After two years of UC - history, and advice to others

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BenY
Regular Member


Date Joined Aug 2007
Total Posts : 60
   Posted 7/11/2009 9:22 PM (GMT -6)   
I was diagnosed 2 1/4 years ago so I have some perspective on UC treatments now I'd like to share. I'm also looking forward to hanging around the list more to get some new ideas!

First tip - move as fast as possible through the medicines. Doctors like to start light and gradually work their way up, so it can take a while. With me, all the 5-ASA drugs (Mesalazine, Colazal, etc) caused bad reactions. I was then afraid to take 6-MP because of the possible bone marrow issues, etc. With 6-MP you first have to take the blood test to be sure its okay to take, and then it take 3-4 months to kick in! So even though I was diagnosed in April of 2007, I did not get the benefits of 6-MP until March of 2008 due to stalling. Which resulted in too much time of unnecessarily high doses of prednisone.

I felt nauseous from 6-MP at first. The key is - take it at night, and then work through it because this feeling will completely go away. The medicine has lowered my while blood cell count significantly - from 8 to 2.5. Since the blood tests say that 4 is low-normal, I was pretty concerned about this, but (so far) I have not even gotten sick more often! Doctor doesn't seem worried either. And there are zero other side effects from the medicine. It has helped me lower my prednisone level from 15 to 7.5. Not a huge difference, you might think, but it does matter long term.

I can't seem to get off prednisone, so I am hoping that I can stay on it indefinitely (or until a better drug comes along) as long as I take all the bmedicines below in my sig to protect my stomach, skin, and bones! I just had an eye exam - no negatives effects such as cataracts.

Second tip - don't try to solve UC with only diet. I was fanatically into this idea at first, researched the best possible foods for UC, and kept to a perfectly healthy and mild diet for four months. No go. A year later I tried the Specific Carbohydrate diet - okay, so I was only on that one for two weeks. Absolute torture. I wasn't sure at the end if I wanted it to work on not. It almost ruined some foods for me that I used to like. Didn't see any improvement in that two weeks anyway.

I did a Humira research study in the first half of this year. Studies are such a pain - the sig flexes, not being able to change your medicine doses, not even knowing if you are on the medicine or not for the first three months. I was so sure it was going to work, but it didn't! Its positive effect was either slight or none.

My father was diagnosed with microscope colitis early this year and was put in Omnicort (the type of steriod that stays mostly in the gut) which worked for him. It supposed to work down to the upper part of the colon, which is where most of my problems are, so I thought it might work for me. No go. It just ended up upper my systemic steroid use which I could have done a lot cheaper with prednisone.

Third tip - if you are one of those people who has a bad reaction to the 5-ASA drugs, they will probably all cause bad reactions. My reaction was so bad with Lialda that even with 40mg of pred I was in the bathroom 3-4 times per day. I tried Colazol and Sulfasalicine. All three, very bad, characterized by yellow water diarrhea.

That's it! I'll answer any questions or comments people have.

Ben
Ben, 40


Symptoms diagnosed 4/07.

Currently taking daily 7.5mg Prednisone, 100mg 6MP, calcium w/Vit D, 1/2 Prilosec (protects stomach from prednisone), fosamax (trying to build bones back up from prednisone effects), Retin-A (helps with back acne from prednisone use), probiotic (20 billion), multivitamin.


quincy
Elite Member


Date Joined May 2003
Total Posts : 30984
   Posted 7/12/2009 2:40 AM (GMT -6)   
hi Ben...nice to see you again!

How are you doing at this time?

Thanks for the insight...I'm sure it'll be very helpful for those who have been going up the list of meds.

quincy
*Heather* Status: maintenance Asacol 6 daily + Salofalk enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16719
   Posted 7/12/2009 6:58 AM (GMT -6)   
thanks for sharing your story and advice. I have been tolerating 5asas very well but I am scared for the day my Colitis gets too aggressive for 5ASAs. It's good to hear you're doing well.
Diagnosed with mild proctitis in March 2007: Treated with Canasa (as needed)
December 08: Began treating with Asacol 400mg (9/day) + Canasa 2x/day - Anemic
May 09: Off Canasa, taking Asacol (9/day)
Back on Canasa every other night + Asacol (9/day) + Probiotics + Iron
Reducing to 6 Asacol/day + Canasa + Probiotics + Iron - So far so good!!! -SPOKE TOO SOON! Back to 9/day...


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 7/12/2009 8:44 AM (GMT -6)   

Thanks!  As for continuing on prednisone I feel that same way.  However, I am tapering and getting off as my doctor says I should.  I am only on rectal meds due to intolerance to everything including 6 MP.  If I should really flare in the future I would ask to be put back on prednisone and do as you - protect my body as best I can.  I have no problems from it YET!  Been on prednisone since February.

ElaineNY


 
Senior - New diagnosed with proctosigmoiditis - 6/2008   
Cannot tolerate mesalamines.  New specialist (June) - Cortifoam and Anusol three times a day for now.  Hope it works!
 
Probiotic Align, Prilosec for GERD, Gas-X, vitamins, Calcium/D
Tylenol for knees and arthritis.
 
 
 


kim123
Veteran Member


Date Joined Jul 2006
Total Posts : 1201
   Posted 7/12/2009 12:57 PM (GMT -6)   
BenY said...

Second tip - don't try to solve UC with only diet. I was fanatically into this idea at first, researched the best possible foods for UC, and kept to a perfectly healthy and mild diet for four months. No go. A year later I tried the Specific Carbohydrate diet - okay, so I was only on that one for two weeks. Absolute torture. I wasn't sure at the end if I wanted it to work on not. It almost ruined some foods for me that I used to like. Didn't see any improvement in that two weeks anyway.

Ben


While I agree that one should not try to solve UC with only diet, in my experience it was only by changing my diet for a period of time, along with taking natural antifungal supplements, that helped me get well again. Sorry it didn't work for you. I'm interested to know what your healthy and mild diet entailed.

If science-based diet change (like the SCD) could help someone with UC or CD, then 2 weeks is not enough time to decide it doesn't work. As well, one will often feel worse when starting this diet, as I did when I started my antifungal diet. It is the body's reaction to the massive killing of microorganisms (yeast/fungi) and the resulting sudden load of toxins released into the blood stream.

Many of the drugs either did not work for me either, or stopped working after a period of time. My doctor(s) only ever kept insisting on trying the next 'new' drug, never suggesting that what I was eating (or should be eliminating) could be a factor in my symptoms. Actually, any time I brought it up, I was quickly chided for making such a remark. After deciding on my own to experiment with it anyway, I knew I would never go back to my GI again when he told me my getting well was only a coincidence... had nothing to do with changing my diet, and when he tore off yet another prescription from his pad as I headed out the door, saying I would probably have to be taking drugs for the rest of my life.

I don't know that SCD or other similar antifungal diets could help everyone with UC or CD symptoms, but for me, I decided that I needed to take my health into my own hands, and at least experiment with it. While doctors are necessary, they don't provide you with an exit strategy. They only continue to pass out prescriptions.

subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 7/12/2009 5:27 PM (GMT -6)   
BenY said...

Second tip - don't try to solve UC with only diet. I was fanatically into this idea at first, researched the best possible foods for UC, and kept to a perfectly healthy and mild diet for four months. No go. A year later I tried the Specific Carbohydrate diet - okay, so I was only on that one for two weeks. Absolute torture. I wasn't sure at the end if I wanted it to work on not. It almost ruined some foods for me that I used to like. Didn't see any improvement in that two weeks anyway.


Hi Ben,

I'm in remission due to probiotics and diet. How you tried just eating/drinking foods/beverages that are anti-inflammatory and avoiding anything pro-inflammatory? Some natural ingredients, especially turmeric, are good at reducing inflammation while others are pro-inflammatory even for those who have found they have no food intolerances.

Anti-inflammatory (Eat more of):
Turmeric
Omega-3
Salmon
Soybeans, tofu, and soy milk
Whole grain products (if not wheat intolerant)
Oatmeal
Seeds and nuts (if they don't irritate your colon)
Green leafy vegetables (e.g. spinach)
Berries
Garlic
Chamomile
Cinnamon
Ginger
Lemongrass
Licorice
Catnip
Tilia

Pro-inflammatory foods (Avoid):

junk foods
fried foods
spicy foods
high-fat meats
processed meats
sugars
dairy
eggs
Nightshades (tomatoes, white potatoes, bell peppers, chili, paprika, eggplant)
Joy - 47 yrs and counting; Dx Colitis Dec 06 (also had IBS); Currently in remission

Figuring out how to reduce a flare or get into remission is a trial and error experience. Don't expect your GI to have all the answers. He was trained in making diagnoses, prescribing medications, and surgically removing the colon. He was not trained in alternative treatments. That's why they are called alternative treatments.

What works for me: Fecal transplantation, Probiotics, Anti-inflammatory foods, No HFCS, No foods high in fructose, No artificial sweeteners, No pro-inflammatory foods when flaring, Vitamins, Lexapro (for stress).


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 7/12/2009 6:00 PM (GMT -6)   
BenY said...
I felt nauseous from 6-MP at first. The key is - take it at night, and then work through it because this feeling will completely go away. The medicine has lowered my while blood cell count significantly - from 8 to 2.5. Since the blood tests say that 4 is low-normal, I was pretty concerned about this, but (so far) I have not even gotten sick more often! Doctor doesn't seem worried either. And there are zero other side effects from the medicine. It has helped me lower my prednisone level from 15 to 7.5. Not a huge difference, you might think, but it does matter long term.


I've never taken 6-MP; so I don't know what's normal when it comes to this drug. However, a drop in white blood cell count from 8 to 2.5 sounds a bit scary to me. Plus you have only been able to decrease your prednisone dosage from 15 to 7.5 mgs. That's not much. Perhaps others on this forum can provide some advise on whether or not you need to be concerned about such a drop in white blood cell count.
Joy - 47 yrs and counting; Dx Colitis Dec 06 (also had IBS); Currently in remission

Figuring out how to reduce a flare or get into remission is a trial and error experience. Don't expect your GI to have all the answers. He was trained in making diagnoses, prescribing medications, and surgically removing the colon. He was not trained in alternative treatments. That's why they are called alternative treatments.

What works for me: Fecal transplantation, Probiotics, Anti-inflammatory foods, No HFCS, No foods high in fructose, No artificial sweeteners, No pro-inflammatory foods when flaring, Vitamins, Lexapro (for stress).


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 7/12/2009 6:11 PM (GMT -6)   
I'm glad you're feeling better, hope you don't get any of the nastier side effects from Pred.
Judy
 
Ulcerative colitis forum co-moderator
 
Moderate to severe left-sided UC diagnosed 2001.
Flared for 5 years, finally in remission with Remicade since March 2006.
Avascular necrosis in both shoulders is my "forever" gift from steroids.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. 
"My life is an ongoing medical adventure"
 


BenY
Regular Member


Date Joined Aug 2007
Total Posts : 60
   Posted 7/12/2009 8:42 PM (GMT -6)   
Subdued - for long term use, moving from 15mg of pred to 7.5 is a big difference. I was very concerned about being on Humira, 6MP, and pred all at the same time (that's a lot of immune-suppressing!) but I did not get sick, at least during those few months.

There is a trade-off with prednisone use that I would imagine a lot of us face. If I did not take it, my life would be hell. I am instead choosing to take it with its risks to then leave basically a normal life (1-2 bowel movements per day, though not much form and blood sometimes). Of course I would certainly like to *get off it*, but not at the current "cost" to my quality of life. I'd be *real* concerned if I was stuck at 40mg, but 7.5mg a low dose.

My diet was basically what you said, subdued. I scoured the web for the best foods to eat for colitis and then stuck with it religiously. On business luncheons I would sometimes being a cooler of pre-packed food into the restaurant with me! I'm not saying that some diet out there might not do the trick, but I gave it my best shot at the time and it didn't work. I even wondered whether a super-healthy diet was counter-productive - maybe it was just pumping up my immune system when it was in fact already overactive!

kim123 - I know what you mean about GIs. They just move up their list of drugs. However, I have become more convinced about the usefulness of drugs over time.

Ben
Ben, 40


Symptoms diagnosed 4/07.

Currently taking daily 7.5mg Prednisone, 100mg 6MP, calcium w/Vit D, 1/2 Prilosec (protects stomach from prednisone), fosamax (trying to build bones back up from prednisone effects), Retin-A (helps with back acne from prednisone use), probiotic (20 billion), multivitamin.


suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 7/12/2009 9:33 PM (GMT -6)   
Don't be fooled by long term steroid use (considered 4+months) even at low doses.  Prednisone is not a safe nor approved maintenance drug for UC and comes with very real and irreversible damage. 
 
Sue 
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


blueclassring
Regular Member


Date Joined Feb 2007
Total Posts : 385
   Posted 7/12/2009 10:08 PM (GMT -6)   
My advice to others would be to go what works for you.  Medications just did not cut it for me, and the "big guns" were supposed to do the trick.  I opted to use diet to change my life and get me into remission.
 
The SCD is very difficult to adhere to, and I know that from personal experience.  Restaurants and grocery stores often don't cater to our population, hence they are many land mines to navigate around.  After being on a cruise ship for the past week, I avoided all the no-no foods and still ended up with diarrhea and bleeding like I always remembered.  Plus it was torture to watch people around me eating everything I used to eat.  Anyways, back to the diet at 100%.  Gotta get into remission before I start working!
 
 
Pharmacist as of 6/12/2009.
Diagnosed 8/99. Suffered for almost 10 years. I am currently on the Specific Carbohydrate Diet and am nearing remission. I feel fantastic! I have lossed so many years to this disease.

MED-FREE!!!

Doc wanted to put me on 6-mp or Remicade, but I refused to take the medications! Currently on the Specific Carbohydrate Diet.  I'm in remission and life is like it always should have been.


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 7/12/2009 11:28 PM (GMT -6)   
BenY said...

First tip - move as fast as possible through the medicines. Doctors like to start light and gradually work their way up.


With the end result being surgery. Why take medicines that can cause serious damage to the body? If you know that alternative treatments aren't going to work for you, then why not just opt for surgery to begin with?
Joy - 47 yrs and counting; Dx Colitis Dec 06 (also had IBS); Currently in remission

Figuring out how to reduce a flare or get into remission is a trial and error experience. Don't expect your GI to have all the answers. He was trained in making diagnoses, prescribing medications, and surgically removing the colon. He was not trained in alternative treatments. That's why they are called alternative treatments.

What works for me: Fecal transplantation, Probiotics, Anti-inflammatory foods, No HFCS, No foods high in fructose, No artificial sweeteners, No pro-inflammatory foods when flaring, Vitamins, Lexapro (for stress).


BenY
Regular Member


Date Joined Aug 2007
Total Posts : 60
   Posted 7/13/2009 5:10 AM (GMT -6)   
It's an idea - surgery, and get off all these medicines. However, choosing to having to start going the in the bathroom 10X per day is a tough one even though it might prolong my life. I actually may need surgery in 10 years anyway if any sign of colon cancer comes up.

I guess my current plan is to "tread water" under a new medicine comes out that works for me, or until I find some other solution (perhaps from this list!) that works.
Ben, 40


Symptoms diagnosed 4/07.

Currently taking daily 7.5mg Prednisone, 100mg 6MP, calcium w/Vit D, 1/2 Prilosec (protects stomach from prednisone), fosamax (trying to build bones back up from prednisone effects), Retin-A (helps with back acne from prednisone use), probiotic (20 billion), multivitamin.


quincy
Elite Member


Date Joined May 2003
Total Posts : 30984
   Posted 7/13/2009 11:26 AM (GMT -6)   
ben...regarding tapering the pred...you can do alternating dosages.
eg...7.5, 7.5, 7.5...5, 7.5, 5, 7.5, 5.......5, 5, 5,.....5, 2.5, 5, 2.5, 5, 2.5......2.5.....etc.

You should also be on some rectal meds....

quincy
*Heather* Status: maintenance Asacol 6 daily + Salofalk enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


LuckyLindy
Regular Member


Date Joined Feb 2009
Total Posts : 226
   Posted 7/13/2009 4:08 PM (GMT -6)   
Strange, for me the only thing that works is diet modification. SCD didn't do much for me until I eliminated the fruits and other carb sources (basically going on the induction phase of Atkins). Since then I've been mostly symptom free for months. If I cheat and have a little fruit I'm in the bathroom with blood within 12 hours, but I get back to normal within 2 days of my normal very-low-carb diet. 5+ years ago I was on 60mg of prednisone and other drugs with no impact, which is when I first found the diet link.

I still think I must have something other than UC since it is so diet dependent, but all the G.I. docs ignore me when I make this suggestion.

kim123
Veteran Member


Date Joined Jul 2006
Total Posts : 1201
   Posted 7/13/2009 7:16 PM (GMT -6)   
Candida delays healing of UC, and antifungal therapy and probiotic treatment during candida infection could be beneficial in the restoration and healing of colonic damage in UC. As well, a low carb diet is paramount to getting rid of fungus/yeast. So, that may be why some, like LuckyLindy and myself, got well after following a low carb diet. I also used natural antifungals and probiotics along with the diet. 2 articles are below:

http://www.ncbi.nlm.nih.gov/pubmed/19439813?ordinalpos=1&itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_DiscoveryPanel.Pubmed_Discovery_RA&linkpos=2&log$=relatedarticles&logdbfrom=pubmed

http://www.ncbi.nlm.nih.gov/pubmed/17203803

Basilpuppy
Regular Member


Date Joined Jul 2009
Total Posts : 28
   Posted 7/13/2009 11:18 PM (GMT -6)   
No surgary, no drugs, no doctors. I had colitis for 20 years and have been free for 1 1/2 years - not a remission, but I am confident a cure.

Eat only real food - it does not matter if it is spricy or fatty or acidic, etc. Just be sure that it is whole and real. No processed foods or chemical foods. Eat produce, dairy, meat, and whole grains. Take high-quality supplements. Stay away from doctors and drugs - they does more harm than good.

Get some good quality probiotics. Throw water, a pear, and an apples, with the peels, in the blender every morning.

Good luck.

Basilpuppy
Regular Member


Date Joined Jul 2009
Total Posts : 28
   Posted 7/13/2009 11:18 PM (GMT -6)   
Sorry - too many typos! Time for bed, no doubt.

kim123
Veteran Member


Date Joined Jul 2006
Total Posts : 1201
   Posted 7/14/2009 8:01 AM (GMT -6)   
Basilpuppy- Do you eat bread? I agree that eating whole, natural foods is a good idea. Generally, I always feel so much better when I veer away from any processed, packaged foods, especially bread. Not easy to do, however, as those foods are so much easier and convenient to have around. Unfortunately, not everyone can stop the drugs and doctor visits. I hope you have continued good health.

Basilpuppy
Regular Member


Date Joined Jul 2009
Total Posts : 28
   Posted 7/14/2009 9:56 PM (GMT -6)   
I do eat bread, but only bread made with real food. Most restaurant and grocery store bread has chemicals in it. Also, I make most of our bread with part whole grain.

Once your colon is in chemical balance, you really don't crave bread. I think that carb cravings are an indication of being off balance chemically. I have noticed that people who take a lot of prescription drugs usually LOVE bread.

Thank you. I really don't think that I will ever see colitis again, and I really wish my results upon everyone here as well.

One more note on the real food - you can gradually commit to this, and after you've gotten all the way there, you'll find that you really don't like the chemical food anymore. My family isn't tempted at all anymore, even my twenty-year-old son. He has worked with the dining service on his campus to stop serving processed food.

subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 7/15/2009 12:15 AM (GMT -6)   
I also have been trying to eat as natural as possible. And I often pick organic food over non-organic, especially when it comes to meat. I try to eat only meat that does not contain antibiotics. I rarely eat out anymore, and when I do, I definitely stay away fast food, which almost always contains HFCS. My boyfriend loves making bread. I usually eat that or freshly made bread at Whole Foods.

Anyway, I've found that diet has been a big help in getting me into remission. I got my first flare after being a chocoholic. I was eating only chocolate and drinking beverages containing HFCS. I used to love those commercials that said chocolate was good for the health. However, seeing blood was so scary that I stopped eating chocolate and drinking those beverages and started eating fiber, which I hadn't been eating in years. My colon gradually got stronger, and I stopped bleeding. However, I still didn't know that I was fructose intolerant or about anti-inflammatory and pro-inflammatory foods. And I started drinking a lot of juice instead of the HFCS beverages. It wasn't until my third flare that I found out that I can't drink juice.
Joy - 47 yrs and counting; Dx Colitis Dec 06 (also had IBS); Currently in remission

Figuring out how to reduce a flare or get into remission is a trial and error experience. Don't expect your GI to have all the answers. He was trained in making diagnoses, prescribing medications, and surgically removing the colon. He was not trained in alternative treatments. That's why they are called alternative treatments.

What works for me: Fecal transplantation, Probiotics, Anti-inflammatory foods, No HFCS, No foods high in fructose, No artificial sweeteners, No pro-inflammatory foods when flaring, Vitamins, Lexapro (for stress).


seconder
Veteran Member


Date Joined Jun 2008
Total Posts : 610
   Posted 7/15/2009 6:26 AM (GMT -6)   
I'm all for eating well, but I'm not sure what "chemical imbalances" have to do with carb cravings. Craving carbs is generally a sign that your body is looking for more energy. Try adding a half cup or cup of rice (preferably brown rice) to a meal and see if that doesn't kill the carb cravings.

kim123
Veteran Member


Date Joined Jul 2006
Total Posts : 1201
   Posted 7/15/2009 9:10 AM (GMT -6)   
Actually, having cravings of breads, pasta, sweets, potatoes, etc. can be an indicator of an internal fungus or yeast condition. Fungus is a parasite that thrives on high carb foods.

seconder
Veteran Member


Date Joined Jun 2008
Total Posts : 610
   Posted 7/15/2009 9:35 AM (GMT -6)   
Absent recent antibiotic use, I don't buy the various fungal overgrowth theories, but I did write "generally" so your own mileage may vary.  If never eating carbs curbs your carb cravings, more power to you.

kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 7/15/2009 9:41 AM (GMT -6)   
I like "treading water" as Ben does. I hope the doctor will approve of me staying on small doses of prednisone if I don't get rid of the bleeding soon. How long after stopping prednisone should I be feeling more normal? Anyone know? I am waking up again with sweating, nausea, headache, etc. Left-sided colon tender but no pain. Stools about normal except for little blood. Rectal meds are working I am sure but not very fast. Glad I am off 6 MP however!
ElaineNY
 
Senior - diagnosed with proctosigmoiditis - 6/2008   
Cannot tolerate mesalamines.  New specialist (June) - Cortifoam and Anusol three times a day for now.  Hope it works! (finding it impossible to do three times a day however)
 
Probiotic Align, Prilosec for GERD, Gas-X, vitamins, Calcium/D
Tylenol for knees and arthritis.
 
 
 

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