Hey all... .
Today is day 12 on Pred, 40mg and today my bleeding has gotten worse... I've been HOPING that it would be continually getting better over time and maybe I should expect a blip or two along the way, but I feel this is more than a blip. I'm back to red toilet water..... I think it's not getting better at this point, and even maybe getting a little worse. So... I am bummed... I have a follow up appointment on Tuesday with my WONDERFUL Gasto doc... and I'm thinking he's going to want to hit me a bit harder with pred.. maybe 60mg and see if that does anything.. Geez.... I feel so exhausted from all this and I just want to get better!!!!!! Has anyone been on higher doess like 60mg before?? I thought 40 was tough... but if I gotta do it, I will.....
I'm going to bed now as I need to sleep.. I actually have 2 big hay deliveries scheduled for tomorrow and Tuesday... but I got my young hay buckers working for me to unload and stack it... they are SOO Great! They won't even let me touch a bale of hay while I'm sick.... I'm Luck to have workers like that... FOR SURE..... All I have to do is drive the truck hauling the hay... easy peasy... :)
I'll let you know how it goes on Tuesday... I'm hoping for maybe a shot at remicade or something along those lines if this pred doesn't help.... I'm just gonna hang in there and see what happens!
Diagnosed with U/C January 31st, 2005, IBS on July 21st, 2006
Status as of June 30th, 2009 : Flaring for the last 7 or 8 months with blood, mucus PAIN..... Meds are: Prednisone 40mg daily, Doctor told me to stop all other U/C meds until I taper down on the Prednisone.. I take Xanax when needed and Ambien for sleep... Nexium in the am for heartburn..