Anyone ever gone....

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imagine
Regular Member


Date Joined May 2009
Total Posts : 30
   Posted 7/14/2009 5:21 PM (GMT -6)   
In a bush? Because today, at 6 somethng in the morning, with all the stores around me closed, that was my only choice.
 
Either that or my only pair of pants. confused
Diagnosed 2002(?) Indeterminate colitis (recently called Chrons)
Currently on: alternating doses of 6mp, 8 Asacol, weekly biweekly Humira, & 1000mg Canasa nightly
Also: generic Immodium and Levbid
 
Refusing to take pred and humira...(doing a diet/food diary change)
going to try liquid diet...
 


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 7/14/2009 5:40 PM (GMT -6)   
Yep........I went in the woods near a bush while I was putting up a tent for camping. But I imagine that is a bit different then what you had to endure! :)
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate ALL mesalamines**~Allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis~bulging and herniated discs C5/C6 & C6/C7~Epidural injections (2 series of 3), OA-Celebrex, Tylonel Arthritis and Voltaren Gel
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imagine
Regular Member


Date Joined May 2009
Total Posts : 30
   Posted 7/14/2009 5:57 PM (GMT -6)   
I was right by a major street; thank god the bushes were thick, although from the scratches and bumps, I'm guessing my skin wasn't thanking me for that dive... :)

It was very humiliating, actually. Kind of ruined my day.
Diagnosed 2002(?) Indeterminate colitis (recently called Chrons)
Currently on: alternating doses of 6mp, 8 Asacol, weekly biweekly Humira, & 1000mg Canasa nightly
Also: generic Immodium and Levbid
 
Refusing to take pred and humira...(doing a diet/food diary change)
going to try liquid diet...
 


Anthony1977
Regular Member


Date Joined Jan 2009
Total Posts : 413
   Posted 7/14/2009 6:13 PM (GMT -6)   
I haven't gone in bushes yet. I have gone in my pants. Sorry to hear that you had to do that. It sux, I know. There are many people on this board that have many stories like this that make me feel better that we are not the only ones that do this. I remember one time where I had to go super duper bad. I managed to hold it in for a while. I swear to god I think my ass can crack coconuts by now with all of the sphincter tightening. Anyway, I managed to get closer and closer to my house and it got worse and worse. I got to my friggin door and lost it there. I was like how the &*$*$*$ did I make it an hour to actually drop the package at my front door. I mean, CMON!! It gives my friends laughs when I tell them the story. I think the next time I am just going to fill my truck up with sand like a giant litter box. Stay well, and try not to get too discouraged.

GLOVE
Regular Member


Date Joined Jul 2009
Total Posts : 321
   Posted 7/14/2009 7:07 PM (GMT -6)   
No, but I managed tp go in my pants. not fun!!! Don't you love UC?

kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 7/14/2009 8:08 PM (GMT -6)   
I have gone in the bushes AND my pants! AND - nearly everyplace else. NO - UC is not fun but neither are a lot of other diseases and conditions people live with. My husband is living with lung cancer and doing well (but chemo was not fun), my friend has MS and three lively kids to take care of. WE are not alone - and "going" where you have to is part of what we live with!!
ElaineNY
 
Senior - diagnosed with proctosigmoiditis - 6/2008   
Cannot tolerate mesalamines.  New specialist (June) - Cortifoam and Anusol three times a day for now.  Hope it works! (finding it impossible to do three times a day however)
 
Probiotic Align, Prilosec for GERD, Gas-X, vitamins, Calcium/D
Tylenol for knees and arthritis.
 
 
 


imagine
Regular Member


Date Joined May 2009
Total Posts : 30
   Posted 7/14/2009 8:26 PM (GMT -6)   
Yeah, everytime I get bummed, I play the "Well, it could be worse..." game. That always helps.
Diagnosed 2002(?) Indeterminate colitis (recently called Chrons)
Currently on: alternating doses of 6mp, 8 Asacol, weekly biweekly Humira, & 1000mg Canasa nightly
Also: generic Immodium and Levbid
 
Refusing to take pred and humira...(doing a diet/food diary change)
going to try liquid diet...
 


Liza D
Regular Member


Date Joined Apr 2009
Total Posts : 166
   Posted 7/15/2009 2:30 AM (GMT -6)   
I've been camping during a flare. I normally get more peace while camping but it is not fun getting that peace so often! And sleeping is not easy either!
UC (Pancolitis... 90%!) December 2001
Arthritis (2003)
Upper GI Ulcer (2006)
Osteopenia (2008)
Depression/Anxiety (2002)
J-Pouch May 2009

Check out my blog: shlookshlies.blogspot.com/


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 7/15/2009 7:51 AM (GMT -6)   
What bush (or dumpster, store, car, etc) haven't I gone behind, is more like it! If there is any chance I can do my business outside rather than in my pants, I'll jump right out & go. I've even pulled over my car, opened the passenger side front & rear doors to make a little shelter, & gone right there between the 2 doors! And of course, I've also gone in my pants. It can ruin your day, it used to for me. Now I just laugh about it, grab my trusty car kit (ziplock bags, baby wipes, clean undies, extra pants) & go clean up ASAP.
diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade-10mgs/kg- since 4/07
Imuran- 150mgs/day
various probiotics
Fiber supplement
 
 
 


Serenity Now
Veteran Member


Date Joined Jan 2009
Total Posts : 2105
   Posted 7/15/2009 9:11 AM (GMT -6)   
Question - doesn't anyone ever get "caught"?? I've done the "what if I had to go right now" game as I've walked to the store or wherever, and I can't imagine no one seeing me if I had to run behind a bush on the street. Or, I remember someone saying they've gone in their neighbour's back yard.... did they not see you??? With my luck, their flood lights would come on right while I'm the middle and a big crowd would come out and stare. Ugh.
ack, 42, Vancouver BC
 
DX: UC (Pancolitis) as of Jan2009.  Symptoms first began June 2008.
Current Meds: Ferrous Sulfate, plus various supplements
Previous Meds: Jan-Mar 2009: Asacol 800 mg (1 pill x 4 daily), stopped Mar14/09. 


TLB37
Regular Member


Date Joined Dec 2008
Total Posts : 79
   Posted 7/15/2009 9:32 AM (GMT -6)   
i have not went outside yet sure it will happen . Let me tell you one time about a year or so ago i had a bad attack i call it it was awful!!! Anyways it hit me in sears at the mall of all places . The pain was like i was in labor or something and the sounds coming out of my butt were god awful . I was crying due to the pain some lady ask me if i needed a dr lol i was like no . I had d so bad i was stuck in sears for two hours . It was not funny then but now even as i type this im laughung so hard im crying . So don't let it get you down take care of yourself . life with uc is just wonderful!!!!
    Female 37
 
   20 years of Ulcerative Colitis
 
  meds,  2 Lialda, 3 Azathioprine, 1 Celebrex, Cymbalta, Mirtazapine,
               TLB ( :


Arc
Regular Member


Date Joined Jun 2009
Total Posts : 25
   Posted 7/15/2009 9:58 AM (GMT -6)   
I have used the bushes often but I live near a small ranch in the middle of my town that my family owns so when I exercise or camp I use the ranch. I think walks help regulate my bowel movements. One thing that I find kind of funny is that when it hits you DON'T run. Running always seems to make things more and more urgent. The worst pants pooping experience I had was when I was out on a date and it hit me and gave me no time to find the toilet. The poor woman thought that she had scared me away. I hope she didn't see my messy pants......I still cannot call her. One thing I have learned is that if you are caught out in the open (like the bushes) or with messy pants is to just smile and wave to any one passing by. You can't help it so there is no reason to not be happy that the attack is over!!! YAY!!!
Diagnosed in November of 2006 with UC (ileitis) though I had symptoms ,which were misdiagnosed as IBS and hemorrhoids, nearly 6 months before I finally went to a GI. Also have a bad arthritic right leg that hurts in my hip joint....at least I think it is arthritis though it could be directly tied to IBD.
 Colonoscopy in November of 2006 and took part in a Prednisone and Asacol taper program.
 No serious flare ups just moderate ones for nearly 3 years. It was nice....
 May 2009 experienced first serious flare up and now on prednisone 30mg daily and waiting for my next colonoscopy....yay.


AmyWaffle
Regular Member


Date Joined Jun 2009
Total Posts : 173
   Posted 7/15/2009 11:06 AM (GMT -6)   
...and THIS is why I carry baby wipes and extra underpants in my purse at all times! You poor thing. It does kind of ruin your day, doesn't it? My last big public accident was on my birthday and it just ruined my whole day.
UC since 1996 (age 20)
Mommy of 2 sweet little girls.
My life is one big flare.

Asacol, Azathioprine, Prednisone, Rowasa
First Remicade 6/22/09


wishingitaway
New Member


Date Joined Jul 2009
Total Posts : 9
   Posted 7/15/2009 11:34 AM (GMT -6)   
I also carry emergency supplies because we never know whats going to happen when we are dealing with this disease. Had my embarassing moments such as having to go in my pants. I'm not letting such things get the better of me anymore, or trying to anyway. Hope your day gets better Imagine, and that you feel better soon!

Howright
Regular Member


Date Joined Oct 2008
Total Posts : 86
   Posted 7/15/2009 11:42 AM (GMT -6)   
I haven't but I honestly considered it this weekend.  We were at a get together at a small cabin on a lake with 1 bathroom and 50 plus people.  I had my exit strategy and spot all picked out but luckily the bathroom was actually open when I needed it. 
 
Diagnosed January 07 - but realize I've been living with minor flare-ups for 10+ years. 
 
Asacol 3 pills/3 times a day.
 


Probiotic
Veteran Member


Date Joined Mar 2007
Total Posts : 2832
   Posted 7/15/2009 5:11 PM (GMT -6)   
I have gone in the forest off a hiking trail and ended up using poison ivy leaves as TP- the next couple weeks were not fun (I didn't know about my awful mistake for about 72 hours though while the toxins incubated!)- I can laugh about it now though, lol.


Pancolitis >20 years, allergic to all 5ASAs
(To pharma: enough already with the umpteen variants of Asacol!)
Tried everything under the sun (natural and alternative), low carb SCD
Some partial success with TSO but  too expensive to keep up 
Remicade Humira, lots of probiotics, entocort, tapering increasing pred again,
homemade fecal infusions, maybe surgery this year soon
 
 


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 7/15/2009 5:17 PM (GMT -6)   
Ok, Probiotic, you definitely win the "worst experience" prize! Holy cow, that must have been miserable!
Status: Remission since late May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently taking Apriso (4 pills ONCE!! daily), Rowasa twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (25 mg).


wrxBRAH
Regular Member


Date Joined Mar 2008
Total Posts : 312
   Posted 7/15/2009 6:15 PM (GMT -6)   
Gone pretty much everywhere. Worst is sitting in county jail (dont ask) around 20 guys in a cell and having to go every 10mins. Not fun at all.. Ive had the pleasure of stopping by plenty of gas stations where the restrooms are conveniently out of order and ofcourse leaving to try to find another place just ups the anxiety and makes you want to go even more.

imagine
Regular Member


Date Joined May 2009
Total Posts : 30
   Posted 7/15/2009 7:51 PM (GMT -6)   
I volunteer at the zoo as well, and its a commute (bus, lightrail, bus again) to get there. This is also done early in the morning. I remember a couple of summers ago that I was riding my bike and needed to go BAD, but the gym I stopped by wouldn't let me go because the bathroom was "members only" (beyotches!). I stopped at ten places before I finally stopped at an office and begged them to go. Luckily they were nice and let me...

Well, today I was in the same situation. (No, I didn't stop at the gym). I went straight to the office, walked past the (empty) security desk, and came to the restroom, which was being cleaned. The janitor pointed me to the second floor bathroom, I raced up the stairs and...relief!

But that wasn't the end. While cleaning the orangutans' sleeping quarters with a hose, I suddenly had to go (and surprisingly not number one). I really like the keeper who I was volunteering under and there was no way I was about to just lose it in front of him, so I ran and asked him if I could go. He said yes, I ran past the gibbons, jumped a fence, and made it to the bathroom just in time.

Why is it that every time you have to go, you have to go NOW? :)

(I'll have to look into carrying an extra pair of pants and undies with me, good idea)
Diagnosed 2002(?) Indeterminate colitis (recently called Chrons)
Currently on: alternating doses of 6mp, 8 Asacol, weekly biweekly Humira, & 1000mg Canasa nightly
Also: generic Immodium and Levbid
 
Refusing to take pred and humira...(doing a diet/food diary change)
going to try liquid diet...
 


Malkavian
Veteran Member


Date Joined Mar 2009
Total Posts : 1439
   Posted 7/15/2009 8:13 PM (GMT -6)   
I haven't yet *knock on wood* though I'm so uncoordinated I'd be afraid of falling in it =(
21, female, diagnosed 3/6/2009
Mild ulcerative colitis from rectum to mid transverse colon
Currently taking Asacol (3x/day) and Calcium/D supplements


mikeman
Regular Member


Date Joined Jul 2009
Total Posts : 66
   Posted 7/16/2009 3:51 PM (GMT -6)   
funny thread...5 stars! tongue
Age:31 Married with children.
--
Ulcerative Colitis cause: In 2003 I took Accutane for about 4 months, strong side effects of abdominal cramping and bloody stools.
May 2004: Diagnosed with Left sided UC -should have understood the IBD warning and should've never taken the dangerous drug
known as Accutane.
May 2004- May 2009: Prednisone, Asacol and many other med's that did not work well-Remicade was great for 16 months then suddenly stopped working.
---
May -June 2009: Pancolitis- chronic 2 month flare up that put me out of work and made me seriously think about surgery.
June 24th 2009: elective colectomy/ileostomy at Barnes/Washington University.
August 2009: planned rectum removal and j-pouch construction.
October-November 2009: planned Reversal.
----
Summary: Suffered 5 long years with severe Ulcerative Colitis, Anxiety and depression.
No more diseased colon. No more running to the bathroom 20+ times a day. No more cramping and bleeding. Satisfied with first surgery.

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