24 years old, 2 Colonoscopies, 1 Sigmoid On the way, Need HELP, suggestions, PLEASE!!!!

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New Member

Date Joined Jul 2009
Total Posts : 3
   Posted 7/21/2009 7:25 PM (GMT -6)   
At the age of 23 I started off having blood in my stool, so I went to the doctor to get it checked and got referred to a gastro doctor.  On 8/8/08 I had my first colonoscopy, was diagnosed with UC.  I was put on Asacol, Canasa suppositories, then switched me to lialda and prednisone.  None of that helped other than the prednisone, it basically came to the point where the doctor just stared at me and said "your too young"  so I went to get a 2nd opinion.  My 2nd opinion doctor specializes in UC and Crohn's disease.  He performed another colonoscopy so he could see what was going on himself.  After my colonoscopy he switched my medication to colazal and put me back on prednisone.  Since April 28th 2009, I have been on steroids, and I hate them, I still have flare-ups, I went back to the doctor today, and now he wants to do a sigmoidoscopy.  My sigmoid is on August 6th 2009, anyone's opinions/suggestions/comments would be greatly appreciated.
If you have any questions I will be happy to answer, including any prep tips, I know it is rough to go through I don't care who you are.

Post Edited (jmyhny) : 7/21/2009 8:01:42 PM (GMT-6)

New Member

Date Joined Jul 2009
Total Posts : 15
   Posted 7/21/2009 8:26 PM (GMT -6)   
Your doctor is saying you're too young to have UC? I am 21 and have UC since I was 15. Like you, none of the medications work for me! Only thing that helps me is prednisone as well. I'm not exactly sure what a sigmoidoscopy is? I have had plenty of colonoscopy's and endoscopys! I hope they clear up everything for you! I have been struggling with mine for 6 years now, so I know what it is like! I was once on remicade and it worked really well. Me being an idiot, I missed a treatment and never went back. Due to that, the dangers of having a very bad reaction have greatened, causing my G.I. doctor to make me go to a specialist in the disease to see what he thinks I should do. I'm going to see about Humira, and if it doesn't work I'm going through with the surgery. As for you, you're still in the early stages. Once you find out what exactly it is, and if it is UC talk to your doctor about remicade. I've honestly never talked to anyone with UC that has been put into remission through just medication. I've taken asacol, purinethol and flagelle, none of it worked. Prednisone does work, but the frikin side effects suck! I have a prescription for Lialda and plan on trying that (doubt it's going to work. My doctor said it's basically the exact same thing as asacol). But anyways I wish you the best of luck! I've read that a lot of people have had their UC put into remission through remicade/humira so definitely look into that!

Forum Moderator

Date Joined Apr 2004
Total Posts : 23551
   Posted 7/22/2009 5:44 AM (GMT -6)   
Too young?? I don't think so! I was diagnosed at 22. Since you've been put on Colazal I'm assuming you have left sided Uc? Have you ever tried rectal meds?
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New Member

Date Joined Jul 2009
Total Posts : 1
   Posted 7/22/2009 5:54 AM (GMT -6)   
I was diagnosed with UC at 24, lived with the disease for 10 years and finally had surgery. Diagnosed with interderminate colitis, they performed a complete ileostomy. Although the decision to have body-changing surgery was very difficult, it was such a good move. I have lived with an ilestomy (with very few complications) for 17 years now. There is no more medication, no running to the bathroom, no pain!

Not that surgery is for everyone, but please get a wonderful physician...they are out there.

I would strongly recommend looking into cutting out dairy, wheat and gluten. I have done a lot of research on diet and this disease. Wish I'd cut wheat out earlier. Perhaps no surgery would have been needed. Body Ecology Diet and Gluten Free diet books will help. Good luck!

Regular Member

Date Joined Jun 2009
Total Posts : 90
   Posted 7/22/2009 7:57 AM (GMT -6)   
As you can read you are not too young!  I was diagnosed in my mid-40's, my age is not the typical either.  However, when I was taking minocycline for my mid-life acne...that gave me this disease. 
A sigmoidoscopy is a shorter scope through the rectum up to the sigmoid part of the colon....basically left sided colon.  Not sure why they want to do that if you already had 2 colonoscopies.  Making brief adjustments to your diet may help with the pain, like a low reside diet....basically no fiber foods.  Did they give you a blood test to test if you have UC for sure and not Chrons?  I was on Lialda (another 5ASA)for about 1 year, took 4 tablets a day (the max)  It helped, but not completely, now I just started Remicade (still on loading dose), my symptoms have improved greatly and off of prenisone.  You maybe ready for the stronger meds the "big guns" like Remicade or Humira.  Remicade has been approved for UC, but Humira is not yet so insurance probably will not pay for Humira unless you fail with the Remicade and jump through many hoops.  Humira will be approved probably within 2 years (the FDA is soooo slow).  MD's will start out with the main stay meds before they treat with the stronger meds.  This is a frustrating disease because everyone is sooo different, but if you do your part, eat the foods that works for you, (like no raw vegs, no carbinated drinks, fresh fruit bother some people, caffeine, etc.) ....but remember foods will not cure the inflammation, but may help ease the pain a bit.  Once you are in remission (with the meds that work for you) then you can bring in some of the foods with higher fiber.  I hope this helps.  Hang in there, this forum is very, very helpful with many young people with this disease.
Look up low reside diet under the www.mayoclinic that may give you great info. 
Hope this helps.

Regular Member

Date Joined Apr 2007
Total Posts : 194
   Posted 7/22/2009 8:43 AM (GMT -6)   
I had just turned 16 when I was diagnosed. I ended up on steroids (after a month in the hospital) for the rest of my junior and senior years in high school. My dosage got reduced but I was still taking a low dosage all through college. I had moon face for a long time. I ripped up every picture of me during that time.
So no, you are not too young. It's not a fun thing to go through as a young person. I am now 63 and still have UC but it is more mild now. But I have lived a full life. it is possible.
diagnosed with UC in 1962
regualr meds:
Asulfadine (500mg tablets, 6 daily)
Folic Acid
Zantac as needed
open heart surgery in 2005 for removal of aortic root aneurysm

Regular Member

Date Joined Jun 2009
Total Posts : 173
   Posted 7/22/2009 9:15 AM (GMT -6)   
From what I have read, the 18-22 timeframe is a common age that UC manifests. Hang around and you will find many of the posters on this board are currently in their 20s. I'm not sure what your specific question is, but stick around and you will find lots of resources and support.
UC since 1996 (age 20)
Mommy of 2 sweet little girls.
My life is one big flare.

Asacol, Azathioprine, Prednisone, Rowasa
First Remicade 6/22/09

Veteran Member

Date Joined Feb 2005
Total Posts : 2103
   Posted 7/22/2009 11:42 AM (GMT -6)   
You are so NOT too young!! I was diagnosed at 16 with problems showing up at 15!
20 year old college student diagnosed with UC in March 2005
Remission since January/April 2006-->THREE YEARS!!!!!
Meds: 3 750mg Colazal 2x daily, 25mg Amitriptyline, 75mg Effexor XR for GAD, ortho lo
"If you don't like something, change it. If you can't change it, change your attitude."
Maya Angelou

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