I think consistency is the key....and really, you should still be on the 5-ASA meds.
It's no doubt you're trying to micromanage your symptoms. Impossible to maintain any kind of consistency when emotions connect with your colon as well.
hang tough....we all flare during our lifetime, but knowing what to do is very helpful.
I personally believe, although with NO proof, that pred can set patients up with some sort of med failure where 5-ASA is concerned. This could be based on the fact that it takes longer, it's on-going, and may need maintenance. Much is left up to the patient to recognise symptoms and with pred, there's a huge improvement with much regression during tapering.
Unfortunately, you may be putting all your hopes in one basket and not looking at it as a learning process.
You are being patient with the diet and the fact that you have support through that is allowing you to continue.
It's not an all or nothing...eventually, you'll look back and see the progress.
*Heather* Status: flaring...Asacol 3 twice daily; Salofalk enemas nightly
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux); Effexor XR 75mg(depression); Pulmicort/Airomir (asthma)
~vitamins/minerals/supplements; Probiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!