New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Malkavian
Veteran Member


Date Joined Mar 2009
Total Posts : 1439
   Posted 7/14/2009 6:51 PM (GMT -6)   
I talked to one of my mom's friends, who happens to be a doctor with UC. She prescribed me some Rowasa enemas (though I'll likely get the generic) to be used as needed. Hopefully it clears up the little bit of inflammation that seems to not want to go away. Any suggestions for how often to use them at first (assuming I'm going about 3x daily, no blood, just urgency)?

Also, I'm gonna try to cut caffeine out of my diet, so wish some luck to a coffee addict?
21, female, diagnosed 3/6/2009
Mild ulcerative colitis from rectum to mid transverse colon
Currently taking Asacol (3x/day) and Calcium/D supplements


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 7/14/2009 9:24 PM (GMT -6)   
Typically you start out using the Rowasa nightly from anywhere to 2 weeks to 6 weeks, depending on the severity of the flare. Then you start to taper by using it every other day for so long and then every 3rd etc. You are not that bad so try using it nightly for about 2 weeks and then skip a day. If the symptoms return, go back to nightly for another week or so. But don't forget to taper!
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate ALL mesalamines**~Allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis~bulging and herniated discs C5/C6 & C6/C7~Epidural injections (2 series of 3), OA-Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Liza D
Regular Member


Date Joined Apr 2009
Total Posts : 166
   Posted 7/15/2009 3:33 AM (GMT -6)   
Yeah, I did it once nightly.

When I give up coffee, I go straight for the decaf. It still has some but it helps. Also, teas I can fix up like coffee like chai or earl grey with cream and sugar- mmmmmm!

Good luck!
UC (Pancolitis... 90%!) December 2001
Arthritis (2003)
Upper GI Ulcer (2006)
Osteopenia (2008)
Depression/Anxiety (2002)
J-Pouch May 2009

Check out my blog: shlookshlies.blogspot.com/


Malkavian
Veteran Member


Date Joined Mar 2009
Total Posts : 1439
   Posted 7/15/2009 1:05 PM (GMT -6)   
Okay, will start with that, thanks.

I usually drink my teas straight or just sweetened, no cream. But I LOOOVE all sorts of coffee, and diet coke.
21, female, diagnosed 3/6/2009
Mild ulcerative colitis from rectum to mid transverse colon
Currently taking Asacol (3x/day) and Calcium/D supplements


quincy
Elite Member


Date Joined May 2003
Total Posts : 30992
   Posted 7/15/2009 2:20 PM (GMT -6)   
nix the diet coke malkavian....really not good for anyone.

I drink anywhere from 4 - 8 cups of coffee a day..depending on my social activities.

If I'm flaring, however, I do lessen the intake somewhat just because it can trigger increased peristalsis...depends on if I'm home or not.

Regarding the Rowasa...you should be on nightly until you're "normal"...then taper and remain on the every second night for at least 3 weeks...etc. It's a process that your gut controls, no matter how fast you think you should taper.
A very humbling fact that I sometimes ignore.

The tapering process will get you to a maintenance level...it's "said" that twice a week is optimum maintenance. If you're not comfortable using the 4g for longer periods, there is a 2g dosage.

Keep us posted as to the enemas are going for you.

quincy
*Heather* Status: maintenance Asacol 6 daily + Salofalk enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


sweetmelody
Veteran Member


Date Joined Aug 2007
Total Posts : 650
   Posted 7/15/2009 2:23 PM (GMT -6)   
holy cow... 4-8 cups! I'd be stuck on the potty with a large novel.
Kara, 22F Married.
Latest - Lialda 2 twice a day. Left Sided Colitis 40cm up...flare. Also IBS.
Medications: Lialda 2 twice a day, Align probiotic, Hyomax as needed, 6mp 50mg a day, Rowasa enemas.
I am so sick of this disease!
 
 


Malkavian
Veteran Member


Date Joined Mar 2009
Total Posts : 1439
   Posted 7/15/2009 7:54 PM (GMT -6)   
sweetmelody-Me too! Usually when I drink coffee, I get through half a cup before I'm on the toilet.

quincy-I know they're not good for me, but sometimes I get bored with water. And I think it's pointless to drink my calories cause eating them is tastier. =P

Also, will do. The pharmacy didn't have them today so I'm picking them up tomorrow evening.
21, female, diagnosed 3/6/2009
Mild ulcerative colitis from rectum to mid transverse colon
Currently taking Asacol (3x/day) and Calcium/D supplements


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 7/15/2009 7:58 PM (GMT -6)   
     Ever try the Cort enemas instead of Rowasa?
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Meds as of June 09: Colazal (6 per day), 6MP (50 mgm), Probiotic (upped to 3 per day), Fish oil capsule, calcium, multivitamin, Cort enema nightly, Canasa in morning.  Also taking Benicar and Toprol to control high blood pressure.  Getting old is a b****.


Malkavian
Veteran Member


Date Joined Mar 2009
Total Posts : 1439
   Posted 7/15/2009 8:47 PM (GMT -6)   
I've actually not tried any enemas so far, this is my first time going.

Are cort enemas cortisone/hydrocortisone?
21, female, diagnosed 3/6/2009
Mild ulcerative colitis from rectum to mid transverse colon
Currently taking Asacol (3x/day) and Calcium/D supplements


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 7/15/2009 9:21 PM (GMT -6)   
Yes, Cortenemas are hydrocortisone enemas but usually they are used if you can't get your flare under control by using the traditional 5-ASA's enemas such as Rowasa.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate ALL mesalamines**~Allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis~bulging and herniated discs C5/C6 & C6/C7~Epidural injections (2 series of 3), OA-Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE
 
 
 
 

 
 

New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, September 21, 2018 12:31 PM (GMT -6)
There are a total of 3,005,460 posts in 329,227 threads.
View Active Threads


Who's Online
This forum has 161775 registered members. Please welcome our newest member, Rawle.
272 Guest(s), 7 Registered Member(s) are currently online.  Details
Mind body spirit, aidanw20, sadiecat, Bohemond, Girlie, Indigo69, iPoop