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AmyWaffle
Regular Member


Date Joined Jun 2009
Total Posts : 173
   Posted 7/13/2009 11:11 AM (GMT -6)   
I just had my second infusion of Remicade last week and am not noticing a huge difference. Should I know by now if it is working? Also, the dose I am at is 5 mg/kg. Is that what most of you remicaders are at? I wanted this drug to work so SO BAD.
UC since 1996 (age 20)
Mommy of 2 sweet little girls.
My life is one big flare.

Asacol, Azathioprine, Prednisone, Rowasa
First Remicade 6/22/09


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 7/13/2009 12:22 PM (GMT -6)   
5 mg/kg every 8 weeks is the "standard" dose. If that doesn't work, it can be increased to 10 mg/kg or the schedule changed to every 6 weeks.

Also, not everyone notices a difference right away. It can take up to five infusions for it to really take effect in some people. I'd encourage you to be patient and see if it kicks in for you in the next 4 to 6 weeks.
Judy
 
Ulcerative colitis forum co-moderator
 
Moderate to severe left-sided UC diagnosed 2001.
Flared for 5 years, finally in remission with Remicade since March 2006.
Avascular necrosis in both shoulders is my "forever" gift from steroids.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. 
"My life is an ongoing medical adventure"
 


disco
Regular Member


Date Joined Jan 2008
Total Posts : 154
   Posted 7/13/2009 12:29 PM (GMT -6)   
hard to say for me - I was coming off Pred when I started Remicade so I wasn't in a flare.

All I can say it that I've been on it for two years and it's been outstanding.

I can push the infusion to every 9 weeks but if I push them to 10 weeks I sometimes start to have issues, not always.
Diagnosed in spring 2005 at age 28
Currently on 12 asacol pills a day + Entocort
40 MG Pred cycle stating 3/26
Remicade


AmyWaffle
Regular Member


Date Joined Jun 2009
Total Posts : 173
   Posted 7/13/2009 1:37 PM (GMT -6)   
Ok, thanks you two. I will be patient and see if the next dose on August 3rd does the trick!
UC since 1996 (age 20)
Mommy of 2 sweet little girls.
My life is one big flare.

Asacol, Azathioprine, Prednisone, Rowasa
First Remicade 6/22/09


Hopeful4uc
Regular Member


Date Joined Jun 2009
Total Posts : 90
   Posted 7/30/2009 8:26 PM (GMT -6)   
That is correct just be patient.  I also had my 2nd infusion about 3 weeks ago and i finally can see a difference.
I actually have now had a few formed stools (wow).  I have pancolitis UC pretty severe, so i expected the Remicade to take a while to work.  I believe it will work for you just give it time.  i get my 3rd dose on August 5th. is your UC pretty severe?  We have to remember it's working from the higher level, and it may take time. 
I hope it works for you, take care!  Oh, i also noticed that i have been gaining weight, but i have to remember that i don't need to eat every 5 minutes to keep the weight on. 
Signed,  Hopeful4UC
 
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