rowasa every night

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kate22
Regular Member


Date Joined May 2009
Total Posts : 227
   Posted 7/16/2009 12:51 AM (GMT -6)   
does anyone use rowasa every night?  i noticed a lot of you only use it for short periods of time or just a couple times a week.  i'm a bit freaked out because i use it nightly, and have been for a few years!!! 

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 7/16/2009 5:17 AM (GMT -6)   
No need to freak :) Sometimes Rowasa can be used as a maintenance medication especially if your condition is limited to the rectum.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate ALL mesalamines**~Allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis~bulging and herniated discs C5/C6 & C6/C7~Epidural injections (2 series of 3), OA-Celebrex, Tylonel Arthritis and Voltaren Gel
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kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 7/16/2009 7:49 AM (GMT -6)   

I use Cortifoam and doctor had me on three times a day and then two.  He said only decrease to nightly use when I felt better.  Anyway, seems there is no problem using any of the enemas/foams often if necessary.

ElaineNY


 
Senior - diagnosed with proctosigmoiditis - 6/2008   
Cannot tolerate mesalamines.  New specialist (June) - Cortifoam and Anusol three times a day for now.  Hope it works! (finding it impossible to do three times a day however)
 
Probiotic Align, Prilosec for GERD, Gas-X, vitamins, Calcium/D
Tylenol for knees and arthritis.
 
 
 


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 7/16/2009 9:17 AM (GMT -6)   
I agree with Sherry. I used it every night for 3-ish months, then started tapering and am now doing it twice weekly. But, I have pancolitis, so am also on Apriso. If I find that I need to use Rowasa more often to stay in remission for long periods of time, I will. There's nothing to be scared of...it's perfectly safe for nightly use as a maintenance.
Status: Remission since late May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently taking Apriso (4 pills ONCE!! daily), Rowasa twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (25 mg).


MNBeachgal
Veteran Member


Date Joined Jun 2008
Total Posts : 867
   Posted 7/16/2009 12:04 PM (GMT -6)   
I use it nightly, and twice a day if I'm having a flare (at night and in the morning). I've been using it nightly for at least 2 years now as maintenance as once I seem to taper to less the flare always comes back. The way I see it, if it works then its alot safer than using prednisone for a flare and has alot fewer side effects.

quincy
Elite Member


Date Joined May 2003
Total Posts : 30596
   Posted 7/16/2009 12:14 PM (GMT -6)   
kate...do you mean you've used it nightly for years or that you've been using Rowasa for years with varied schedule?

q
*Heather* Status: maintenance Asacol 6 daily + Salofalk enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Meesh
Veteran Member


Date Joined May 2006
Total Posts : 619
   Posted 7/16/2009 2:40 PM (GMT -6)   
My GI would like me to use it every night, but I just can't seem to. Our compromise was Canasa suppositories, which I can and do use twice a day without fail. Maybe if I was able to tolerate the Rowesa I wouldn't be meeting with a surgeon next month. Two years of Remicade have pretty much healed my colon, but my darn rectum is sooooo stubborn. What an a**!
Meesh
47 yr old female, dx'd UC April 27, 2006; mild arthritis in lower back, dx'd May 2008; Osteopenia dx'd 6/08 Achieved almost-remission mid October 2008 (rectum still inflamed)

16 Remicade infusions, current scheduled every 6 weeks: 1st: 7/21/07; most recent: 6/06/09; Current meds & supplements: Lialda, 4 tabs in the morning; Xanax as needed (rarely); Rowesa and/or Canasa; multivitamin w/folate; Culturelle; Fish oil capsules, calcium chews and/or Tums; Vitamin D;

Past meds: Prednisone 4/06-4/08; Entocourt EC; Asacol; Colazal; Venofer (iron) injections Dec '07; Imuran (extremely bad reaction 2/07); Protonix; Lexipro


frombc
Regular Member


Date Joined Oct 2006
Total Posts : 219
   Posted 7/16/2009 3:10 PM (GMT -6)   
My GI put me on Salofalk enemas every night for at least 2 months. He said if the bleeding had stopped after the 2 months to taper, but never go less than every 3rd night.
50 year old female
Dx'd with proctosigmoiditis July/06
Salofalk enemas 4(g) at bedtime every 3rd night
...Aloe
Vit B complex/folic acid
fish oil (pharmaceutical grade)
VSL#3


kate22
Regular Member


Date Joined May 2009
Total Posts : 227
   Posted 7/16/2009 4:18 PM (GMT -6)   
qunicy, in answer to your question, i've used rowasa every night for years.  i can't seem to taper really.

UC since 1994
4 Lialda/day, 15 mg prednisone and tapering (down from 40 mg), rowasa, folic acid, VSL#3, flax oil, vegetarian diet


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 7/16/2009 4:48 PM (GMT -6)   

As I told you all before - because I can't take mesalamines or tolerate many meds my new much experienced gastro doctor has me "pushing" rectal meds!  He wanted me to start Cortiform (the easist for me) three times a day followed by an Anusol suppository.  He says the suppository gets the area the foam goes by!!  Seems to be working although I cannot do (timewise) three times a day - I do twice with foam and 3 with Anusol every day I can (which is most days).  Doing well - just slow!

ElaineNY


 
Senior - diagnosed with proctosigmoiditis - 6/2008   
Cannot tolerate mesalamines.  New specialist (June) - Cortifoam and Anusol three times a day for now.  Hope it works! (finding it impossible to do three times a day however)
 
Probiotic Align, Prilosec for GERD, Gas-X, vitamins, Calcium/D
Tylenol for knees and arthritis.
 
 
 

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