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Regular Member

Date Joined Jul 2009
Total Posts : 130
   Posted 7/11/2009 6:33 PM (GMT -6)   
Good evening,
I am new to this site, and so glad i found it!  I am a 29-year old female, diagnosed with moderate left-sided UC in 1998, just before my freshman year of college.  At the time of diagnosis, I was prescribed Rowasa enemas and Asacol, and things cleared up pretty well.  During a subsequent colonoscopy, I was rediagnosed with "indeterminate Colitis" becuase the colitis was spotty (which i understand is actually a symptom of Crohn's disease).
Anyway...there's a little history.  At this point, I am having what i consider to be a pretty major flare-up for me.  I haven't started with major diarhea or anything, but I am definitely bleeding and the last time i went to the bathroom today, there was enough blood that I think I'm going to have to call my doc. 
So i haven't taken any meds for years, but I'm currently taking what is left of my supply of Asacol (which is probably expired and will only last a few days if i take it 3 times daily), and I'll contact the doc on Monday.  In this situation, I'm thinking about just trying to tie it into a "preventative" colonoscopy, since I'll have to do it soon anyway (i think), but what is the recommendation for how often to get a colonoscopy?  Is is supposed to be every 5 years?  I've been diagnosed now for 11 years. Or, does the bloody stool itself merit a colonocopy?  I know this is goofy, but i would do just about ANYTHING to avoid the flexible sigmoidoscopy that they do in the office.  I would rmuch ather be drugged and have the full-blown colonoscopy done.

Regular Member

Date Joined Jul 2009
Total Posts : 118
   Posted 7/11/2009 6:44 PM (GMT -6)   
My GI says since I have UC I need a colonoscopy every 3 years. I always have one done in the same day surgery center' ...... a full blown colonoscopy. Sometimes when you start bleeding they want to do a look n see but it depends on your GI.

Post Edited (psychocolon) : 7/11/2009 6:47:11 PM (GMT-6)

Regular Member

Date Joined Jun 2007
Total Posts : 364
   Posted 7/11/2009 7:16 PM (GMT -6)   
I recently read that colonoscopies should be performed biennial starting at 8 years since disease diagnosis, followed by a switch to yearly schedule at 15 years, and then a semiannual schedule at 30 years. This was for pan-colitis. Article said left sided only and proctitis possible less often. Cancer risk highest for people dx before age 15. I hate his part as both my kids were quite a bit younger when dx and I believe even younger when symptoms first occured.

I hope you are able to get this flare under control quickly.

Welcome to HW.

Mom of Son 17 UC dx 07/02, Prednisone 20mg, Lailda 2 am & 2 pm, Azasan 100mg, Cortafoam (when flaring), folic acid, L. Reuteri, Culturelle, Zyrtec, Iron, Vit/Min

Daughter 10 UC dx 08/07 Prednisone 10mg am, Colazal 750mg x 4, 6MP 25mg, Iron, Vit/Min., Culturelle

Veteran Member

Date Joined Mar 2008
Total Posts : 678
   Posted 7/11/2009 7:35 PM (GMT -6)   
My GI said colonoscopy every 2 years. When was the last one you had? If it wasn't too long ago they might just do blood work and check your inflammation level.

Did you have a bad experience with the flex sig? I'm supposed to have one soon! Yikes!
32 yr old female
Mild Pancolitis
UC since 2000 - in remission for most of those 8 years med free.
Cannot tolerate mesalamine. Currently take probiotics and fish oil. Trying Applied Kinesiology & supplements.

Regular Member

Date Joined Jul 2009
Total Posts : 130
   Posted 7/11/2009 7:51 PM (GMT -6)   
UH-oh, sorry if i scared you!  I just remember it being really crampy b/c they fill the colon up with air to get a view.  Doctors will call it uncomfortable.  I was not a fan.  :-)
Based on the responses, it sounds like i could be overdue for a colonoscopy anyway, so I'll just give my doctor a call on monday and see when/if they can fit me in. 

Regular Member

Date Joined Dec 2008
Total Posts : 224
   Posted 7/12/2009 4:28 AM (GMT -6)   
The schedule for colonoscopies vary (as indicated by the responses thus far). My doctor wants me in every year (I'll only agree to every other year).

With respect to the flex sig, it is possible to be sedated for that as well. You should check to see if that would be an option for you if the discomfort is a concern.
Diagnosed with UC in 1990.
Current Meds: Sulfasalizine (2 g) (1 g) (500mg), Rowasa (now and then), Folic Acid (1 mg)
Supplements: fish oil, flax oil, glucosamine, CoQ10, fiber, aloe vera juice, probiotics.
Other: Raw Milk for breakfast. Currently exploring a raw milk fast one day/week.

Regular Member

Date Joined Nov 2008
Total Posts : 360
   Posted 7/12/2009 4:55 AM (GMT -6)   
It is my experience that they fill you with air in a regular colonoscopy... so either way you are going to be gassy. Just had my third colonoscopy since January this year.... basically you are on the toilet before and after the procedure... go to the library and check out some good books!
Presently on: 600 mg. Remicade every 4 weeks
                   Venofer infusion every 4 weeks
                   B12 every 4 weeks              
                   15 mg. Methotrexate/injection weekly
                   12 Asacol daily
                   10 mg. Celexa daily
                   Zofran as needed

Forum Moderator

Date Joined Dec 2008
Total Posts : 15924
   Posted 7/12/2009 5:53 AM (GMT -6)   
I had a colonoscopy a few months ago and my doctor said I should go back in a year. I did have a precancerous polyp that was removed during a sigmoidoscopy in 2007, maybe that's why she wants me to have them more often.
Diagnosed with mild proctitis in March 2007: Treated with Canasa (as needed)
December 08: Began treating with Asacol 400mg (9/day) + Canasa 2x/day - Anemic
May 09: Off Canasa, taking Asacol (9/day)
Back on Canasa every other night + Asacol (9/day) + Probiotics + Iron
Reducing to 6 Asacol/day + Canasa + Probiotics + Iron - So far so good!!! -SPOKE TOO SOON! Back to 9/day...

Regular Member

Date Joined Jul 2009
Total Posts : 130
   Posted 7/12/2009 6:05 AM (GMT -6)   
Nor_TX said...
It is my experience that they fill you with air in a regular colonoscopy... so either way you are going to be gassy. Just had my third colonoscopy since January this year.... basically you are on the toilet before and after the procedure... go to the library and check out some good books!

This is true...however it wasn't the gasiness afterwards that was uncomfortable, it was during the actual procedure.  last time I had a colonoscopy I remember getting the IV, getting very spacy, then nothing til they moved me to the recovery room. 
Good to know about possibly being sedated for the flexible, though...I am a huge wimp, so i might just ask for that!  :) 

Veteran Member

Date Joined Aug 2008
Total Posts : 903
   Posted 7/12/2009 9:47 AM (GMT -6)   
When I met with my GI last, he said that I'm not due for another colonoscopy for 7 more years. My last colonoscopy was July of 2007. So, I'm thinking every 10 years.
27 year old, Married, Female.
Diagnosed with UC since March 2007

Taking Humira since of May 2007 (Currently in remission since May 2007)
Put on Imuran from May 2007 to Jan, 15 2009
Put on Canasa June 25, 2009, off Canasa on June 30th 2009.
*Can't take Asacol, Allergic to Remicade, odd reactions to Canasa went backwards a bit.
*Started minor flare in mid June 2009 but VERY minor. :(

Forum Moderator

Date Joined Mar 2003
Total Posts : 10407
   Posted 7/12/2009 2:21 PM (GMT -6)   
I've been to three different GI's, and all of them scope every two years. Even though my last scope showed no signs of UC, I will be having another in August. They're a pain in the butt (hah!), but if does make me feel safer to be checked frequently.
Ulcerative colitis forum co-moderator
Moderate to severe left-sided UC diagnosed 2001.
Flared for 5 years, finally in remission with Remicade since March 2006.
Avascular necrosis in both shoulders is my "forever" gift from steroids.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. 
"My life is an ongoing medical adventure"

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