Hello Kitty blood results

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Hellokitty
Veteran Member


Date Joined Mar 2009
Total Posts : 765
   Posted 7/22/2009 5:44 AM (GMT -6)   
Is there anyone interested in my blood results after 6 weeks of being on raw foods.
Female 32 years old
 
Diganosed ulcerative colitis November 2007
Present medication- 1X 500mg pentasa in the morrning and 1 X250g Asacol every other evening
Diet- Back on the raw foods.
 
Other medical problems- Born with asthma- no medication taken for this.
dyslexia- found out that many people with learning difficulties also have food sensitivity


mumbles
Regular Member


Date Joined Dec 2008
Total Posts : 199
   Posted 7/22/2009 10:14 AM (GMT -6)   
Sure, I am.
Asacol-12 a day
1 Culturelle
1 Canasa
5g Fish oil supplements
1 Vitamin
50 mg 6MP
Gluten-free and lactose-free diet


quincy
Elite Member


Date Joined May 2003
Total Posts : 30586
   Posted 7/22/2009 4:09 PM (GMT -6)   
Absolutely post them for everyone...regardless of those who might not be interested. Your information will be helpful to many who are following your situation.

q
*Heather* Status: flaring...Asacol 3 twice daily; Salofalk enemas nightly
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Hellokitty
Veteran Member


Date Joined Mar 2009
Total Posts : 765
   Posted 7/22/2009 4:14 PM (GMT -6)   
Ok mumbles I will post just for you. I wasent going to if no one wanted to know.

Its been really weird. Ive only done this because I am so sick of this disease. Im sick of feeling tired and Im sick of losing weight and having urgencies. I think I would rather try any extreme diet than live with this.

Any way. The blood tests were absolutely normal. No inflammation was found. The only thing which was a bit higher than average was potassium. Mine was 4.8 and the normal is 4.7 . The doc said nothing to worry about with the potassium its more or less normal. I have gained some weight back since my last visit. I was 48 kg (105lb) and now I am 51kg (112lb). I am only 5 foot 1 inch tall so it doesn’t look too bad.

The doctor was really impressed with the bloods. I feel so happy. The weird thing is was that my body rejected the meds. Especially the asacol. It was like my bum would try to spit it out during the night. I know this happens but not like it was happening to me on the raw foods. I cant really explain the feeling that well.

I will keep everyone posted. I really don’t know until I have been doing this 6 months. And if then I feel wonderful I will post everyone I can.
Female 32 years old
 
Diganosed ulcerative colitis November 2007
Present medication- Med Free 
Diet- Back on the raw foods.
 
Other medical problems- Born with asthma- no medication taken for this.
dyslexia- found out that many people with learning difficulties also have food sensitivity


Hellokitty
Veteran Member


Date Joined Mar 2009
Total Posts : 765
   Posted 7/22/2009 4:14 PM (GMT -6)   
Oh sorry quicy I will post them for you too.
Female 32 years old
 
Diganosed ulcerative colitis November 2007
Present medication- Med Free 
Diet- Back on the raw foods.
 
Other medical problems- Born with asthma- no medication taken for this.
dyslexia- found out that many people with learning difficulties also have food sensitivity


Hellokitty
Veteran Member


Date Joined Mar 2009
Total Posts : 765
   Posted 7/22/2009 4:19 PM (GMT -6)   
Oh i didnt say that I honestly felt my colon healing wile I have been doing this. My poos are amazing. The people I have been working with said they would be and they were right. My poos are formed and no signs of any mucus. Ive never had such good poos in my life. And they feel good to do as well. So far so good.

If you want to watch more then come and visit me on (www.rawfoodsupport.com)

there are lots who have healed uc there. They said it would happen. Could they be right? I want to do this longer.
Female 32 years old
 
Diganosed ulcerative colitis November 2007
Present medication- Med Free 
Diet- Back on the raw foods.
 
Other medical problems- Born with asthma- no medication taken for this.
dyslexia- found out that many people with learning difficulties also have food sensitivity


Hellokitty
Veteran Member


Date Joined Mar 2009
Total Posts : 765
   Posted 7/23/2009 1:33 AM (GMT -6)   
Well i had a through back last night. I had some mucus. And I jumped on my pentasa. I ate some sugary dressing on a salad and bam it hit me. mucus, no blood no d just the mucus. i am using fruit to see if it will clear. I will keep everyone posted

Who knows maybe diet does not work for me. But dont doubt it because it does work for some. Ive met loads of people who it worked for. it just doesnt work for everyone.
Female 32 years old
 
Diganosed ulcerative colitis November 2007
Present medication- Med Free 
Diet- Back on the raw foods.
 
Other medical problems- Born with asthma- no medication taken for this.
dyslexia- found out that many people with learning difficulties also have food sensitivity


quincy
Elite Member


Date Joined May 2003
Total Posts : 30586
   Posted 7/23/2009 1:36 AM (GMT -6)   
hey, maybe it's just IBS you experienced,


When you say you jumped the Pentasa..you mean, started it again?
*Heather* Status: flaring...Asacol 3 twice daily; Salofalk enemas nightly
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Hellokitty
Veteran Member


Date Joined Mar 2009
Total Posts : 765
   Posted 7/23/2009 5:06 AM (GMT -6)   
Well I will treated with both ends last night. 1 asacol and 2 pentasa. Im not going to the loo lots. I am careful about that mucus stuff and I know it was inflamation as I tried the asacol and my bum didn't reject it. It just felt normal. When my bum rejects it because there is no inflamation I get this burning felling. Then loads of gas. Thats why I had to stop taking them. Any way on the raw foods form this is what they say about me. here is rawdanceruk healed from chrones. her statement to me was this:


calm down

this isnt a magic wand, I had tonnes of flares, bleeding, being bedridden etc whilst healing..

everything takes time

probably the dressing has irritated you

a few bm and a bit of mucus..isnt a flare.. calm down. you will make yourself ill!!

simplify your food down, lots of water and rest

you need to RELAX sweetie!!

take it easy ok!



Boy do these people know me. I panic alot.
Female 32 years old
 
Diganosed ulcerative colitis November 2007
Present medication- jumbed back on pentasa 500mg 1 asacol- remember always treat from both ends- this is really good advice and dont ever doubt it.
Diet- Back on the raw foods.
 
Other medical problems- Born with asthma- no medication taken for this.
dyslexia- found out that many people with learning difficulties also have food sensitivity


Hellokitty
Veteran Member


Date Joined Mar 2009
Total Posts : 765
   Posted 7/23/2009 5:16 AM (GMT -6)   
So I will give this a few months. It took her 6 months not 6 weeks. It depends on you they say. so all I can do for now is go by Im not going to the loo loads, thats fine. I don't feel sick thats fine. No blood. Thats good. Well all i can say is im not going to give up for a bit of mucus. but yea im going to see how my body takes the asacol aging to night

At least if this diet means less flares while on meds and not having to go to pred or any of the others I will be happy. The problem was for me was that my meds were not working as well as they did before. I can live with pentasa I cant live with pred. no one can. That durg if your dependent will kill you. Docs don't say that but thats what it does. Thats why they dont' want you on it for long.
Female 32 years old
 
Diganosed ulcerative colitis November 2007
Present medication- jumbed back on pentasa 500mg 1 asacol- remember always treat from both ends- this is really good advice and dont ever doubt it.
Diet- Back on the raw foods.
 
Other medical problems- Born with asthma- no medication taken for this.
dyslexia- found out that many people with learning difficulties also have food sensitivity


quincy
Elite Member


Date Joined May 2003
Total Posts : 30586
   Posted 7/23/2009 12:58 PM (GMT -6)   
I think consistency is the key....and really, you should still be on the 5-ASA meds.

It's no doubt you're trying to micromanage your symptoms. Impossible to maintain any kind of consistency when emotions connect with your colon as well.

hang tough....we all flare during our lifetime, but knowing what to do is very helpful.

I personally believe, although with NO proof, that pred can set patients up with some sort of med failure where 5-ASA is concerned. This could be based on the fact that it takes longer, it's on-going, and may need maintenance. Much is left up to the patient to recognise symptoms and with pred, there's a huge improvement with much regression during tapering.

Unfortunately, you may be putting all your hopes in one basket and not looking at it as a learning process.

You are being patient with the diet and the fact that you have support through that is allowing you to continue.

It's not an all or nothing...eventually, you'll look back and see the progress.

quincy
*Heather* Status: flaring...Asacol 3 twice daily; Salofalk enemas nightly
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Hellokitty
Veteran Member


Date Joined Mar 2009
Total Posts : 765
   Posted 7/23/2009 1:17 PM (GMT -6)   
True. I did come off the meds too fast. I know that when I wasnt having the inflamation the asacol was a bad thing. I was better not taking it. But the pentasa I could have still taken. I wouldnet really know if my body would reject it or not. The asacol though burns a colon that is not inflamed.

This is a leaning process. and I do feel better for going raw. my allergis are reduced. My panick attacks still exsist but are less. and I have had a couple of days of feeling really strong. I loved the feeling.

I like the words treat from both ends as it makes since, but what if your colon is not inflamed and the asacol is just burning you.
Female 32 years old
 
Diganosed ulcerative colitis November 2007
Present medication- jumbed back on pentasa 500mg 1 asacol- remember always treat from both ends- this is really good advice and dont ever doubt it.
Diet- Back on the raw foods.
 
Other medical problems- Born with asthma- no medication taken for this.
dyslexia- found out that many people with learning difficulties also have food sensitivity


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 7/23/2009 1:22 PM (GMT -6)   
I don't think the mesalamine enema (your enemas are the asacol brand, right?) burn a non-inflammed colon. I don't have any "proof" (in terms of visual images from a c-scope) that my colon isn't inflammed, but I'm certainly not having any symptoms at the moment and the enema isn't bothering me at all. Besides, the active ingredient is the same (mesalamine) in pentasa and asacol. It's just that one gets to the colon via the mouth and the other gets to the colon via the rectum.
Status: Remission since late May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently taking Apriso (4 pills ONCE!! daily), Rowasa twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (25 mg).


quincy
Elite Member


Date Joined May 2003
Total Posts : 30586
   Posted 7/23/2009 1:22 PM (GMT -6)   
no, the asacol doesn't burn you...it's the sole reason, I believe, that after 20 years my risk of colon cancer or for cellular change has been decreased. I also have UC-related liver disease which increased the cancer risk.

Keeping the colon nice and calm is the point with UC....slow festering inflammation that's not felt isn't a good thing.

My UC has never been as bad as initially....and that, is solely from being loyal to my meds.

I don't know where you got the idea that it burns...but do keep in mind that some cannot take them at all.

Remember as well, that if we believe we are doing something helpful for ourselves, no matter what, it gives us some emotional relief.

Belief in oneself is a good thing as long as one doesn't use it to ignore important symptoms that could be a detriment to one's existence.
 
we all cope in varying ways.

quincy


*Heather* Status: flaring...Asacol 3 twice daily; Salofalk enemas nightly
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Hellokitty
Veteran Member


Date Joined Mar 2009
Total Posts : 765
   Posted 7/23/2009 1:48 PM (GMT -6)   
hmm i guess this is hard to explain though. i didnt think that it might burn me or anything when I was using it. I have been using asacol for a long time. the porblem was when the inflamation decreased. and it did because the bloods said so, i was still using it but then it started to make my colon feel like it was on fire. like I struk a match and stuck it up my bum. Thats what I ment. then at night time i would wake up with this gasy thing and my bum was like trying to spit it out.

Well I had that bit of mucus and when i used the asacol it felt fine. I didn't have that spiting bum thing either.
Female 32 years old
 
Diganosed ulcerative colitis November 2007
Present medication- jumbed back on pentasa 500mg 1 asacol- remember always treat from both ends- this is really good advice and dont ever doubt it.
Diet- Back on the raw foods.
 
Other medical problems- Born with asthma- no medication taken for this.
dyslexia- found out that many people with learning difficulties also have food sensitivity


AMK77
Veteran Member


Date Joined Mar 2008
Total Posts : 678
   Posted 7/23/2009 2:15 PM (GMT -6)   
So happy that you have found something that works for you! :-)
32 yr old female
Mild Pancolitis
UC since 2000 - in remission for most of those 8 years med free.
Cannot tolerate mesalamine. Currently take probiotics and fish oil. Trying Applied Kinesiology & supplements.


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16277
   Posted 7/23/2009 2:51 PM (GMT -6)   
I emailed you Kitty
Diagnosed with mild proctitis in March 2007: Treated with Canasa (as needed)
December 08: Began treating with Asacol 400mg (9/day) + Canasa 2x/day - Anemic
May 09: Off Canasa, taking Asacol (9/day)
Back on Canasa every other night + Asacol (9/day) + Probiotics + Iron
Reducing to 6 Asacol/day + Canasa + Probiotics + Iron - So far so good!!! -SPOKE TOO SOON! Back to 9/day...


Hellokitty
Veteran Member


Date Joined Mar 2009
Total Posts : 765
   Posted 7/23/2009 3:01 PM (GMT -6)   
Well the bad news is today I went home from work today as I was to tired to cope. my own fault for stressing over a bit of mucus last night and getting no sleep at all. Ive seen it before any way, dont know why I flew off the rails.

The good news is I had a 2nd bm with out any signs of mucus. So today I have had 2 bms no more. No D no blood. I guess Im not flaring. Keep praying for me please. you never know UC can just turn on you when you least expect it.
Female 32 years old
 
Diganosed ulcerative colitis November 2007
Present medication- jumbed back on pentasa 500mg 1 asacol- remember always treat from both ends- this is really good advice and dont ever doubt it.
Diet- Back on the raw foods.
 
Other medical problems- Born with asthma- no medication taken for this.
dyslexia- found out that many people with learning difficulties also have food sensitivity

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