Traveler with UC

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Ashley O
Regular Member


Date Joined Jun 2008
Total Posts : 72
   Posted 7/15/2009 1:13 AM (GMT -6)   
Hey everyone!

I decided to be spontaneous and accept a last minute invitation to go to Maui tomorrow for a week. So unlike me to do that, especially with UC. I'm super worried about the 5 hour plane ride there and back. I've been feeling really good on the Lialda, which I've been on for 3 weeks now and am supplementing that with Canasa suppositories. Anyway, I bought adult diapers for the first time ever today and some baby wipes and am packing them for the plane rides just in case. I'm also bringing some immodium and valium to give me peace of mind. So, everyone please send good thoughts my way tomorrow and hopefully I will make it through the plane ride without any accidents or extreme anxiety! Thanks everyone!

Aloha! Ashley
Female, Age 20, DX w/Left sided UC October 2005
DX w/Universal Colitis June 2009
Currently in Flare with moderate symptoms

Present Meds: Switching to Lialda 4 pills 1x daily and Canasa Suppositories (hopefully this combo will work, if not back on the Pred-unless I want to try Humira or Cimzia)

Past Meds: 40 mg Prednisone Daily for 1 year, Miralax Daily, Ginger Supplements, Remicade Aug 2006-June 2009


Liza D
Regular Member


Date Joined Apr 2009
Total Posts : 166
   Posted 7/15/2009 2:24 AM (GMT -6)   
Awesome! on the vacation!

As for the plane ride, I've done that, even the day after a colonoscopy! That was when I realized I just needed to get over the bathroom trips. Before long plane rides across country, I try not to eat anything at all before the trip. If it is a later flight, I eat a small meal early in the day. Lots of water to keep my stomach full. If you have to, tell the flight attendant that you need an isle seat. Once I was stuck next to a girl traveling over seas who was knocked out! I ended up crawling over her while she slept- That was not easy. you got to do what you got to do.

Have fun and enjoy the vay-cay!
UC (Pancolitis... 90%!) December 2001
Arthritis (2003)
Upper GI Ulcer (2006)
Osteopenia (2008)
Depression/Anxiety (2002)
J-Pouch May 2009

Check out my blog: shlookshlies.blogspot.com/


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 7/15/2009 7:55 AM (GMT -6)   
Enjoy your trip! I flew to Hawaii 3 years ago with UC. Imodium when needed and seat near the bathrooms helps. Also, if you gotta go - go - even with seat belt sign on. Explain later. Once the flight attendant told me to go back to my seat and I told her either I would go in the bathroom or on the floor where she could clean it up!!
RELAX! That works best! AND - eat very minimal until you are there and only what you KNOW won't bother you. I take crackers with the peanut butter inside to eat occasionally.
ElaineNY
 
Senior - diagnosed with proctosigmoiditis - 6/2008   
Cannot tolerate mesalamines.  New specialist (June) - Cortifoam and Anusol three times a day for now.  Hope it works! (finding it impossible to do three times a day however)
 
Probiotic Align, Prilosec for GERD, Gas-X, vitamins, Calcium/D
Tylenol for knees and arthritis.
 
 
 


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 7/15/2009 9:05 AM (GMT -6)   
LOL, I remember one of the last planes I was on.... was feeling fine. Then over intercom pilot says "Sorry, but our bathrooms are out of order for this trip. I hope you went in the airport." I needed a valium on that trip. Glad I was zombied out on Lomitil, lol.


HAVE A BLAST!!!!
Proctitis DX 1999, Pancolitis DX 2008
Golimumab study (100mg every 4 weeks)
L-Glutamine 5000 mg + 600 mg pyridoxal alpha-ketoglutarate
Probiotis/VitD3 5000IU+Ca/1000mg DHA


Ashley O
Regular Member


Date Joined Jun 2008
Total Posts : 72
   Posted 7/15/2009 9:19 AM (GMT -6)   
Thanks for the well wishes, advice, and funny stories! I'm leaving for the airport at 11:30am (in about 3 hours) so I'll be checking this until then.

I'm flying standby with my Aunt and Grandma because my Uncle has seniority through United and we get to fly for free for this trip. Score right! BUT I'll have no say when it comes to my seat and I'm praying I don't get stuck in the middle of the 5 seat group row.

Dr-A I think I would die if the pilot announced the bathrooms are out of order on this five hour flight.

Kops and Liza I'm eating a small breakfast of sourdough toast and tea now at 8:30am and don't get on the plane until 4:30pm so I should be okay. I figured if I don't eat at all I wouldn't get to eat all day and then on the plane ride too and that might be bad.

Thanks for all the replies!

Ashley
Female, Age 20, DX w/Proctitis UC October 2005
DX w/Pancolitis June 2009
Currently close to Remission. WHOOOO!

Present Meds: Lialda 4 pills every morning and Canasa Suppositories nightly.

As Needed: Immodium, Clonazepam 1mg for anxiety

Past Meds: 40 mg Prednisone Daily 2005-2006, Miralax, Ginger Supplements, Remicade every 8 weeks Aug 2006-June 2009


AmyWaffle
Regular Member


Date Joined Jun 2009
Total Posts : 173
   Posted 7/15/2009 11:13 AM (GMT -6)   
Dr-A said...
LOL, I remember one of the last planes I was on.... was feeling fine. Then over intercom pilot says "Sorry, but our bathrooms are out of order for this trip. I hope you went in the airport." I needed a valium on that trip. Glad I was zombied out on Lomitil, lol.


HAVE A BLAST!!!!


Ohmygod I would have to get off the plane. SERIOUSLY! How did you do that!
UC since 1996 (age 20)
Mommy of 2 sweet little girls.
My life is one big flare.

Asacol, Azathioprine, Prednisone, Rowasa
First Remicade 6/22/09


Howright
Regular Member


Date Joined Oct 2008
Total Posts : 86
   Posted 7/15/2009 11:28 AM (GMT -6)   
 
Great suggestions so far.  I don't eat, take immodium just in case and yes, get an seat by the aisle if possible.  But honestly try to relax, stress will just make it worse.
 
Have a great time!!
 
Diagnosed January 07 - but realize I've been living with minor flare-ups for 10+ years. 
 
Asacol 3 pills/3 times a day.
 


Adam1184
Regular Member


Date Joined Jul 2009
Total Posts : 93
   Posted 7/15/2009 12:28 PM (GMT -6)   
Hey that sounds awesome! Don't let this stupid disease stop you from going places and having great time! Good luck with the plane ride and remain calm!
Male
7/21/85
Diagnosed 2/08
10 Asacol per day
Trying to eat healthy
Misses chocolate and ice cream...


Ashley O
Regular Member


Date Joined Jun 2008
Total Posts : 72
   Posted 7/15/2009 1:10 PM (GMT -6)   
Thanks guys! I'm off to the airport. Aloha!
Female, Age 20, DX w/Proctitis UC October 2005
DX w/Pancolitis June 2009
Currently close to Remission. WHOOOO!

Present Meds: Lialda 4 pills every morning and Canasa Suppositories nightly.

As Needed: Immodium, Clonazepam 1mg for anxiety

Past Meds: 40 mg Prednisone Daily 2005-2006, Miralax, Ginger Supplements, Remicade every 8 weeks Aug 2006-June 2009


sweetmelody
Veteran Member


Date Joined Aug 2007
Total Posts : 650
   Posted 7/15/2009 1:10 PM (GMT -6)   
Dr-A said...
LOL, I remember one of the last planes I was on.... was feeling fine. Then over intercom pilot says "Sorry, but our bathrooms are out of order for this trip. I hope you went in the airport." I needed a valium on that trip. Glad I was zombied out on Lomitil, lol.


HAVE A BLAST!!!!




That just scared the crap out of me..thanks. lol. I'm going on a cruise on Saturday.. we're flying to Atl and then to Florida. I'm thinking OH GOSH what if that happens to me. I'd be screwed. I am taking vicodin with me tho.
Kara, 22F Married.
Latest - Lialda 2 twice a day. Left Sided Colitis 40cm up...flare. Also IBS.
Medications: Lialda 2 twice a day, Align probiotic, Hyomax as needed, 6mp 50mg a day, Rowasa enemas.
I am so sick of this disease!
 
 


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 7/15/2009 1:32 PM (GMT -6)   
LOL, I was fine till he said that. Then of course my gut started churning and the anxiety kicked in (kinda like when you don't have to go till you see someone go in the bathroom, lol). I just told myself to quit being ridiculous, and went to sleep. I try and sleep while flying. Only time that has happened.
Proctitis DX 1999, Pancolitis DX 2008
Golimumab study (100mg every 4 weeks)
L-Glutamine 5000 mg + 600 mg pyridoxal alpha-ketoglutarate
Probiotis/VitD3 5000IU+Ca/1000mg DHA


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 7/15/2009 8:32 PM (GMT -6)   
If I was in Dr-A's situation I would remind myself that even if the bathroom was out of order the door to it was probably still working and could provide some privacy while I relieved myself in a trash bag if need be. Hope it was a short flight.

To the OP - have fun in Hawaii! Everyone already listed my advice.

My only other advice would have been that most people hate sitting near the bathroom. So, if you had a window or middle seat up front or mid-plane and offered to swap with the aisle person right next to the toilet I bet they would happily do it. You could tell your aisle companion "I tend to get up a lot so you are forewarned...I don't mind swapping seats." If they say "no I wont the aisle" then don't feel bad making them get up a lot.
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night.  I take xanax prn for situational anxiety (aka no easy bathroom access). 


sweetmelody
Veteran Member


Date Joined Aug 2007
Total Posts : 650
   Posted 7/15/2009 9:15 PM (GMT -6)   
fitz thats a great idea... and i'm totally packing a trash bag now LOL!!!!!!!!!!!!!!!!!!
Kara, 22F Married.
Latest - Lialda 2 twice a day. Left Sided Colitis 40cm up...flare. Also IBS.
Medications: Lialda 2 twice a day, Align probiotic, Hyomax as needed, 6mp 50mg a day, Rowasa enemas.
I am so sick of this disease!
 
 


sweetmelody
Veteran Member


Date Joined Aug 2007
Total Posts : 650
   Posted 7/16/2009 11:40 AM (GMT -6)   
crap... literally. This morning I was in the bathroom for two hours straight... and haven't eaten or drank anything..including my meds... i'm so freakin sick. I'm really nauseas etc. I'm supposed to leave for this cruise TODAY. I am SUPPOSED to be packing...instead I feel awful. I don't know how I'm gonna do this?
Kara, 22F Married.
Latest - Lialda 2 twice a day. Left Sided Colitis 40cm up...flare. Also IBS.
Medications: Lialda 2 twice a day, Align probiotic, Hyomax as needed, 6mp 50mg a day, Rowasa enemas.
I am so sick of this disease!
 
 

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