2 times a day then to go to 1 aleeve  a day.  He suspected that this was probably the cause of the flare, the medications i was taking finally taking a told on my colitis and agrivating it a little. 
 
There--- now that I have told my story to a certain extent.  Can anyone identify with this and share some advice, insite, stories etc..  I would very much appreciate it.   

Nick9011
Regular Member


Date Joined Jul 2009
Total Posts : 27
   Posted 7/10/2009 8:02 AM (GMT -6)   
oh I had forgotten to mention. Even as we speak, its not that my symptoms are as strong as when I first experienced colitis. Even with my flare up i go to the bathroom maybe 3 times a day with a little blood present, sometimes none at all or none that I can see that is. I have very little discomfort, little cramps, no fever, no chills, nothing of that sort.

therearemiracles
Veteran Member


Date Joined Dec 2006
Total Posts : 3608
   Posted 7/10/2009 8:29 AM (GMT -6)   
Hi Nick and Welcom to HW. You will find the nicest, caring and supportive people on this site. I have dealt with UC for 4 years and now being the worst hemmroids and maybe a fisstual. I have never been in remission and so I think you're doing better than most keeping yours under control. I would recommend food allergy testing (with needles not just blood test) and maybe this will help alevate some of your symptoms. I take a good probiotic by Klaire Labs, Therebiotic Complete and it has stopped the blood for me. Know you have a great support team here!
 
Very mild left sided (could have fooled me with the "mild")  UC. Started LDN ON 1/25/09, stopped LDN on 5/1/09 didn't seem to help. Supplements: Probiotics, Cipro antibiotics 4/29 for 8 days seemed to help a little. Bad diarreah in the mornings about a hour of "dumping" no meds at this time for UC. I take Bentyl as needed, lomotil as well.


Nick9011
Regular Member


Date Joined Jul 2009
Total Posts : 27
   Posted 7/10/2009 8:42 AM (GMT -6)   
thanks for the reply. tell me a little more about what you took to stop the blood? I am about to go out and get some Bruno tickets for tonight but I will most definitly be back to read what you have put up!

AMK77
Veteran Member


Date Joined Mar 2008
Total Posts : 678
   Posted 7/10/2009 8:55 AM (GMT -6)   
I used to take Advil like candy. I often wonder if that helped bring on my UC. Were you on antibiotics after your accident? That could have contributed to your current flare as well. Hope you get things under control ASAP.
32 yr old female
Mild Pancolitis
UC since 2000 - in remission for most of those 8 years med free.
Cannot tolerate mesalamine. Currently take probiotics and fish oil. Trying Applied Kinesiology & supplements.


therearemiracles
Veteran Member


Date Joined Dec 2006
Total Posts : 3608
   Posted 7/10/2009 8:56 AM (GMT -6)   
The only probiotics that I noticed that really helped me was Klaire Labs Therbiotics Complete. Read up on them.
Very mild left sided (could have fooled me with the "mild")  UC. Started LDN ON 1/25/09, stopped LDN on 5/1/09 didn't seem to help. Supplements: Probiotics, Cipro antibiotics 4/29 for 8 days seemed to help a little. Bad diarreah in the mornings about a hour of "dumping" no meds at this time for UC. I take Bentyl as needed, lomotil as well.


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 7/10/2009 9:07 AM (GMT -6)   
Hi, I think if you can find an alternative to the ibuprophen and Aleve, you might get the bleeding stopped. I have back trouble, and when I can't resist taking these drugs for more than a week or so, I bleed more.

Probiotics might help, can't hurt. Just start them slowly, they will give you lots of gassiness at first. Good idea to get the colonscopy, if your instincts tell you your gut trouble might be a flare.

Good luck, know that this rough time will pass, soon I hope!
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol maintenance for 20+ years; used prednisone & Rowasa for flares.  Probiotics (Ultimate Flora, 50 billion), salmon oil (omega-3) when I can remember. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated wheat/gluten from my diet.
Bad flare in March, used prednisone. Humira denied, started Remicade 4/12 and doing great~ learning what normal is~ wow


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 7/10/2009 9:16 AM (GMT -6)   
Definitely use some rectal meds...they really aren't considered "aggressive." If you're on a mesalamine one, such as Rowasa, it's the same active ingredient as Asacol, just delivered differently! I consider pred to be heavy hitting, simply because of the side effects that can come with it, but I ended up having to take it to get out of my first (and really bad) flare. If you just use it for a short period of time, it can be worth it.

I agree with Peety that getting off of the NSAID pain meds might help a lot with the bleeding. It sure sounds like they contributed to this flare.
Status: Remission since late May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently taking Apriso (4 pills ONCE!! daily), Rowasa twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (25 mg).


Blue220
Regular Member


Date Joined May 2008
Total Posts : 191
   Posted 7/10/2009 11:56 AM (GMT -6)   
I used to take ibuprofen like a mad woman. I was diagnosed with UC shortly after my 20th birthday. I had it 6 months before I went in for a colonoscopy -- bad idea to wait, but I had to finish a semester at school.

Some say it's triggered by a bacteria somewhere that interacts with your mutated gene for this illness. I think I encountered that in the darn dorm rooms at my first school right out of high school.

Anyway. I would echo what everyone has already said here. I haven't taken probiotics in a while because the shops I went to kept running out of what I had purchased, and I couldn't find a right fit for me.

Also, I try to stay away from 'bad' foods for me, and that seems to work. However... Sometimes you have to live a little, and if I have a little bit of a 'bad' but oh so good food, I'm okay.
22 years old

Diagnosed with moderate/severe UC June 2007, I've had it since December 2006.

Taking Lialda 3x a day<---NOT ANYMORE. I got pancreatitis from them. I stopped taking Lialda 8-19-08. Ugh!! All I take now is just my 3 Entocort in the morning, and 1 iron pill in the afternoon.

NOW back on Lialda as of 8-30-08, not the cause of pancreatitis. Going in for an endoscopic ultrasound on 9-19-08 to check things out. Still on Entocort and iron. Yay...

Haven't been on here in a while (finally graduated college). Update as of 5/26/09 - Now taking Imuran 100mg/day. Taking Caltrate, Iron, and B12. I still take one Lialda a day.. Don't know why.. Something is giving me horrible headaches. =[ At least I'm off the Entocort.


Nick9011
Regular Member


Date Joined Jul 2009
Total Posts : 27
   Posted 7/10/2009 1:12 PM (GMT -6)   
wow thanks for all the replies. I was only on Anti-biotics while i was in the hospital. The doctor yesterday recomended for me to take tylenol. But darn. a broken a femur and shattered knee hurts when your recovering. its going to be hard not to take them.

Also, waht about alcohol. Does anyone here drink, a lot, a little, doesn't matter just wondering. I smoke occationally, infact i have a pack of cigs that have been collecting dust, just to give an idea of how much occationally with me is. I also have a bar in my place, but I responsibly drink maybe 1 or 2 times a month since the accident. i will definitly read up on the Probiotics.

On a good note, and I hope I don't jinx it, its now 3:11 pm and I only have gone to the bathroom once this morning. Although it was apparent that it was a flare, still i think going once so far today isn't bad.....

Blue220
Regular Member


Date Joined May 2008
Total Posts : 191
   Posted 7/10/2009 1:17 PM (GMT -6)   
I go for a Bloody Mary every Wednesday. (I know, reallllly strange!) I share it though, so I only have half, if that. I drink more than that probably once every 3 or 4 months. It's different for everyone..

I had to celebrate my 21st birthday with half a drink because I was so sick at the time. Whenever I'm not having any symptoms, or they're tolerable, I can have a few and be just fine.
22 years old

Diagnosed with moderate/severe UC June 2007, I've had it since December 2006.

Taking Lialda 3x a day<---NOT ANYMORE. I got pancreatitis from them. I stopped taking Lialda 8-19-08. Ugh!! All I take now is just my 3 Entocort in the morning, and 1 iron pill in the afternoon.

NOW back on Lialda as of 8-30-08, not the cause of pancreatitis. Going in for an endoscopic ultrasound on 9-19-08 to check things out. Still on Entocort and iron. Yay...

Haven't been on here in a while (finally graduated college). Update as of 5/26/09 - Now taking Imuran 100mg/day. Taking Caltrate, Iron, and B12. I still take one Lialda a day.. Don't know why.. Something is giving me horrible headaches. =[ At least I'm off the Entocort.


Serenity Now
Veteran Member


Date Joined Jan 2009
Total Posts : 2105
   Posted 7/10/2009 1:20 PM (GMT -6)   
Hi Nick. about the alcohol, for me it affects my colon quite drastically. If I keep it light and infrequent, I'm usually okay. Everyone seems to have a different reaction, so you should just keep a close eye on your body's reaction when you consume different types and amounts of alcohol to see how it impacts you.
ack, 42, Vancouver BC
 
DX: UC (Pancolitis) as of Jan2009.  Symptoms first began June 2008.
Current Meds: Ferrous Sulfate, plus various supplements
Previous Meds: Jan-Mar 2009: Asacol 800 mg (1 pill x 4 daily), stopped Mar14/09. 


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 7/10/2009 1:44 PM (GMT -6)   
Wow, Nick, I'm not surprised you're flaring since you experienced several things that can contribute to flares: increased stress from you physical injuries and job loss, NSAIDs (Ibuprofen and Aleve) and probably lots of antibiotics (orthopedists love IV antibiotics.)

You didn't say whether or not you were still on the Asacol when this started, but I hope you were. A chronic disease, unfortunately, requires chronic medication to keep it under control.

Rectal medications can be a huge help in controlling a flare. I know the idea is gross, but it's a really good way to get medication right to the affected area, and because there's less systemic absorption, you're less likely to have unpleasant side effects. And once you get used to them, it isn't such a big deal.

Prednisone is properly used short-term to control a flare if other oral and rectal meds don't.

NSAIDs are not recommended for those of us with UC because they can cause bleeding. Given that fact, some of us can tolerate them and others can't. Try using Acetaminophen for pain and fever relief.

Sorry your UC has reared its ugly head, and I hope you're soon feeling better.
Judy
 
Ulcerative colitis forum co-moderator
 
Moderate to severe left-sided UC diagnosed 2001.
Flared for 5 years, finally in remission with Remicade since March 2006.
Avascular necrosis in both shoulders is my "forever" gift from steroids.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. 
"My life is an ongoing medical adventure"
 


Nick9011
Regular Member


Date Joined Jul 2009
Total Posts : 27
   Posted 7/10/2009 2:36 PM (GMT -6)   
yeah your right, they really do love IV antiboitics. I was on morphine as well as vicodin, muscle relaxers, and percocet. Im just glad that Im off of all the pills. And yeah i am still on asacol, tehy gave it to me while i was in the hosiptal, but i dunno how good it was doing since they were giving it to me will a crap load of other pills, i appreciate the feedback.

Nick9011
Regular Member


Date Joined Jul 2009
Total Posts : 27
   Posted 7/10/2009 7:47 PM (GMT -6)   
it is now 9:43, just got done watching Bruno in the movies with the wife, which I will probably get my ass kicked tonight, i forgot to mention her in the paragraphs above. Even before we were married she was an amazing support system that i owe a lot to. Also when I was in the hospital due to the accident on my motorcycle. now that I think of it, darn!!! we've been through a lot.

anyway getting back on subject. its now 9:43pm. and today i had only 2 bowl movements!!!! Both of them, yes apparent that there was blood, but only two!!!! I think thats pretty good what do you guys think?

Nick9011
Regular Member


Date Joined Jul 2009
Total Posts : 27
   Posted 7/10/2009 7:48 PM (GMT -6)   
now its time to relax on the couch with her haha... until tomorrow....g'nite!!!
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