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New Member

Date Joined Mar 2008
Total Posts : 9
   Posted 7/17/2009 9:54 PM (GMT -6)   
I had my first remicade treatment on tuesday.  How long, for those of you that are on it, did it really take until you started feeling better?

Regular Member

Date Joined Jul 2009
Total Posts : 66
   Posted 7/18/2009 1:27 AM (GMT -6)   
It takes a few treatments to really feel it start to work. Psychologically for me -3 days after first treatment seemed like a huge improvement.
Age:31 Married with children.
Ulcerative Colitis cause: In 2003 I took Accutane for about 4 months, strong side effects of abdominal cramping and bloody stools.
May 2004: Diagnosed with Left sided UC -should have understood the IBD warning and should've never taken the dangerous drug
known as Accutane.
May 2004- May 2009: Prednisone, Asacol and many other med's that did not work well-Remicade was great for 16 months then suddenly stopped working.
May -June 2009: Pancolitis- chronic 2 month flare up that put me out of work and made me seriously think about surgery.
June 24th 2009: elective colectomy/ileostomy at Barnes/Washington University.
August 2009: planned rectum removal and j-pouch construction.
October-November 2009: planned Reversal.
Summary: Suffered 5 long years with severe Ulcerative Colitis, Anxiety and depression.
No more diseased colon. No more running to the bathroom 20+ times a day. No more cramping and bleeding. Satisfied with first surgery.

New Member

Date Joined Mar 2008
Total Posts : 9
   Posted 7/18/2009 6:14 AM (GMT -6)   
Thnaks for the reply! Hope the rest of your surgy goes well. I feel like we are traveling along the same path! Although I have never taken accutane. Thats the med for acne?

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