Why Us ?
1
Poor diet - 4.3%
7
Heridity - 30.4%
1
Punishment - 4.3%
14
None of the Above - 60.9%

 
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1952crp
Regular Member


Date Joined Jul 2009
Total Posts : 21
   Posted 7/14/2009 12:15 PM (GMT -6)   
nono  hy us? It's not fair to see people eating anything they want with no ill reactions. Ice-cream, Lasanga,Chili,Mashed potatoes&gravy,etc.

fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 7/14/2009 12:20 PM (GMT -6)   
Well, life isn't always fair. :)
You probably don't want to hear this, but my UC doesn't seem to be affected by diet thus far. I still have to avoid MSG and such, but that always bothered me before UC.
Status: Remission since late May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently taking Apriso (4 pills ONCE!! daily), Rowasa twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (25 mg).


EdwardC
Regular Member


Date Joined May 2008
Total Posts : 48
   Posted 7/14/2009 12:24 PM (GMT -6)   
I am not religious or anything but the first noble truth of the Dharma Buddha is that: "Existence is suffering." And then we all die. Yes I am a ray of sunshine, today.
Mild pancolitis with some diverticular pockets diagnosed in April '08
Currently on 400 mg Asacol X 6 per day


Blue220
Regular Member


Date Joined May 2008
Total Posts : 191
   Posted 7/14/2009 12:30 PM (GMT -6)   
Yes, it really does suck, but there's only so much we can do about it.

I just ate french fries...from the fryer. I'm ok....for now.
22 years old

Diagnosed with moderate/severe UC June 2007, I've had it since December 2006.

Taking Lialda 3x a day<---NOT ANYMORE. I got pancreatitis from them.
I stopped taking Lialda 8-19-08. Ugh!
All I take now is just my 3 Entocort in the morning, and 1 iron pill in the afternoon.

NOW back on Lialda as of 8-30-08, not the cause of pancreatitis.
Going in for an endoscopic ultrasound on 9-19-08 to check things out.
Still on Entocort and iron. Yay...

Haven't been on here in a while (finally graduated college).
Update as of 5/26/09 - Now taking Imuran 100mg/day.
Taking Caltrate, Iron, and B12. I still take one Lialda a day.. Don't know why..
Something is giving me horrible headaches. =[ At least I'm off the Entocort.


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 7/14/2009 12:56 PM (GMT -6)   
I would have voted antibiotics, but I don't see a selection for it. So I voted None of the Above. However, diet has also played a large role.
Joy - 47 yrs and counting; Dx Colitis Dec 06 (also had IBS); Currently in remission

Figuring out how to reduce a flare or get into remission is a trial and error experience. Don't expect your GI to have all the answers. He was trained in making diagnoses, prescribing medications, and surgically removing the colon. He was not trained in alternative treatments. That's why they are called alternative treatments.

What works for me: Fecal transplantation, Probiotics, Anti-inflammatory foods, No HFCS, No foods high in fructose, No artificial sweeteners, No pro-inflammatory foods when flaring, Vitamins, Lexapro (for stress).


Scrap Girl
Veteran Member


Date Joined Jan 2007
Total Posts : 653
   Posted 7/14/2009 1:02 PM (GMT -6)   
Why not us?
Diagnosed with UC in Feb. 2005
 
Colazal (9 a day)
Folic Acid
Biotin
Calcium
Remicade


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 7/14/2009 1:04 PM (GMT -6)   
I used to ask myself that too. Then one day the answer came to me: Why not? There's no reason I should have UC, but no reason someone else should have it instead of me.

Diet has little effect on my UC, although it will occasionally give me some IBS symptoms. I'm currently taking Keflex for an infection with no problem (taking 1 Imodium with each abx capsule), so not antibiotics. I've stopped worrying about why, because that's in the past and can't be changed.

Yesterday exists only in my memory and tomorrow in my hopes. The only thing real is today.
Judy
 
Ulcerative colitis forum co-moderator
 
Moderate to severe left-sided UC diagnosed 2001.
Flared for 5 years, finally in remission with Remicade since March 2006.
Avascular necrosis in both shoulders is my "forever" gift from steroids.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. 
"My life is an ongoing medical adventure"
 


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 7/14/2009 1:16 PM (GMT -6)   
What they eat affects them whether you see it or not. If they eat crap long enough it will kill them in one way or another. Just be happy you have healthier eating habits. I feel more sorry for the people that think they can eat whatever they want and get away with it.
Proctitis DX 1999, Pancolitis DX 2008
Golimumab study (100mg every 4 weeks)
L-Glutamine 5000 mg + 600 mg pyridoxal alpha-ketoglutarate
Probiotis/VitD3 5000IU+Ca/1000mg DHA


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 7/14/2009 1:20 PM (GMT -6)   

Them's fighting words, Dr -A! hahaha....  yeah, it's not fair... It's not fair to be born into poverty either, or to die from a terminal illness or act of violence, or to live in a war-torn country, or to get into a car accident, or to have no pets, or to be cheated on, or to cheat on someone, etc, etc, etc.


diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade-10mgs/kg- since 4/07
Imuran- 150mgs/day
various probiotics
Fiber supplement
 
 
 


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 7/14/2009 1:25 PM (GMT -6)   
Dr-A, I don't eat crap. I never did. I've always avoided processed crap just because I personally think a lot of it tastes gross (I can make it better) and because I don't think it's healthy. I'm just saying that I haven't had to modify my diet since my diagnosis. I don't think the foods the OP listed are crap, so long as they aren't full of preservatives and eaten in moderation. What's unhealthy about homemade chili? My recipe includes ground beef, onion, garlic, jalapenos, pinto beans, tomatoes, and tomato juice. If I find that things are bothering me, I'll quit eating them.
Status: Remission since late May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently taking Apriso (4 pills ONCE!! daily), Rowasa twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (25 mg).


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 7/14/2009 1:43 PM (GMT -6)   
I can eat what I want and don't have pain issues or D from my choices, but I chose to stop eating junk and just eat healthier and not only has it improved my IBD, but my overall well being as well, I feel better all around since altering my diet.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


1952crp
Regular Member


Date Joined Jul 2009
Total Posts : 21
   Posted 7/14/2009 2:04 PM (GMT -6)   
If you are what you eat & have colitis , -------- what does that mean?

Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 7/14/2009 2:20 PM (GMT -6)   
fruitgirl said...
Dr-A, I don't eat crap. I never did. I've always avoided processed crap just because I personally think a lot of it tastes gross (I can make it better) and because I don't think it's healthy. I'm just saying that I haven't had to modify my diet since my diagnosis. I don't think the foods the OP listed are crap, so long as they aren't full of preservatives and eaten in moderation. What's unhealthy about homemade chili? My recipe includes ground beef, onion, garlic, jalapenos, pinto beans, tomatoes, and tomato juice. If I find that things are bothering me, I'll quit eating them.


I never said you or anyone in here ate crap, lol. If he was refferring to things he made at home from scratch, I wouldn't think it was full of preservatives. My understanding of the posters topic was him seeing other people eating while being out. My state and the states around me have the conept they can eat whatever they want with no ill reactions. That's the reason we are the most obese states in America. I have a guy with diabetes right now I am trying to convince to stop eating at McDonalds everyday...... I mean really.
Proctitis DX 1999, Pancolitis DX 2008
Golimumab study (100mg every 4 weeks)
L-Glutamine 5000 mg + 600 mg pyridoxal alpha-ketoglutarate
Probiotis/VitD3 5000IU+Ca/1000mg DHA


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 7/14/2009 2:26 PM (GMT -6)   
Ah, I just thought it was directed at me, because I was the only one who'd said that diet didn't affect my UC. :) So I guess I just misconstrued what you were saying! I'm SO tired today...I have a cold and a teething nine-month old. His first teeth are just about to pop through, and he seems to be hurting a lot!

I definitely get grossed out by what I see in others' shopping carts when I'm at the grocery store. I'm sad, too, when I see a whole family that's obese/overweight (including the kids) and the cart is piled with high-fat crap food that's devoid of nutritional value. The kids don't even have a chance!
Status: Remission since late May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently taking Apriso (4 pills ONCE!! daily), Rowasa twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (25 mg).


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 7/14/2009 4:06 PM (GMT -6)   
You know, has anyone here read The Omnivores Dilemma? It's a great book, all about how removed people are from their food sources. But it could apply here, to us UC'ers as well. The book doesn't purport any sort of diet, but tries to show that what we think we're eating really isn't as it seems- like everything at McDonalds is basically corn! But I too get bothered when you see the real heavy families in the store, & their cart is full of crap. You oughta see the ice cream trucks at the beaches down here too- the fattest kids are first in line, never fails. It's unfortunate. But too many people have blinders on, re. their food sources. You need to eat as local as possible. And everything homemade is better! Anyway, no it's not fair, but what is? If I had to choose an option in the survey, it'd most likely be hereditary. And that's just the tip of the iceberg. I was reading the latest issue of Gastroenterology Journal today (one of the perks of working in the healthcare field!) & they had a symposium published on proctitis & UC- the current thought is that something triggers the inflammatory response, whether it be antibiotic use, infection, etc. And instead of the colon healing itself, some/us lucky folk have a wacked out immune respsonse to the inflammation, & it just keeps going & going. Yes, unfortunate! But whatever. Could be worse!
diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade-10mgs/kg- since 4/07
Imuran- 150mgs/day
various probiotics
Fiber supplement
 
 
 


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 7/14/2009 4:13 PM (GMT -6)   
I work in argriculture (fruit industry, thus my screen name), so I *do* know where my food comes from! But, I also know that most Americans don't. I am pretty passionate about ag, and the lack of understanding the genral public has about it, especially when it comes to issues like organic vs conventional, sustainability, food safety, etc.
Status: Remission since late May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently taking Apriso (4 pills ONCE!! daily), Rowasa twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (25 mg).


1952crp
Regular Member


Date Joined Jul 2009
Total Posts : 21
   Posted 7/14/2009 4:29 PM (GMT -6)   
Wow, food for thought. Thank you for opening my tunnel vision outlook on things. It's good to see other peoples view on similar problems. Guess I've been sulking and need to be grateful for another day this side of the earth. Hope I can afford organic. Pardon me for not being specific, just trying to get my berings strait. [Coming off a bad flare ]

fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 7/14/2009 4:32 PM (GMT -6)   
Not to lecture you any more, but honestly, don't worry overmuch about the organic. It's not really all it's hyped up to be. You'll do MUCH better by buying locally-grown foods. :)
Status: Remission since late May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently taking Apriso (4 pills ONCE!! daily), Rowasa twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (25 mg).


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 7/14/2009 4:46 PM (GMT -6)   
I've noticed that the obese people at the food store always seem to have lots of diet soda, low-fat milk, and then some sort of sugary, fatty desert. It seems they are trying to lose weight, but are definitely going about it the wrong way.
Joy - 47 yrs and counting; Dx Colitis Dec 06 (also had IBS); Currently in remission

Figuring out how to reduce a flare or get into remission is a trial and error experience. Don't expect your GI to have all the answers. He was trained in making diagnoses, prescribing medications, and surgically removing the colon. He was not trained in alternative treatments. That's why they are called alternative treatments.

What works for me: Fecal transplantation, Probiotics, Anti-inflammatory foods, No HFCS, No foods high in fructose, No artificial sweeteners, No pro-inflammatory foods when flaring, Vitamins, Lexapro (for stress).


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 7/14/2009 4:48 PM (GMT -6)   
Yeah, Joy, or the people who order a supersize meal at a fast food joint with Diet Coke. What's the point!?
Status: Remission since late May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently taking Apriso (4 pills ONCE!! daily), Rowasa twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (25 mg).


hana24
Regular Member


Date Joined Dec 2007
Total Posts : 354
   Posted 7/14/2009 7:57 PM (GMT -6)   
I really want to read The Omnivores Dilemma also...I read a good review of it. Life isn't as bad as it could be. I had a horrible headache yesterday and I was sooooo greatful at the same time that I don't have that headache all the time like I have UC all the time. At least with UC I can read or focus on work some of the time. I'm just saying at least this isn't going to kill us - just maybe all the meds we have to take :)
Jessica 27/F
Remicade, Entocort 3/day, Rowasa ,
Apriso/4 pills
Citalopram 20 MG
Align


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 7/14/2009 8:13 PM (GMT -6)   
I know that many say it's too expensive to eat healthy, but something that most don't realize is, when you don't have enough fruits and veggies in your diet daily, you will not feel full but instead always feel hungry and it's actually a viscious circle cuz in reality if people ate the recommended amount of fruits, veggies and other fibres and healthy carbs on a daily basis they wouldn't feel so hungry all the time (taking into consideration that not all overweight people eat too much due to hunger) but in the long run, junk food is actually more expensive to live on because you have to eat so much more of it in a day to try and satisfy your hunger. BTW, a bag of apples where I live is cheaper than a bag of chips and how many people do you know will sit infront of the TV and eat away a whole bag of apples compared to a whole bag of chips?

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Sweetie31105
Veteran Member


Date Joined Aug 2008
Total Posts : 903
   Posted 7/14/2009 8:25 PM (GMT -6)   
I totally agree with you on that one Pb4. I've been eating unhealthy for a while just because of lazyiness and lack of planning a weekly menu. I am now on a health binge. It is worth it in the long run to eat healthy and be willing to spend whatever it takes to eat healthy.
27 year old, Married, Female.
Diagnosed with UC since March 2007

Taking Humira since of May 2007 (Currently in remission since May 2007)
Put on Imuran from May 2007 to Jan, 15 2009
Put on Canasa June 25, 2009, off Canasa on June 30th 2009.
*Can't take Asacol, Allergic to Remicade, odd reactions to Canasa went backwards a bit.
*Started minor flare in mid June 2009 but VERY minor. :(


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 7/14/2009 8:26 PM (GMT -6)   
Yeah, cost wise it's really not anymore expensive. Certain things are (Milk), but most things aren't. For my last health talk I visited all my local grocers and priced all organic vs non-organics and local farmer's market prices. Alot of people were suprised to see the actual numbers side by side. Krogers has recently started carrying some locally grown food now too.
Proctitis DX 1999, Pancolitis DX 2008
Golimumab study (100mg every 4 weeks)
L-Glutamine 5000 mg + 600 mg pyridoxal alpha-ketoglutarate
Probiotis/VitD3 5000IU+Ca/1000mg DHA


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16716
   Posted 7/14/2009 10:23 PM (GMT -6)   
I still believe I have some kind of curable bacteria. I just haven't found the doctor who can diagnose it yet.
Diagnosed with mild proctitis in March 2007: Treated with Canasa (as needed)
December 08: Began treating with Asacol 400mg (9/day) + Canasa 2x/day - Anemic
May 09: Off Canasa, taking Asacol (9/day)
Back on Canasa every other night + Asacol (9/day) + Probiotics + Iron
Reducing to 6 Asacol/day + Canasa + Probiotics + Iron - So far so good!!! -SPOKE TOO SOON! Back to 9/day...

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