Hi....it's really not the food...but adjusting it can definitely help in comfort levels and intestinal activity.
Yes, request the enemas and don't let him talk you out of them...you want maximum dosage of medication at the area that's giving you the most grief. Ask for the Rowasa before you consider the steroid enemas....now, that's my preference, others will say on the contrary.
But, you can always use the steroid enemas as your next step.
I had a very difficult first year and it took a while for the meds to do their thing. Try not to make it that remission your goal as you must see that you are having improvement and room for increase of important medications that could help get more of the inflammation under control.
Ask where exactly your UC is located and maybe request a copy of the c-scope pathology report.
Ask the doc if there are blood tests he should be doing such as vitamin D, B12 and liver enzyme blood tests as well as ones for inflammation.
At least to get a baseline considering you are still in a flaring/fragile state.
Also ask for a prescript
ion of dicyclomine (Bentyl)...the lowest dosage to start. It's an antispasmodic and will help with IBS...because I think that's also what's going on regarding the connection with food. It can be very confusing with some symptoms.
Be patient....it takes a while for one to have success with 5ASA meds. If you become too desperate, then you may be jumping the opportunity for using the 5ASA for a very long time and skipping to steroids, etc.
For some, depending on what's going on emotionally, lifestyle, body stress and continual flaring, the 5ASA meds may not be enough, or one just cannot take them at all...and needs to go to stronger immune lowering meds.
As I look back, I am grateful my doc's statement of "be patient" helped, but I will admit I even asked about
pred a few times. His response was..."this will work, but it takes time and you are already showing improvement". I was patient, albeit ticked, but it's paid off.
I also must say he didn't start at high dosages of 5ASA either, and my UC has really never been as bad as it was initially. I do struggle with low rectal inflammation and am definitely a med-lifer...I may have to not seek a lower dosage of the enemas but stay at twice a week. That's OK if it works...and with that, I may again enquire about
using the 2g for that.
Let me know how your appointment goes...I hope I haven't overwhelmed you with suggestions.
*Heather* Status: maintenance Asacol 6 daily + Salofalk enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux); Effexor XR 75mg(depression); Pulmicort/Airomir (asthma)
~vitamins/minerals/supplements; Probiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!