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Adam1184
Regular Member


Date Joined Jul 2009
Total Posts : 93
   Posted Yesterday 11:19 AM (GMT -6)   
Hi, I've had UC since Feb 08 and am now really wanting to change my diet cuz i am tired of sitting here at work in pain. I feel like my UC is pretty well under control but I feel pain in my stomach (mostly my lower left side) when I sit at work (I work on a computer all day). The weird thing is, is when i get up to get some water or just walk around I feel no pain at all. I have a few questions and would like some of your experiences or opinions on the matter. My first question is about Fiber. I've heard that it can be bad and good. And I look at a lot of the things i bought at the grocery store and they are all pretty high in fiber. For example, oatmeal, rice cakes, granola bars. Any replies will be much appreciated.

Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted Yesterday 3:51 PM (GMT -6)   
I could never handle high fiber, always felt better with low fiber food, even if was greasy or spicy. It's an individual thing. But cramping and bloat is how it would affect me, and made me very uncomfortable. Especially salad.

You might also have a gluten problem! Probably could figure these things out by trying to eliminate them.

I bet you notice an immediate improvement, if either fiber or gluten is the culprit.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol maintenance for 20+ years; used prednisone & Rowasa for flares.  Probiotics (Ultimate Flora, 50 billion), salmon oil (omega-3) when I can remember. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated wheat/gluten from my diet.
Bad flare in March, used prednisone. Humira denied, started Remicade 4/12 and doing great~ learning what normal is~ wow


Adam1184
Regular Member


Date Joined Jul 2009
Total Posts : 93
   Posted Yesterday 4:14 PM (GMT -6)   
Hey thanks Peety! I think I'll try going without either of those for a week or two and see what happens.

I quickly searched gluten free recipes and I see a bunch of ingredients that are gluten free. Would normal grocery stores have gluten free items or would i have to find some "Health" grocery store?
Male
7/21/85
Diagnosed 2/08
10 Asacol per day
Trying to eat healthy
Misses chocolate and ice cream...


psychocolon
Regular Member


Date Joined Jul 2009
Total Posts : 118
   Posted Yesterday 5:44 PM (GMT -6)   
I have always had problems with a lot of fiber and tend to stay low fiber. Most of the people I know with colitis also have the same problem.
Maybe, you will be lucky.

Malkavian
Veteran Member


Date Joined Mar 2009
Total Posts : 1439
   Posted Yesterday 6:54 PM (GMT -6)   
I would suggest trying to mostly eat soluble fiber. I find I can tolerate this, but I can't tolerate straight insoluble fiber in large amounts.

I'd suggest making oatmeal a staple, along with dark green leafy veggies (pref. cooked) if you would like more fiber.
21, female, diagnosed 3/6/2009
Mild ulcerative colitis from rectum to mid transverse colon
Currently taking Asacol (3x/day) and Calcium/D supplements


Ashley O
Regular Member


Date Joined Jun 2008
Total Posts : 72
   Posted Today 2:16 AM (GMT -6)   
Hey Adam where are you from?
Female, Age 20, DX w/Left sided UC October 2005
DX w/Universal Colitis June 2009
Currently in Flare with moderate symptoms

Present Meds: Switching to Lialda 4 pills 1x daily and Canasa Suppositories (hopefully this combo will work, if not back on the Pred-unless I want to try Humira or Cimzia)

Past Meds: 40 mg Prednisone Daily for 1 year, Miralax Daily, Ginger Supplements, Remicade Aug 2006-June 2009


Adam1184
Regular Member


Date Joined Jul 2009
Total Posts : 93
   Posted Today 10:39 AM (GMT -6)   
Hey thanks for all the input!

I am going to try to eat more oatmeal. Actually, I should say to eat oatmeal. I don't think i've ever eaten it before lol.

Ashley O: I am from Minnesota. How about yourself?
Male
7/21/85
Diagnosed 2/08
10 Asacol per day
Trying to eat healthy
Misses chocolate and ice cream...


Arc
Regular Member


Date Joined Jun 2009
Total Posts : 25
   Posted Today 11:15 AM (GMT -6)   
If you try oatmeal you might try the finely chopped up kind and putting it in the pan with a fair bit of cold water and slow cooking it on a low heat until it is almost creamy. This helps me a lot. Also with my veggies (broccoli, cauliflower, brussel sprouts, carrots, and spinach all frozen) I cook them all together on medium heat until they are soft enough to almost be baby food and then I blend them with some low sodium V-8 to make a soup type thing. For protein and such I eat hard-boiled eggs (steamed) and salmon (also steamed). A multi-vitamin is important and I believe the best kind is the liquid. I also take flax oil, fish oil, and probiotics. The oatmeal is the king of all foods though. It really helps calm my upset gut.
Diagnosed in November of 2006 with UC (ileitis) though I had symptoms ,which were misdiagnosed as IBS and hemorrhoids, nearly 6 months before I finally went to a GI. Also have a bad arthritic right leg that hurts in my hip joint....at least I think it is arthritis though it could be directly tied to IBD.
 Colonoscopy in November of 2006 and took part in a Prednisone and Asacol taper program.
 No serious flare ups just moderate ones for nearly 3 years. It was nice....
 May 2009 experienced first serious flare up and now on prednisone 30mg daily and waiting for my next colonoscopy....yay.


Adam1184
Regular Member


Date Joined Jul 2009
Total Posts : 93
   Posted Today 11:59 AM (GMT -6)   
Hey thanks for the tip Arc. I'm glad to hear all of these positives about oatmeal after buying it lol.

I'm gonna try some of your other tips as well. I also keep Fish oil on my desk so i remember to take it during lunch.
Male
7/21/85
Diagnosed 2/08
10 Asacol per day
Trying to eat healthy
Misses chocolate and ice cream...


Sunshineonmyface~
Regular Member


Date Joined Sep 2008
Total Posts : 202
   Posted Today 12:30 PM (GMT -6)   
I just tried oatmeal 2 days ago, and my intestines completely halted! They were like "whhhhats thissss?" Freeze. Sometimes my flares start with constipation, I have no idea why.

Ashley O
Regular Member


Date Joined Jun 2008
Total Posts : 72
   Posted Today 12:36 PM (GMT -6)   
Adam: I'm from California. I like to ask the younger people with UC where they're from because I haven't met anyone close to my age near me in California.

I know what you mean about having the lower left side pain. It's a bummer. I've been trying to adjust my diet too and see what helps. Fiber confuses me because sometimes it causes more problems when I try to eat more fiber but if I don't get enough that seems to not do wonderful things either. I am also not a fan of oatmeal.

So good luck with your food experiments and let us know what works for you. By the way, welcome to healingwell!

Ashley
Female, Age 20, DX w/Proctitis UC October 2005
DX w/Pancolitis June 2009
Currently close to Remission. WHOOOO!

Present Meds: Lialda 4 pills every morning and Canasa Suppositories nightly.

As Needed: Immodium, Clonazepam 1mg for anxiety

Past Meds: 40 mg Prednisone Daily 2005-2006, Miralax, Ginger Supplements, Remicade every 8 weeks Aug 2006-June 2009


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted Today 12:53 PM (GMT -6)   
Fiber is a double-edged sword. It is crucial to colon health. Plus, there is evidence that it might prevent colon cancer (although the evidence is not conclusive). Yet, many people with UC have trouble with fiber. Try keeping a food diary to see how fiber affects you.
Joy - 47 yrs and counting; Dx Colitis Dec 06 (also had IBS); Currently in remission

Figuring out how to reduce a flare or get into remission is a trial and error experience. Don't expect your GI to have all the answers. He was trained in making diagnoses, prescribing medications, and surgically removing the colon. He was not trained in alternative treatments. That's why they are called alternative treatments.

What works for me: Fecal transplantation, Probiotics, Anti-inflammatory foods, No HFCS, No foods high in fructose, No artificial sweeteners, No pro-inflammatory foods when flaring, Vitamins, Lexapro (for stress).


Adam1184
Regular Member


Date Joined Jul 2009
Total Posts : 93
   Posted Today 1:18 PM (GMT -6)   
California eh? Yeah that's pretty far from MN! I've never been there but I REALLY want to check it out!

Yeah, I don't know anyone actually who has this. It does kind of seem that there's a decent amount of young ppl on here. It looks like you were real young when you got it. That's so crappy...(literally!). I think I'm pretty lucky i did not get until my last semester of college. I mean, I liked to go out and drink when i was in school and by the time i got this my partying days were pretty much over. And i'm pretty sure we all know how alcohol treats us! Except maybe you because you are underage ;).. Being so young with this sometimes i think to myself "I seriously have a disease??"... lol. I try not to let it get the best of me though. My close friends will give me crap about having it and I like that. I think laughing and joking about it can be a good thing. My one roomate gave me the theme song Disturbed-Down with the Sickness lol. He'll play it sometimes when i enter the room lol.

And thank for welcoming me! I do work on a computer so I imagine myself being on here pretty often. I'm definitely going to be doing quite a bit of experimenting. This morning for breakfast all i ate was some raspberry's and an activia yogurt. And then for a snack I ate some plain cherrios. Much different than my usual Cocoa Krispies breakfast, doritos and chocolate chip cookies! Ugh, I'm gonna miss all of my junk food :(
Male
7/21/85
Diagnosed 2/08
10 Asacol per day
Trying to eat healthy
Misses chocolate and ice cream...


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted Today 9:53 PM (GMT -6)   
Adam1184 said...
Hey thanks Peety! I think I'll try going without either of those for a week or two and see what happens.

I quickly searched gluten free recipes and I see a bunch of ingredients that are gluten free. Would normal grocery stores have gluten free items or would i have to find some "Health" grocery store?

It seems more gluten-free prepared foods are found in regular grocery stores. Look for things (like pasta, cereal) made with corn, rice, potato or tapioca instead of wheat. The breads are awful, don't recommend wasting your money on them. Potato flour works well for  coatings, if you cook. But my fave gluten-free food is potato chips!!
 
Oats would have gluten BTW
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol maintenance for 20+ years; used prednisone & Rowasa for flares.  Probiotics (Ultimate Flora, 50 billion), salmon oil (omega-3) when I can remember. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated wheat/gluten from my diet.
Bad flare in March, used prednisone. Humira denied, started Remicade 4/12 and doing great~ learning what normal is~ wow

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