Lonielane!!!! I need you!!!

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Veteran Member

Date Joined Feb 2005
Total Posts : 1373
   Posted 7/13/2009 12:24 AM (GMT -6)   
Hey girl... I know you've been taking Remicade for quite some time now with much success.... I am at a point in my journey where I'm starting to look at the possibility of asking my doctor about it this Tuesday at my follow up appointment.  I've been taking Prednisone for almost 2 weeks now and my bleeding just won't stop. It did get better for a few days but the last few days it's been steadily going downhill.... Now I'm back to bloody toilet water and whimpy poopie sessions..     I know there are drugs out there like 6mp, and Imuran.. but those drugs scare me for some reason~! 
   What did you do before you finally got on remicade and started finally turning your life around? I'm so afraid to up my prednisone dose to something like 60mg because at 40, I don't have enough sense in my head to be a normal person... it really makes me feel weird and irrational and just plain "out of it"..... I dont even know if this post I'm typing out makes perfect sense...
  I need some calming advice from a remi-pro~!      Miss talking with you also.....   ~Susie
Diagnosed with U/C January 31st, 2005, IBS on July 21st, 2006 
  Status as of June 30th, 2009 :  Flaring for the last 7 or 8 months with blood, mucus PAIN..... Meds are: Prednisone 40mg daily,  Doctor told me to stop all other U/C meds until I taper down on the Prednisone.. I take Xanax when needed and Ambien for sleep... Nexium in the am for heartburn.. 

Veteran Member

Date Joined Feb 2005
Total Posts : 6448
   Posted 7/13/2009 8:43 AM (GMT -6)   
Hey Susie; I'm sorry you are having such a rough time. Remi has been heaven sent for me, that's for sure. Why don't you send me an email and I'll send you my phone numbers so we can chat.

Remicade - will have my 29th infusion on July 8
Vitamin B-12/Biotin, Probiotics, Vitamin D-3 (2000 IU)
Co-Moderator for the UC Forum

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