Fell off the wagon

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UniG
Regular Member


Date Joined May 2009
Total Posts : 110
   Posted 7/12/2009 7:17 PM (GMT -6)   
Has anyone else every fallen off the wagon when they're feeling good. I have no one to blame but myself. I'm on an anti-inflam diet and using Salofalk have been in remission almost 2 months.

I went out last night - drank way too much alcohol compared to my usually extremely moderate consumption, or not drinking at all. Once I was into my 5th drink (i'm ashamed!) I ate a plate of hot ( greasy) chicken wings. I didn't use the enema at night either and I'm pretty dependent on those.

I woke up in middle of the night to use the toilet and there was blood - bright red, on the toilet paper.

Today I'm eating super-clean; yogurt twice with probiotics, a little tea, that kind of stuff. I'm drinking my aloe vera juice and of course right on top of my meds.

I guess with being in remission I was feeling so good that I conveniently "forgot" that I had UC.

I'm feeling not too bad this evening and I'm remaining positive that all the naturopathic work I've been doing is going to help me heal faster.

Please don't tell me I deserve what I got -i've done that all day. Just wondering if this has happened to anyone else?

Uni-g
40 yrs.
Diagnosed Jan 2008 ulcerative proctitis 9" of lower colon.
Last sigmoidoscopy Jan 2009, 17" inflammation of lower colon.
Naturals: probiotics, ground flax, salmon oil, Glutagenics, Aloe Vera juice, mega vitamin supplements, Curcumin and a Vegan diet.
Pharma: Salofalk enema and oral
My brother had UC and ended up with an illiostomy after years of struggle.


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16744
   Posted 7/12/2009 7:23 PM (GMT -6)   
Same thing happened to me. Read my post called Stress. I can relate. I hope you are feeling better soon!
Diagnosed with mild proctitis in March 2007: Treated with Canasa (as needed)
December 08: Began treating with Asacol 400mg (9/day) + Canasa 2x/day - Anemic
May 09: Off Canasa, taking Asacol (9/day)
Back on Canasa every other night + Asacol (9/day) + Probiotics + Iron
Reducing to 6 Asacol/day + Canasa + Probiotics + Iron - So far so good!!! -SPOKE TOO SOON! Back to 9/day...


psychocolon
Regular Member


Date Joined Jul 2009
Total Posts : 118
   Posted 7/12/2009 8:28 PM (GMT -6)   
Sorry to hear you are not feeling well. Are you kidding...........No one deserves this. We all want to go back to eating regular when we feel better. My big thing is tons of chocolate and I stay away from it for a while and when I feel better...........bingo, I start up again. This disease steals so much from you. What is the anti inflammatory diet you are on? It is hard to be restricted all your life.

jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 7/12/2009 8:38 PM (GMT -6)   
I think our biggest enemy sometimes is our own denial. None of us wants to "still" have UC, and every once in a while you're bound to "forget" and indulge in something you know bothers you.

Don't beat yourself up about it, just get back on your routine and go on.
Judy
 
Ulcerative colitis forum co-moderator
 
Moderate to severe left-sided UC diagnosed 2001.
Flared for 5 years, finally in remission with Remicade since March 2006.
Avascular necrosis in both shoulders is my "forever" gift from steroids.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. 
"My life is an ongoing medical adventure"
 


UniG
Regular Member


Date Joined May 2009
Total Posts : 110
   Posted 7/12/2009 9:02 PM (GMT -6)   
The generally accepted low-inflammatory diet is high in omega 3/6. in addition to eating fish (salmon) 2-3 times a week.
A low inflammatory diet means excluding WHEAT, DAIRY (yogurt ok), CORN and MEAT as well as SUGARY foods.

I do treat myself with very dark chocolate and I am able to enjoy 4 -6 ounces of wine here and there.

Wheat and sugar feed the bad bacteria that people with UC have in their gut. I take high quality probiotics with my yogurt or cereal, every day.

Thanks for your understanding words - sometimes it's soo hard when you see people indulging in yummy street food like pizza and fries. Greasy food is *really* hard on my gut.

Uni g
40 yrs.
Diagnosed Jan 2008 ulcerative proctitis 9" of lower colon.
Last sigmoidoscopy Jan 2009, 17" inflammation of lower colon.
Naturals: probiotics, ground flax, salmon oil, Glutagenics, Aloe Vera juice, mega vitamin supplements, Curcumin and a Vegan diet.
Pharma: Salofalk enema and oral
My brother had UC and ended up with an illiostomy after years of struggle.


Sweetie31105
Veteran Member


Date Joined Aug 2008
Total Posts : 903
   Posted 7/12/2009 9:12 PM (GMT -6)   
I've over endulged myself. I'm somewhat lactose intolerant, so I observed my abilities with dairy, and recently I've enjoyed chips and dip. Sour cream mixed with dip mix. I over did it with that along with KFC Fried chicken. I LOVE that chicken. This past month I noticed that I over did it with those foods. I was getting diarrhea, and I've started to bleed a bit. So, now I'm staying away from the sour cream and no more fried stuff for a while. :( I also get flares yearly so I guess now is the time, but I'm guessing I should be fine by next month.
27 year old, Married, Female.
Diagnosed with UC since March 2007

Taking Humira since of May 2007 (Currently in remission since May 2007)
Put on Imuran from May 2007 to Jan, 15 2009
Put on Canasa June 25, 2009, off Canasa on June 30th 2009.
*Can't take Asacol, Allergic to Remicade, odd reactions to Canasa went backwards a bit.
*Started minor flare in mid June 2009 but VERY minor. :(


UniG
Regular Member


Date Joined May 2009
Total Posts : 110
   Posted 7/12/2009 9:33 PM (GMT -6)   
I hear ya. I can sneak my "no" foods in here and there but it tends to "prime the pump" for a big indulgence later.
40 yrs.
Diagnosed Jan 2008 ulcerative proctitis 9" of lower colon.
Last sigmoidoscopy Jan 2009, 17" inflammation of lower colon.
Naturals: probiotics, ground flax, salmon oil, Glutagenics, Aloe Vera juice, mega vitamin supplements, Curcumin and a Vegan diet.
Pharma: Salofalk enema and oral
My brother had UC and ended up with an illiostomy after years of struggle.


Twirlygirly
New Member


Date Joined Jul 2009
Total Posts : 5
   Posted 7/13/2009 12:57 AM (GMT -6)   
I've been having a flare up since around September of this year, and I haven't experienced blood until recently. It's just looked like a quarter sized clot. Is that what others are experiencing?

quincy
Elite Member


Date Joined May 2003
Total Posts : 31006
   Posted 7/13/2009 2:22 AM (GMT -6)   
blood on the toilet paper but not in the bowl?

Have you only had one bm?

q
*Heather* Status: maintenance Asacol 6 daily + Salofalk enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 7/13/2009 7:30 AM (GMT -6)   
Yah. I know the feeling. I don't have trouble giving up foods/beverages with HFCS or high in fructose, because I get an immediate reaction from them. But things like chocolate and decaf coffee with cream and sugar are harder to give up entirely. My main issue is that if they didn't bother me the first time, then I'll keep on eating/drinking them until I'm hooked again, which from experience tells me is a big mistake.
Joy - 47 yrs and counting; Dx Colitis Dec 06 (also had IBS); Currently in remission

Figuring out how to reduce a flare or get into remission is a trial and error experience. Don't expect your GI to have all the answers. He was trained in making diagnoses, prescribing medications, and surgically removing the colon. He was not trained in alternative treatments. That's why they are called alternative treatments.

What works for me: Fecal transplantation, Probiotics, Anti-inflammatory foods, No HFCS, No foods high in fructose, No artificial sweeteners, No pro-inflammatory foods when flaring, Vitamins, Lexapro (for stress).


UniG
Regular Member


Date Joined May 2009
Total Posts : 110
   Posted 7/13/2009 9:04 AM (GMT -6)   
Hey quincy -
there was a small amount of blood in the bowl. With medication I can prevent the diarrhea from starting up. My big signal of a flare is constipation/bloating and gas and blood on stool when I do have a bm.

Things have quieted down today. I'm eating super-clean and light. Only had a cup of green tea and fruit this morning and now I'm going to go have some yogurt with the probiotics/ground flax and berries. I'm lucky - I respond to the Salofalk tablets and enemas very well.

I just need to find some moderation in all aspects of my life so that I don't go on a drinking-food binge the moment things calm down after a stressful period. I have a young family and with work and schedules some weeks can be very stressful. A few weeks in a row and I'm looking for an out - like food and drink
40 yrs.
Diagnosed Jan 2008 ulcerative proctitis 9" of lower colon.
Last sigmoidoscopy Jan 2009, 17" inflammation of lower colon.
Naturals: probiotics, ground flax, salmon oil, Glutagenics, Aloe Vera juice, mega vitamin supplements, Curcumin and a Vegan diet.
Pharma: Salofalk enema and oral
My brother had UC and ended up with an illiostomy after years of struggle.


Serenity Now
Veteran Member


Date Joined Jan 2009
Total Posts : 2156
   Posted 7/13/2009 9:52 AM (GMT -6)   
I think it's totally human nature to fall off the wagon once in a while, especially when we have been doing well for a while. It's so easy to let your guard down. That's why although I am in remission I continue to visit this board. It keeps me vigilant (well that's the idea anyway! I still get lax once in a while inspite of everything).
ack, 42, Vancouver BC
 
DX: UC (Pancolitis) as of Jan2009.  Symptoms first began June 2008.
Current Meds: Ferrous Sulfate, plus various supplements
Previous Meds: Jan-Mar 2009: Asacol 800 mg (1 pill x 4 daily), stopped Mar14/09. 


UniG
Regular Member


Date Joined May 2009
Total Posts : 110
   Posted 7/13/2009 9:58 AM (GMT -6)   
Thanks ack, I was doing well and subsequently hadn't visited this board for awhile. It's a great idea to check in when things are going well. IT is the support that can make the difference.

A few years ago I joined Weight Watchers. I'm at a great weight now and I know the weekly check-in meetings had a lot to do with it. Thanks for your reply.
Uni-g
40 yrs.
Diagnosed Jan 2008 ulcerative proctitis 9" of lower colon.
Last sigmoidoscopy Jan 2009, 17" inflammation of lower colon.
Naturals: probiotics, ground flax, salmon oil, Glutagenics, Aloe Vera juice, mega vitamin supplements, Curcumin and a Vegan diet.
Pharma: Salofalk enema and oral
My brother had UC and ended up with an illiostomy after years of struggle.


quincy
Elite Member


Date Joined May 2003
Total Posts : 31006
   Posted 7/13/2009 11:22 AM (GMT -6)   
I would say you're still having inflammation issues anyway.

Were you on the salofalk nightly still dealing with your most recent flare?

I think it's more food related and the fact that alcohol could cause diarrhea, etc for most anyone. The extra movements, etc were part of the problem...but what you ate that night probably wouldn't have been out in the middle of the night anyway.

How many bms did you have during that bout?

What meds are you meaning to handle the diarrhea?


Happy to hear you're feeling better today...moderation is always a good thing..
quincy
*Heather* Status: maintenance Asacol 6 daily + Salofalk enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


AMK77
Veteran Member


Date Joined Mar 2008
Total Posts : 678
   Posted 7/13/2009 11:31 AM (GMT -6)   
I fell off the wagon too this weekend. Sunday morning I had one of the most perfect BM's I've had in a long time. We had a cook out at our house with lots of family over. I ate a ton of junk. After they left I had a pretty bad blow out that reminded me, helloooo you have UC!! I hope things go right back to normal.
32 yr old female
Mild Pancolitis
UC since 2000 - in remission for most of those 8 years med free.
Cannot tolerate mesalamine. Currently take probiotics and fish oil. Trying Applied Kinesiology & supplements.


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 7/13/2009 12:00 PM (GMT -6)   
Who doesn't? I've been "off the wagon" since summer started... I'm not on any specific diet or anything, but I usually eat pretty boring, "safe" foods. But since July 4th, I[ve been drinking tons (for me), eating a lot of candy, lots of cookout food... We had some friends over yesterday & I blew thru a bunch of potato chips, a hot dog, 2 bowls of salad, & a whole bunch of different malt liquor drinks. Whatever! So I had 8 bathroom trips this AM, a little bloody, but I'm fine by now. And back to work, normality, etc. I never alter my diet due to UC- if I want to go out boozing, I do. If I want to eat buffalo wings, I do that too! And pizza! And whatever it may be. I know the consequences. I have blood every day anyway, so.... I don't eat fried food, it just kills me. But actually, I do eat boneless buffalo wings once in awhile, & they're fried. Who wants to live life "on the wagon"? (aside from all the 12 steppers out there, or that type!)

diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade-10mgs/kg- since 4/07
Imuran- 150mgs/day
various probiotics
Fiber supplement
 
 
 


glamourgirl
Regular Member


Date Joined Apr 2008
Total Posts : 460
   Posted 7/13/2009 2:42 PM (GMT -6)   
I'm with Adam and Eva Lou! Who wants to live on the wagon? Obviously you don't want to ignore major symptoms but if you're able to get back to "normal" after some indulging, I say go for it!!
Female, Age 38
Diagnosed w/c.diff 7/02 when pregnant w/1st and only child during 2nd trimester(wasn't on antibiotics)
C.diff flare within weeks of delivering baby 1/03, Diagnosed with UC 2/03
Current Meds:
Lialda, 6MP
Ferrex Forte
Acidophillus, Sacchromyces Boulardii, Oil of Oregano


UniG
Regular Member


Date Joined May 2009
Total Posts : 110
   Posted 7/13/2009 3:52 PM (GMT -6)   
Haha, I know what you mean about living "on" the wagon. I break my "clean eating" once in awhile, with fav foods like cheese filled ravioli and...oh the list is long. It seems that whatever you're willing to put up with you can risk. Sometimes the indulgences don't seem to bother my system. I too don't want to live under the total command of UC. Clearly everyone has to find a level of moderation that works for them.
40 yrs.
Diagnosed Jan 2008 ulcerative proctitis 9" of lower colon.
Last sigmoidoscopy Jan 2009, 17" inflammation of lower colon.
Naturals: probiotics, ground flax, salmon oil, Glutagenics, Aloe Vera juice, mega vitamin supplements, Curcumin and a Vegan diet.
Pharma: Salofalk enema and oral
My brother had UC and ended up with an illiostomy after years of struggle.


UniG
Regular Member


Date Joined May 2009
Total Posts : 110
   Posted 7/13/2009 7:19 PM (GMT -6)   
aw mann, that's rough. I hope it settles down real soon.
40 yrs.
Diagnosed Jan 2008 ulcerative proctitis 9" of lower colon.
Last sigmoidoscopy Jan 2009, 17" inflammation of lower colon.
Naturals: probiotics, ground flax, salmon oil, Glutagenics, Aloe Vera juice, mega vitamin supplements, Curcumin and a Vegan diet.
Pharma: Salofalk enema and oral
My brother had UC and ended up with an illiostomy after years of struggle.


Basilpuppy
Regular Member


Date Joined Jul 2009
Total Posts : 28
   Posted 7/13/2009 9:06 PM (GMT -6)   
Hi-
My colon was always great until I was put into the hospital with preterm labor 21 years ago.  They stuck IVs (with what I later found out was an experimental drug) into me, and my bowels started going bad.
 
I was diagnosed with UC two years later.  At one point, I couldn't leave the house for six months and was in bed for one month; I had only enough strength to try to make it to the bathroom in time.  I went through all the prednisone, asacol, etc., for three years with NO improvement.  I gathered my courage and threw away the drugs, making the correct assumption that doctors had caused my colitis and that doctors were finishing off what was left of my health.  The side effects of the drugs were crippling, and who knows what permanent damage was done by them.
 
Drug-free, I began a learning tour of my health.  We had always eaten pretty well, but we gradually came to eat zero processed food, no chain restaurants, and lots of nutritional supplements.  Life became livable again, but I always had to worry about attacks, and the poopies ruled my life.  I was only occasionally incontenent, but had zero solid bowel movements.
 
In March of 2008, I was watching the BBC show You Are What You Eat and one of Jillian's recipes was to throw one cup of water into the blender with one pear and one apple (skin on!!) every morning.  The third week in March I started doing this and by April 1st my colitis was completely gone.  Eighteen and a half months later, I still have textbook poops.
 
Twenty years of misery, one week of recovery.
 
I still eat only whole, real foods, and hope to be able to afford organics only someday.  My path has been educational and has helped my son to learn about good food and health.  He and my husband do the "funny" smoothie every day, also.  A plus has been that my arthritis pain is almost gone, too.  Now I just have to learn how to live a free life again, realizing that the constraints have been lifted!
 
I don't know if anyone else will benefit from this story, but please realize that your problems may be caused by drugs/doctors, and that "medical" treatment generally only tries to subdue symptoms, not restore health  I believe that drugs actually degrade health.  Most MDs wouldn't know how to promote health if their life depended upon it!
 
Good Luck.

Basilpuppy
Regular Member


Date Joined Jul 2009
Total Posts : 28
   Posted 7/13/2009 9:14 PM (GMT -6)   
I'm not on any wagon except only eat real food - once your tastebuds get used to only real food, you don't want any of the chemical crap.

Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 7/14/2009 8:29 AM (GMT -6)   
I'm not a fan of processed foods either, aside from the candy & potato chips sometime. And those are only so processed, know what I mean? I don't consider things like pizza to be processed. I cook a lot, all homemade- I would never buy one of those "oven-ready" meals & pass it off as dinner! If I'm too lazy to throw something together, we either do leftovers or go out to eat, to a decent place- sushi, good pizza, etc. When I was first diagnosed, I kept a strict food diary, & found that no matter if I ate only yams & avocados, or "normal" food like sandwiches, occasional junky stuff, a beer or 2, the end result was the same re. bathroom trips. Adam, coffee kills me! I have my cup & a half in the AM, & I'm on the toilet anyways during the mornings. But if I have another one in the afternoon, forget it...I'm stuck in the toilet a bunch of times. It could have also been that the latte just kick-started the bm's- they were there all the time, just waiting for an inopportune moment to come out!

diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade-10mgs/kg- since 4/07
Imuran- 150mgs/day
various probiotics
Fiber supplement
 
 
 


1952crp
Regular Member


Date Joined Jul 2009
Total Posts : 21
   Posted 7/14/2009 9:04 AM (GMT -6)   
I'm new to this site, not new to UC. I was diagnosed with left sided UC in 1983. It's been a rollercoaster ride of flares & remissions. The wheels eventually fall off the wagon & you have to fasten them back on. I've tried different diets, some seem to help, some don't. What really gets me is certain sites that give overnite miracles,it doesn't happen overnite.As you can tell, having a flare-up & waiting for answer from md. if I can get a refill or have to get anally abused . This has been an emotionally interesting yr. Usually remission is not a big deal, guess older you get ,the longer it takes. Thank you for having this to let some steam off.

Basilpuppy
Regular Member


Date Joined Jul 2009
Total Posts : 28
   Posted 7/14/2009 8:51 PM (GMT -6)   
"Processed" - It's all in the ingredients. If the pizza has tomatoes, real cheese, yeast, salt, oregano, olive oil, whole wheat or unbleached flour (NO pepperoni!), then it's OK. If it's full of colors, preservatives, nitrites, artificial flavors, dough conditioners, HFCS, mono- and diglycerides, etc., then it is a processed food and is to be avoided.

Is your latte a real one with just espresso and steamed milk? Or is it sweetened and flavored and full of artificial dairy substitutes?

See how that works? You have to find out the ingredients of everything you put in your mouth. It's great that you do homemade food - that's your best bet. Locally-owned independent restaurants that use real ingredients are what you need to do when eating out.

diagnosed 1990
stopped meds 1993
cured since april 2008
whole foods
good supplements & probiotics
one cup of water, one whole pear, one whole apple (include the peels) in the blender every morning (this completed the cure for me)

Basilpuppy
Regular Member


Date Joined Jul 2009
Total Posts : 28
   Posted 7/14/2009 8:52 PM (GMT -6)   
"Processed" - It's all in the ingredients. If the pizza has tomatoes, real cheese, yeast, salt, oregano, olive oil, whole wheat or unbleached flour (NO pepperoni!), then it's OK. If it's full of colors, preservatives, nitrites, artificial flavors, dough conditioners, HFCS, mono- and diglycerides, etc., then it is a processed food and is to be avoided.

Is your latte a real one with just espresso and steamed milk? Or is it sweetened and flavored and full of artificial dairy substitutes?

See how that works? You have to find out the ingredients of everything you put in your mouth. It's great that you do homemade food - that's your best bet. Locally-owned independent restaurants that use real ingredients are what you need to do when eating out.

diagnosed 1990
stopped meds 1993
cured since april 2008
whole foods
good supplements & probiotics
one cup of water, one whole pear, one whole apple (include the peels) in the blender every morning (this completed the cure for me)
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