Has anyone used Humira?

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jenjim
Regular Member


Date Joined Apr 2008
Total Posts : 55
   Posted 7/16/2009 9:33 PM (GMT -6)   
I'm considering Humira.  I am 38 y/o female in misery.  I've been flaring off and on for a year and a half or so.  I've had UC for 11 years. I take Imuran, Cortifoam, and am on Pred most of the time (yuck).  I am exhausted and in tons of pain.  My dr has been trying to get me to use Remicade for a while, but I worry about cancer.  Maybe I should worry about that with being on Imuran for 6 plus years, too.  I lean towards Humira cuz' you can do it at home and the whole idea of being at the hospital for 3 plus hours bothers me.  My quality of life has gone down the drain.  I have two yound, active sons who I homeschool and I have to have some energy for my life.  Unfortunately, I have a few other medical probelms that also cause pain, like an ovarian cyst that hasn't gone away in two years with treatment.  This stuff just gets so old.
Thanks for reading.
God Bless.
Jen
 

Anthony1977
Regular Member


Date Joined Jan 2009
Total Posts : 413
   Posted 7/16/2009 9:39 PM (GMT -6)   
Using it right now, Jenjim. I can't say for sure it is working yet, but I have only done the initial 4 shots and then 2 shots 2 weeks later. I do have to say that I have finally been able to get below 20 mg of prednisone. For me, that is gold.

Sweetie31105
Veteran Member


Date Joined Aug 2008
Total Posts : 903
   Posted 7/17/2009 7:48 AM (GMT -6)   
It's the only drug I use. Been using it for over 2 years. Works wonders. But when you first start it, you need some help with other drugs, then slowly get rid of the others. I was on Imuran when I started Humira. It helped. Been off Imuran for 6 months and still doing great! There is one catch though, you have to try Remicade. If you don't respond or have a reaction to it then you will definately be given the ability to take Humira. That's how I got onto Humira. You should ask your doctor about this to make sure, I had to try Remicade first then I switched. Good luck!
27 year old, Married, Female.
Diagnosed with UC since March 2007

Taking Humira since of May 2007 (Currently in remission since May 2007)
Put on Imuran from May 2007 to Jan, 15 2009
Put on Canasa June 25, 2009, off Canasa on June 30th 2009.
*Can't take Asacol, Allergic to Remicade, odd reactions to Canasa went backwards a bit.
*Started minor flare in mid June 2009 but VERY minor. :(


Anthony1977
Regular Member


Date Joined Jan 2009
Total Posts : 413
   Posted 7/17/2009 10:55 AM (GMT -6)   
me either.

Supa
Veteran Member


Date Joined Jul 2008
Total Posts : 748
   Posted 7/17/2009 11:35 AM (GMT -6)   
I'm on it through a clinical trial (and have been told I wouldn't be able to get it otherwise, though who knows if they say that to try and keep me in the trial for the full time).

I have been on it since April '08. The pred in the hospital took me from about 20 bloody BMs a day to about 5ish BMs a day, still heavily streaked with blood. Once I got the initial 4 shots of Humira, I was down to 1-2 BMs a day, no blood at all.

I also take 6 Asacol/day.

There have been a few hiccups along the way, but even when I flared earlier this year, it was very very mild, and using canasa suppositories for a month got it back under control.

I am very happy with it. I know one person in our trial didn't respond, and is trying remicade, and another dropped out because (from the nurse's perspective, mind you, I don't know any of the other trial members and didn't talk to him) even though he *was* responding, he didn't feel it was good enough. But most of the reponse has been very positive!
Laura
 
34 years old, stay at home mom of 2 girls, ages almost 4 and 2.5
 
Diagnosed in 2007
Currently on:
Asacol 6pills/day
Biweekly injections for Humira clinical trial-going well so far!!
Off of canasa because of severe joint pain (side effect)


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 7/17/2009 1:12 PM (GMT -6)   
It depends on your insurance whether or not you have to try Remi first. Some will approve it, and some won't. It's basically a crapshoot. And saw, didn't your doctor write it for arthritis instead of UC? If so, that's why your insurance approved it, as Humira is approved for use in arthritis, but not yet for UC.
Status: Remission since late May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently taking Apriso (4 pills ONCE!! daily), Rowasa twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (25 mg).


Anthony1977
Regular Member


Date Joined Jan 2009
Total Posts : 413
   Posted 7/17/2009 2:19 PM (GMT -6)   
I believe mine was written for Chron's so I guess that could be a reason why as well.

jenjim
Regular Member


Date Joined Apr 2008
Total Posts : 55
   Posted 7/17/2009 2:54 PM (GMT -6)   

Thank you all for the information.  I hope I wouldn't have to try Remi first, but I guess I should be thankful I have decent insurance and a good support system.

Have a great weekend.

Jen


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 7/17/2009 4:14 PM (GMT -6)   
Well, not all docs are willing to bend the rules like that.
Status: Remission since late May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently taking Apriso (4 pills ONCE!! daily), Rowasa twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (25 mg).


WIMOMOFTHREE
Veteran Member


Date Joined Apr 2009
Total Posts : 654
   Posted 7/17/2009 6:09 PM (GMT -6)   
I have to try remi first before I can try humira because of my insurance.  My doc won't say I have chron's so I can do the Humira.  She said if remi doesn't work then I can try it.  Humira would be alot easier for me then remi.  Good Luck! :-)

fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 7/17/2009 6:28 PM (GMT -6)   
Yes, they should try whatever they can, but Remicade essentially works the same way as Humira, and IS approved for us, thus, they don't have to bend any rules to prescribe it.
Status: Remission since late May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently taking Apriso (4 pills ONCE!! daily), Rowasa twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (25 mg).


BenY
Regular Member


Date Joined Aug 2007
Total Posts : 60
   Posted 7/17/2009 8:36 PM (GMT -6)   
Humira didn't do anything for me. I was shocked, frankly, and disappointed. But it wasn't first time medicines haven't done what they "should".
Ben, 40


Symptoms diagnosed 4/07.

Currently taking daily 7.5mg Prednisone, 100mg 6MP, calcium w/Vit D, 1/2 Prilosec (protects stomach from prednisone), fosamax (trying to build bones back up from prednisone effects), Retin-A (helps with back acne from prednisone use), probiotic (20 billion), multivitamin.


Susiebuddy
Veteran Member


Date Joined Feb 2005
Total Posts : 1373
   Posted 7/18/2009 6:08 PM (GMT -6)   
I have also been researching Humira verses Remicade because if this prednisone and Apriso doesn't do the trick, those are my next steps as far as therapy goes... When I went to each drug's website, I found that they have similar side effects.. I actually thought I'd rather try Remicade first than Humira.... I'd check out the websites for each drug too and see what they say.... remicade.com or humira.com

Good Luck! and God bless you too~
Diagnosed with U/C January 31st, 2005, IBS on July 21st, 2006 
 
  Status as of June 30th, 2009 :  Flaring for the last 7 or 8 months with blood, mucus PAIN..... Meds are: Prednisone 60mg daily,  Apriso 2 pills 2x a day.. I take Xanax when needed and Ambien for sleep... Nexium in the am for heartburn..   Culturelle 2 times a day...
 
               http://www.myspace.com/77016897         

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