I'm on it through a clinical trial (and have been told I wouldn't be able to get it otherwise, though who knows if they say that to try and keep me in the trial for the full time).
I have been on it since April '08. The pred in the hospital took me from about
20 bloody BMs a day to about
5ish BMs a day, still heavily streaked with blood. Once I got the initial 4 shots of Humira, I was down to 1-2 BMs a day, no blood at all.
I also take 6 Asacol/day.
There have been a few hiccups along the way, but even when I flared earlier this year, it was very very mild, and using canasa suppositories for a month got it back under control.
I am very happy with it. I know one person in our trial didn't respond, and is trying remicade, and another dropped out because (from the nurse's perspective, mind you, I don't know any of the other trial members and didn't talk to him) even though he *was* responding, he didn't feel it was good enough. But most of the reponse has been very positive!
34 years old, stay at home mom of 2 girls, ages almost 4 and 2.5
Diagnosed in 2007
Biweekly injections for Humira clinical trial-going well so far!!
Off of canasa because of severe joint pain (side effect)