How to taper off Entocort?

How do I safely taper off entocort?
Ulcerative colllitis - 100.0%
entocort - 0.0%
IBS - 0.0%

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New Member

Date Joined Jul 2009
Total Posts : 1
   Posted 7/11/2009 10:16 PM (GMT -6)   
I went to the drugstore (Wallmart) to refill my RX for entocort. They handed me my 30 day supply and said that will be $979.00!!!!!!!!!!!!!!!! YES I SAID $979. I said noway there has to be a mistake, they checked and told me I had reached a donut hole in my insurance coverage. I have never heard of the donut hole before. Anyways I cannot aford $979 a month much less $979 for this month's medication. I told them to give me a 5 day supply to get me to the day I could call my doctor. (that cost me $137). My doctor is travelling now his assistant called me but could not give me the tapering schedule. I have been trying to find the correct method to get off this drug safely for me and those around me. But all info I have found so far on the web is vague. I need to know exactly how to taper and figure out how much it will cost me because I do not have funds available for $1000 p/m of this med plus the other meds I need to be taking. Can some PLEASE help me?

Regular Member

Date Joined Dec 2008
Total Posts : 224
   Posted 7/12/2009 3:15 PM (GMT -6)   
I don't know the answer to your question. All I know is that I had a bad reaction to entocort and stopped cold turkey. This was after maybe two weeks of use. My GI didn't mention that tapering would be necessary.
Diagnosed with UC in 1990.
Current Meds: Sulfasalizine (2 g) (1 g) (500mg), Rowasa (now and then), Folic Acid (1 mg)
Supplements: fish oil, flax oil, glucosamine, CoQ10, fiber, aloe vera juice, probiotics.
Other: Raw Milk for breakfast. Currently exploring a raw milk fast one day/week.

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