Hi Britney. I have been on 6MP for over six years and I believe it has stopped working. That is, even if it ever started. My flare started around Memorial Day after only enjoying a seven month remission. The doctor started me at 20 mgm of prednisone but that NEVER does anything. So he finally increased the dose to 40 mgm a week ago. He also increased the 6MP to 100 mgm. I am NOT happy at all with this dose. I feel extremely fatigued. My last white count (done two weeks ago) was 3.1 but my red count is also down. My B12 level is normal. Now my bilirubin is slightly elevated and today I had to go for a liver panel test. Geez, if the disease doesn't kill ya these meds sure will! I also am on Cort enemas nightly and Canasa in the morning. My SCD bood arrived in the mail today. Guess I will give that a shot. I have an appointment with my GI doctor a week from tomorrow. He said I am at the limit where he is able to help me and my next step is to see a specialist at the Univ of Pa Hospital. I cannot take Remicade because I was exposed to the TB virus back in the 60's. So I suppose the next step is to remove my rectum because that is where my UC is located. Oddly, but I suppose gratefully, in the eleven years I have suffered with this, it has never traveled further into my colon. However, it is extremely painful.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Meds as of June 09: Colazal (6 per day), 6MP (50 mgm), Probiotic (upped to 3 per day), Fish oil capsule, calcium, multivitamin, Cort enema nightly, Canasa in morning. Also taking Benicar and Toprol to control high blood pressure. Getting old is a b****.