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sirenshooter
Veteran Member


Date Joined Jun 2009
Total Posts : 2012
   Posted 7/17/2009 8:19 PM (GMT -6)   
I don't take Nulev anymore, but I'm just curious. Has anyone else tried it? In my opinion, it tastes okay, but is useless and doesn't do a thing. They gave it to me when I was first diagnosed; I took it in desperation when I got cramps even though it didn't do anything. Just wondering about other people's experiences.
19yr old female
Diagnosed with UC (pancolitis) in 2005 at age 15
2.5 tabs of Azathioprine 1xday / 1 Mesalamine enema nightly
2000mg Fish Oil 1xday / 500mg Turmeric 3xday /
Arthritis in both knees
Also: asthma, acid reflux, and Reynaud's Syndrome


Sunshineonmyface~
Regular Member


Date Joined Sep 2008
Total Posts : 202
   Posted 7/17/2009 8:57 PM (GMT -6)   
It helps for certain types of cramps. It doesn't do anything for me for my UC pain, but it helped the IBS cramps that would literally make me puke. It helps the ones that come, grip, then go, come, grip then go.

quincy
Elite Member


Date Joined May 2003
Total Posts : 30999
   Posted 7/17/2009 11:39 PM (GMT -6)   
You might want to consider asking your doctor for dicyclomine (Bentylol/Bentyl)
*Heather* Status: flaring...Asacol 3 twice daily; Salofalk enemas nightly
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


sirenshooter
Veteran Member


Date Joined Jun 2009
Total Posts : 2012
   Posted 7/18/2009 3:07 PM (GMT -6)   
I don't get too much cramping anymore, but I'll keep it in mind in case I ever flare badly, thanks!
19yr old female
Diagnosed with UC (pancolitis) in 2005 at age 15
2.5 tabs of Azathioprine 1xday / 1 Mesalamine enema nightly
2000mg Fish Oil 1xday / 500mg Turmeric 3xday /
Arthritis in both knees
Also: asthma, acid reflux, and Reynaud's Syndrome

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