Thank you guys soooooo much for all the input... I do feel better now hearing your stories and knowing that I'm not just some bizarre case of pred not working... I guess I had my hopes up a bit too high.... (sigh)....
My GI wanted me off all the other drugs, (5ASA's) Until I get a good remission started with the pred.. I have been using Lialda and Rowasa and Canasa daily and they have in the last few months just completely quit working for me. I am hoping that if I go off them for a few months and POSSIBLY... and I mean only possibly start back on them that I might have a better time this round.. it not.. then other medications are the next step..
I was also glad to hear that proctitis can be difficult to treat... seems to definately be the case for me!!!!! Maybe with upping my prednisone to 60 mg for a couple of weeks, then I can start the tapering process and see how it goes... I will be talking to him about that tomorrow.... I'm actually looking forward to this visit!!!!
At least overall, I can eat, I can do things, but the prednisone has me feeling pretty looopy all day and it's hard to concentrate on anything or even drive sometimes.... And, I'm down almost 9 pounds now... So for now, I'm just taking it a day at a time... trying to take it easy and not worry about too much...
I'll let you know how the dr. Appt. Goes tomorrow!!!
Diagnosed with U/C January 31st, 2005, IBS on July 21st, 2006
Status as of June 30th, 2009 : Flaring for the last 7 or 8 months with blood, mucus PAIN..... Meds are: Prednisone 40mg daily, Doctor told me to stop all other U/C meds until I taper down on the Prednisone.. I take Xanax when needed and Ambien for sleep... Nexium in the am for heartburn..
Post Edited (Susiebuddy) : 7/14/2009 12:29:36 AM (GMT-6)