Bloating and gas

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Anne07
New Member


Date Joined Jul 2009
Total Posts : 4
   Posted 7/20/2009 4:00 PM (GMT -6)   
I am 32 years old and have been diagnosed with a mild case of UC last February. Since then, I have taken asacol, but because it gave me headaches, the doctor began prescribing me Pentasa 250mg - been doing well ever since, but I find that I have excessive gas when I am on the medication. It is a bit of an embarassment for me because the noise can be very loud and the smell is extremely bad. I have been spending some time with this man, but am embarassed by the noise when I go to the restroom. My bm's are very explosive, especially when I am flaring.

Is there any way to lessen the bloating and the gas? Does anybody else have a problem with the extremely bad gas smell? What is this caused by??
 
Also, when I am in a flare, I find that it is very difficult for me to hold (?) the stool (if that makes any sense). In other words, when I have a bowel movement, it cannot wait, I have to run to the restroom. Sometimes, it makes me want to cry because I cannot hold it and it just comes out even before I can reach the bathroom.

Does anybody have this problem?

I've tried speaking to my doctor, but he doesn't say very much about it. He is mainly only concerned about the number of flares I get.
 
Edited to add a title to your post

Post Edited By Moderator (Red_34) : 7/20/2009 7:20:32 PM (GMT-6)


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 7/20/2009 4:12 PM (GMT -6)   
Your experience is common for UC. Sorry, it sucks.
But if it is the medicine making it worse, it might subside after a while.

You can try gax-x and/or immodium with gas relievers (try small doses), it might help some.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol maintenance for 20+ years; used prednisone & Rowasa for flares.  Probiotics (Ultimate Flora, 50 billion), salmon oil (omega-3) when I can remember. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated wheat/gluten from my diet.
Bad flare in March, used prednisone. Humira denied, started Remicade 4/12 and doing great~ learning what normal is~ wow


Rio in Maryland
Veteran Member


Date Joined Nov 2007
Total Posts : 891
   Posted 7/20/2009 4:17 PM (GMT -6)   
Anne, I'm not sure what you could do for the bloating. Maybe watch what you eat to see whether certain foods cause more bloating.

As for not being able to hold it in, that's what we refer to as 'urgency', and that's a common symptom of UC. Have you tried taking rectal medicines? I find that using rectal medicines targets the inflammation better and leads to less urgency.
Rio, 33 year old male. Diagnosed with UC in 2006
100 mg Azathioprine (stopped), 4800 mg Asacol
VSL#3 & Primadophilus Bifidus, Metamucil
Vitamin E enema or Asacol suppository occasionally


Anne07
New Member


Date Joined Jul 2009
Total Posts : 4
   Posted 7/20/2009 4:18 PM (GMT -6)   

Thank you Flora.

Do you know if Gas-X can be taken with pentasa? Will that pose a problem?

Also, I noticed in your profile that you take probiotics.
I have heard that it is good for the digestive system.
Do you take pills or do you take in yogurt for that, and how are your
symptoms when you take them?


Anne07
New Member


Date Joined Jul 2009
Total Posts : 4
   Posted 7/20/2009 4:22 PM (GMT -6)   

Thank you, Rio.

Yes, the doctor prescribed me rectals, but I am afraid to
get side effects from it eventually. I am actually totally against medicine and
it has take a while for me to finally start being able to take pentasa
on a regular basis.


Rio in Maryland
Veteran Member


Date Joined Nov 2007
Total Posts : 891
   Posted 7/20/2009 4:33 PM (GMT -6)   
I agree that nobody wants to be taking too many medicines, but if you need to take a medicine to get better then don't be too hesitant, as if you don't things might worsen.

I'm speaking from experience here. When I first got diagnosed I was prescribed asacol suppositories, and refused to take them. Two months later things had gotten so much worse that I was put on a course of steroids. At that time, I was new to all this and still in denial about getting UC.

(Also, add a title to your post and you should get more replies)
Rio, 33 year old male. Diagnosed with UC in 2006
100 mg Azathioprine (stopped), 4800 mg Asacol
VSL#3 & Primadophilus Bifidus, Metamucil
Vitamin E enema or Asacol suppository occasionally


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 7/20/2009 4:36 PM (GMT -6)   
If you take probiotics, you will also experience more gas at first, so just beware. But it's a good idea. Find the "live" ones that have to be refrigerated, what you get in yogurt is not strong enough.

I think gas-x can be taken with anything. Immodium may calm your urgency, I do well taking just 1/2 a pill at a time because more might block you up and that is a terrible feeling.

The rectals are good, because they act topically and don't have to go into your system, so if you don't like medicine they actually make the most sense for you. Although you might have to get past being against taking medicine if you want to manage your disease, it's tough. Tougher on your health than medicine, probably.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol maintenance for 20+ years; used prednisone & Rowasa for flares.  Probiotics (Ultimate Flora, 50 billion), salmon oil (omega-3) when I can remember. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated wheat/gluten from my diet.
Bad flare in March, used prednisone. Humira denied, started Remicade 4/12 and doing great~ learning what normal is~ wow


Anne07
New Member


Date Joined Jul 2009
Total Posts : 4
   Posted 7/20/2009 4:52 PM (GMT -6)   
Thank you, Peety and Rio :) Appreciate the information a lot.

Sorry, one last question, I also noticed that you take vitamin E.
How do you find that it helps you with your symptoms?

AMK77
Veteran Member


Date Joined Mar 2008
Total Posts : 678
   Posted 7/20/2009 5:21 PM (GMT -6)   
I think probiotics help tremendously with smelly BM's.
32 yr old female
Mild Pancolitis
UC since 2000 - in remission for most of those 8 years med free.
Cannot tolerate mesalamine. Currently take probiotics and fish oil. Trying Applied Kinesiology & supplements.


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 7/20/2009 6:00 PM (GMT -6)   
Urgency and frequency (up to 20x a day) was my biggest problem when I had my first (and so far only) flare. It's horribly frustrating to have to run to the restroom (and not always make it) and to feel afraid of being too far from a bathroom. So, you're definitely not alone there. I also think you should give the rectal meds a try. They're actually "safer" in terms of side effects, and while it may seem gross at first to use them, I actually don't think they are all that bad. I don't experience any discomfort when using them. Also, give the probiotics a try. :)
Status: Remission since late May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently taking Apriso (4 pills ONCE!! daily), Rowasa twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (25 mg).


jewelknit
Regular Member


Date Joined Jul 2009
Total Posts : 32
   Posted 7/20/2009 6:14 PM (GMT -6)   
In a flare-up and now have to wear a "diaper" in the morning. Hate how it makes me feel but at least it catches everything. I can't get to work in the morning until things calm down. But, the diaper has saved a lot of underwear!

ickypoo
Regular Member


Date Joined Dec 2008
Total Posts : 224
   Posted 7/21/2009 5:24 AM (GMT -6)   
The bloating and gas is the result of food not being digested or absorbed properly. The best way to treat it is to avoid trigger foods and to use quality probiotics. With respect to the latter, I also recommend the refrigerated ones as that will help insure their potency (I have had success with Natren brand).
Diagnosed with UC in 1990.
Current Meds: Sulfasalazine & Folic Acid.
Supplements: fish oil, flax oil, glucosamine, CoQ10, fiber, aloe vera juice, probiotics.
Other: Raw Milk for breakfast. Currently exploring a raw milk fast one day/week.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 7/21/2009 12:22 PM (GMT -6)   
Fibre supplements (recommended to me by my GI) is what got my exsessive gas and bloating under control, taken daily and indefintely....been taking it for 6ish yrs now and still have all the improvements from it.

:)


My bum is broken....there's a big crack down the middle of it! LOL :)


Lou95
Regular Member


Date Joined Dec 2007
Total Posts : 47
   Posted 7/21/2009 11:48 PM (GMT -6)   
Hi,  I also have gas and bloating from Asacol and have noticed that it is worse if I eat certain foods.  I stay away from tomatoes and processed sugars.  I also find that taking a fish oil supplement helps with inflamation.  I hate taking meds, but I do because I hate UC more.  I went into remission very quickly while taking Asacol and I think it was because I took my meds religiously and tried hard to follow the diet restrictions.  Through trial and error I found what I could tolerate food-wise and what really upset my digestive tract.  Just hang in there and don't get discouraged.  My first flare happened right after I started dating a new guy - I know what you're going through.  We were watching a movie on loud surround-sound when he stopped it and asked me "Is that your stomach making that noise?"  It was so embarrassing.  You could hear it across the room it "talked & gurgled" so loud.  Laughing about it might make it easier to deal with.  Guys are usually cooler about bathroom things anyway - I have sons and believe me, nothing grosses them out.  They love bathroom humor. 
Age/Sex:  52 & female
Diagnosed:  2005 pancolitis
Medications:  800 mg. Asacol twice a day - in remission; Two 1200 mg. fish oil supplement nightly.   Effexor-XR 150 mg. daily
 


Blue220
Regular Member


Date Joined May 2008
Total Posts : 191
   Posted 7/22/2009 8:32 AM (GMT -6)   
I had really bad gas/bloating with my increased doses of Lialda. Now that I only take 2 pills a day AND I take Gas-X every night before I go to bed, I feel so much better.

It works for me, and I come from a long history of farters.. ha.
22 years old

Diagnosed with moderate/severe UC June 2007, I've had it since December 2006.

Taking Lialda 3x a day<---NOT ANYMORE. I got pancreatitis from them.
I stopped taking Lialda 8-19-08. Ugh!
All I take now is just my 3 Entocort in the morning, and 1 iron pill in the afternoon.

NOW back on Lialda as of 8-30-08, not the cause of pancreatitis.
Going in for an endoscopic ultrasound on 9-19-08 to check things out.
Still on Entocort and iron. Yay...

Haven't been on here in a while (finally graduated college).
Update as of 5/26/09 - Now taking Imuran 100mg/day.
Taking Caltrate, Iron, and B12. I still take one Lialda a day.. Don't know why..
Something is giving me horrible headaches. =[ At least I'm off the Entocort.


defish
New Member


Date Joined Jul 2009
Total Posts : 1
   Posted 7/22/2009 9:29 AM (GMT -6)   
Hi everybody
have any of you tried ginger for your gas ? I go to the asian store or any super market pick up some ginger slice it up and make a tea with it and use honey insted of sugar. but to warn you the first few time`s it cleans you out ...

AmyWaffle
Regular Member


Date Joined Jun 2009
Total Posts : 173
   Posted 7/22/2009 10:07 AM (GMT -6)   
I've always had good luck with Gas-X for gas. It doesn't seem to interfere with any of my meds (that I know of!).

For the incontinence and urgency, I would definitely get some Depends if it is happening often. They are very thin and no one will notice you have one on. Also, I take one immodium in the a.m. if I am trying to get out the door or something. Of course ask your doctor about that.

I hope you feel comfortable with your prescriptions and medication soon, since without them your UC is very likely to get much worse. Some things in this world cannot be fixed without modern medicines and we are lucky to have access to them.
UC since 1996 (age 20)
Mommy of 2 sweet little girls.
My life is one big flare.

Asacol, Azathioprine, Prednisone, Rowasa
First Remicade 6/22/09

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