I finally found a colorectal doctor that realized I have a problem.
I no longer have the fissure just some scar tissue, but during a very painful exam he roated his finger all around my levator muscle and the burning pain was unreal...he thinks I may have a significant levator spasm but I explained to him I may have Prudendal Nerve Entrapment or Prudendal Neuralgia http://www.ic-network.com/forum/showthread.php?t=56454
PNE is serious stuff and the burning pain I'm feeling in my rectum is worse when sitting (except on the toilet seat); tailbone pain is another classic symptom. Many people with severe unexplained pain in the rectal, anal or genital area are often told after nothing can be found it's in their imagination and in fact it turns out to be PN/PNE. There are only about 6 MD's in the US that treat PNE with most work done in France. I pray and hope I don't have PNE; its also very rare. Cyclists seem to get PNE or it can happen from childbirth or an accident or even without a specific cause.
I have often complained about my rectum/anal canal feeling like there is broken glass in there especially upon insertion of rectal meds. The CR doc has me taking hot baths every evening trying to see if the muscle spasms (which he thinks may be the cause of my pain) get better...I sure hope he's right.
The CR doc also agreed to look at my MRI and see if the perirectal and presacral varices that were found in my MRI might be compressing a nerve, Purdendal or not...I believe he is really trying to help me. I have a call setup with Dr Renney in Houston Texas who coordinates PNE surgery...I pray I wont need it as dealing with UC and IBS is more than enough for me to handle.
Take a minute to google prudendal nerve entrapement and you will be amazed at what you learn...I sure was.
I'll be happy to answer any questions.
Dx'd with moderate Pancolits 05/07 better with Pentasa and Cortifoam.
I also take Probiotics, Curcumin, Benefiber and cannot tolerate
artificial sweetners (never could even before UC).
UC Forum Co-Moderator
I am not a healthcare provider. I am offering support and guidance based upon my own conclusions and/or research. ALWAYS consult with a qualified healthcare provider.
Post Edited (bbc) : 7/15/2009 9:12:12 PM (GMT-6)