Just so you know, my GI tried to tell me that a permanent ileo would be my best surgical choice. He was wrong; the jpouch has been fine. It's not the GIs scope of knowledge to determine the surgery choice; it's the patient's choice as well as the surgeon's. A permanent ileo may be what you choose, everyone has to make their own decision based on their lifestyle, but again, that would be your choice. I loved my GI too; he was great but his knowledge of UC surgery sorely lacked. And his opinion of the jpouch procedure was outdated and wrong. I make sure to remind him of this on an annual basis. Every anniversary of my jpouch surgery I send him a letter to let him know how healthy, happy, and active I am with my jpouch. My goal is that he never speaks poorly about this surgery choice to another patient.
A consult is a very good idea. Make sure you pick a surgeon with tons of experience. You can get recommendations in your state at www.j-pouch.org
dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free