UC without bleeding?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

badguts2009
Regular Member


Date Joined Jul 2009
Total Posts : 21
   Posted 7/21/2009 11:54 AM (GMT -6)   
So I had several days of bad D, went to a doc and got put on lialda and a prednisone (40,40,30,30,20,20,10,10). It helped, but did not stop the D completely.

I only had small amounts of blood show up on 2 occasions.

I finally got into the GI docs office yesterday, but I was kind of shocked by his diagnosis... or lack there of. I have a family history of UC and my Dad made it sound like that was what I had, but the doc was not so sure. He said that if I had UC I would see blood more often and have less of a good day/bad day trend and more of a bad all the time trend.

So my question is, are there many people who have been diagnosed with UC that do not have much blood?

I have a scope scheduled in August, but I'm antsy and curious what others think.

Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4538
   Posted 7/21/2009 12:06 PM (GMT -6)   
Did you doctor tell you why you were bleeding then if he didn't think it was UC? Could be an anal fissure or hemmie bleeding I guess. I'm sorry, I don't know the answer to your question. I bleed a lot with my flares, but I think some other people here don't bleed much. Hopefully, they'll chime in. How are you feeling now? I know my doctors did not want to give a diagnosis until they scoped me. I understand how hard it is to wait. Hope you feel better soon.
25 years old; diagnosed March 2007
Currently: I feel almost back to normal...could be in remission finally or very close at least?
Asacol, 4 tabs, 3xday; Rowasa nightly; Viactiv; Metamucil wafers; multivitamin; sublingual allergy drops; Ortho Tri-Cyclen


badguts2009
Regular Member


Date Joined Jul 2009
Total Posts : 21
   Posted 7/21/2009 12:26 PM (GMT -6)   
He didnt really give much insight into why I might be bleeding, he just said typically UC stats at the rectum and works up, so bleeding is usually very evident, so he wasn't sure why I would be seeing only a small amount of blood.

He left it very wide open... I'm guessing thats why I am getting an EGD and colonoscopy, so he can rule out everything but Small intestine problems.

I'm 27 so its nice to see people my age having the same issues. Everyone seems to think it's an "old Man" disease :-P

Sore Tum
Regular Member


Date Joined Jun 2009
Total Posts : 144
   Posted 7/21/2009 1:53 PM (GMT -6)   
I may bleed a smalll amount once maybe twice a week, mucus is my problem.
30 year old, female.
Diagnosed with severe ulcerative proctitis, Mar 2009. (Doc unsure if it's Crohn's).
2 fistulas, 1st op july 2009, now the proud owner of a seton, ?awating sugery for 2nd fistula.
Currently taking, 1200mg asacol TDS, 1g Pentasa supp at night, Probiotics, zinc supplements, Cod liver oil.
Past meds: prednisolone, colifoam ememas.


quincy
Elite Member


Date Joined May 2003
Total Posts : 30995
   Posted 7/21/2009 2:05 PM (GMT -6)   
I believe it would depend on how fragile the mucosal layer is and how much inflammation. As well...you're on an antiinflammatory medication, which could account for some of the confusing symptoms.

UC does come in progression of inflammation, and many of us don't seek professional care until symptoms are quite obvious.

You should make sure you request rectal meds in conjunction with the Lialda after your scope...maybe that will help keep you off pred in the future (which is a good thing).

quincy
*Heather* Status: flaring...Asacol 3 twice daily; Salofalk enemas nightly
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 7/21/2009 2:12 PM (GMT -6)   
I had about 6 weeks of diarrhea with no bleeding. I assumed it was giardia but no, it was my UC. You can have a flare without bleeding.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


basa0806
Veteran Member


Date Joined Feb 2005
Total Posts : 2103
   Posted 7/21/2009 2:55 PM (GMT -6)   
I flared for over a year and never saw blood.
Sam(antha)
20 year old college student diagnosed with UC in March 2005
Remission since January/April 2006-->THREE YEARS!!!!!
Meds: 3 750mg Colazal 2x daily, 25mg Amitriptyline, 75mg Effexor XR for GAD, ortho lo
"If you don't like something, change it. If you can't change it, change your attitude."
Maya Angelou


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 7/21/2009 5:45 PM (GMT -6)   
I didn't have much blood at all during my first (and so far only) flare. Just when I was at my absolute worst of 15-20+ BMs/day. And even then it wasn't super bad.
Status: Remission since late May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently taking Apriso (4 pills ONCE!! daily), Rowasa twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (25 mg).


GLOVE
Regular Member


Date Joined Jul 2009
Total Posts : 321
   Posted 7/21/2009 9:09 PM (GMT -6)   
I hardly ever bleed when I have a flare...I just usually have a lot of mucus and urgency.

Plato8
New Member


Date Joined Aug 2009
Total Posts : 9
   Posted 8/13/2009 7:23 AM (GMT -6)   
badguts2009 said...
So my question is, are there many people who have been diagnosed with UC that do not have much blood?


I was initially misdiagnosed with IBS, and didn't receive a UC diagnosis until 6 years later, largely because I wasn't passing blood & no occult blood was found on a 3-day stool sample. I had severe D, 10-15+ bm's per day, but still no blood except on a handful of times where I really strained.

If you haven't had your scope already, make sure you do. You should also have blood tests to see if there are markers of inflammation in your blood - this helps to establish a UC diagnosis, although the colonoscopy is more definitive.

FairyGen
Regular Member


Date Joined Jul 2009
Total Posts : 142
   Posted 8/13/2009 9:50 AM (GMT -6)   
I don't show obvious blood either...I have a clotting problem and harldy bleed for anything. It has not been obvious that I was bleeding but when they did a fecal ocult test I was positive. The ER initally diagosed me as giradia as well and those test ended up negative. My UC was diagnosed by scope....
Left sided UC: Diagnosed 7/09
Currently on Pred 40mg, Lailda 2.4 once a day
Supplements: Bromelain 3 times a day, Tummeric 3 times a day, Good Belly probiotics 1 time a day. Multi, Vit D, B-complex...
 
currently on the down side of a flair....


PinkBible
Regular Member


Date Joined Jul 2009
Total Posts : 37
   Posted 8/13/2009 9:57 AM (GMT -6)   
Old man disease! Ha! I was 17, my friend was 13, and a daughter of one of my dad's coworkers was 11 or 12 when the UC was diagnosed...don't feel old..

I haven't been bleeding since right before a steroid increase, but I still have the D anywhere from 2x on a good to 5-6 on a not so good day..but I'm on 40mg prednisone

Hope your scope goes well! I just had my 2nd one and it wasn't bad at all. Ask for moviprep, its so much better than other preps. Oh, and I had an EDG last year w/my first colonoscopy and I was able to eat pizza like 30 min later lol
New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, September 22, 2018 3:58 AM (GMT -6)
There are a total of 3,005,633 posts in 329,245 threads.
View Active Threads


Who's Online
This forum has 161790 registered members. Please welcome our newest member, Sachi Rae.
223 Guest(s), 2 Registered Member(s) are currently online.  Details
Steve n Dallas, BOB 46