Desperate for Help!

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Shelli21185
New Member


Date Joined Jul 2009
Total Posts : 1
   Posted 7/22/2009 7:14 PM (GMT -6)   
So.. I'm brand new here and hoping I can get some advise.
 
I'm 24 years old, diagnoised with graves disease about 3 years ago, but show no side effects from it. about 3 years ago, I started having issues when eatting what I thought was fatty foods. I would become bloated and uncomfortable for hours after eatting certain meals. about a year ago, I decided to cut all dairy out of my diet and go completely low fat on every thing I eat. My normal day consists of a small bag of lifesaver gummies, a sprite, and maybe a healthy choice low fat steamer (which hurts me every time I eat it). I absolutely CAN'T eat anything until around 6 o'clock in the evening bc nothing will digest and can't afford to be in pain and in the bathroom all day while at work. I'm at a complete loss. I've been questioned by my work with them thinking I have an eatting disorder because they haven't seen me eat anything while I'm there in about 2 years and at 5'5 weighing 100 pounds, I'm not even looking healthy anymore.
 
To give a little background. Pretty much any food I eat gives me diarrea with TERRIABLE cramps. It doesn't seem to matter anymore if its low fat or not, I still end up in the bathroom within an hour after eatting it. (shorter if its higher in fat) I was just given the test to do the stool sample by my doctor and as gross as this sounds.. its basically mucus and blood. And the only meal I have eatten all day was a small amount of baked turkey plain which sent me to the bathroom within 40 minutes. Now, I know this isn't normal. I have had a my gullblatter tested and its fine, but I know something is wrong!! Can anyone give me any adivse??
 
 

Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 7/22/2009 7:24 PM (GMT -6)   
Maybe you should get food sensitivity testing. I had it done at a Naturopathic doc's office. Then you can identify for certain what it is that bothers you so. So often I didn't feel good after eating, and learning I was intolerant (not quite allergic) to gluten and a few other things helped a lot.
You probably also need a colonoscopy to see what's going on in your gut. If the sample shows blood, expect that will be next.

Sorry you are suffering so!
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol maintenance for 20+ years; used prednisone & Rowasa for flares.  Probiotics (Ultimate Flora, 50 billion), salmon oil (omega-3) when I can remember. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated wheat/gluten from my diet.
Bad flare in March, used prednisone. Humira denied, started Remicade 4/12 and doing great~ learning what normal is~ wow


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 7/22/2009 7:24 PM (GMT -6)   

Just keep working with your doctor to get an answer.  Sometimes it take a while for these problems to be diagnosed. 

ElaineNY


 
Senior - diagnosed with proctosigmoiditis - 6/2008   
Cannot tolerate mesalamines.  New specialist (June) - Cortifoam and Anusol three times a day for now.  Hope it works! (finding it impossible to do three times a day however)
 
Probiotic Align, Prilosec for GERD, Gas-X, vitamins, Calcium/D
Tylenol for knees and arthritis.
 
 
 


Susiebuddy
Veteran Member


Date Joined Feb 2005
Total Posts : 1373
   Posted 7/22/2009 7:31 PM (GMT -6)   
Hello...

I would definately seek the advice of a Gasto Interologist... you need to be seen by a specialist, if you have mucus and blood especially.. You could have something as simple as hemmies and a bad case of IBS, but it could be more serious like U/C... I would hope he orders a colonoscopy (as much fun as the prep is.. lol) but you definatley by my opinion need to be seen by a GI. I had mucus and blood for about 2 months before I finally got scared enough to see a Dr.. and when my GP heard the word blood, he immediately referred me to a GI.. I had a colonoscopy 3 days after my consult with him and was diagnosed about 1 week later when the biopsies came back positive for U/C... Ive had ups and downs since then, but at least I know what I'm dealing with and that in itself is a relief...

Good luck and keep us posted~~!!
Diagnosed with U/C  (Proctitis) January 31st, 2005, IBS on July 21st, 2006 
 
  Status as of June 30th, 2009 :  Flaring for the last 7 or 8 months with blood, mucus PAIN.....
Meds are: Prednisone 60mg daily, 
Apriso 4 pills 1x a day.. .YEA! 
I take Xanax when needed and Ambien for sleep... Which is every day and night with all this darm PRED..
Nexium in the am for heartburn due to Prednisone..   Culturelle 2 times a day...
 
               http://www.myspace.com/77016897         


Rio in Maryland
Veteran Member


Date Joined Nov 2007
Total Posts : 891
   Posted 7/22/2009 7:36 PM (GMT -6)   
You haven't mentioned whether you have ulcerative colitis or not, so what does you doctor think is going on? Or are your symptoms because of graves disease?

No matter what, your diet isn't healthy. If you're having trouble with eating solids during the day, then try to drink some healthy nutrition -- vegetable juices, liquid supplement meals (not liquids with artificial flavors and sugar like Sprite).

However, it's still not easy to tailor a sufficient diet from liquids, so I would highly recommend seeing a nutritionist. If you're not giving your body sufficient nutrition then you're not giving it much of a chance to overcome whatever problems may be going on.

Also, when you eat solids try to eat foods that might be easier to digest. Are there any food that don't have you running to the toilet soon afterwards?

Hope you're better soon.
Rio, 33 year old male. Diagnosed with UC in 2006
100 mg Azathioprine (stopped), 4800 mg Asacol
VSL#3 & Primadophilus Bifidus, Metamucil
Vitamin E enema or Asacol suppository occasionally


poopy67
Regular Member


Date Joined Jun 2009
Total Posts : 23
   Posted 7/22/2009 8:00 PM (GMT -6)   
sounds like celiacs try going with out anything with wheat in it and i mean no wheat..its in everything.

fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 7/22/2009 9:56 PM (GMT -6)   
I agree that you need to see a gastroenterologist and try to eat a healty diet; maybe consider seeing a nutritionist as well. Gummy lifesavers and sprite are definitely *not* healthy foods just because they are low fat.
Status: Remission since late May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently taking Apriso (4 pills ONCE!! daily), Rowasa twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (25 mg).


gurgling tummy
Regular Member


Date Joined Aug 2006
Total Posts : 166
   Posted 7/22/2009 10:25 PM (GMT -6)   
You might want to try and get some probiotics like acidophilus, you can get them at any grocery store now it seems, I get mine from GNC and that is what my GI recommends for me to take. They might be able to help things go through your intestines with less problems until you can get some help from the doctor. Even if you don't have UC they will still help with changing the flora in your colon and make it easier to eat. I would definitely stay away from the gummi candy, sometimes the artificial sweeteners can cause problems. I agree with trying to get a supplement drink, try drinking an ensure in the morning instead of the candy and soda.
 
I would definitely get your doc to refer you to a GI, but he is at least trying to find something by doing the stool test. Trust me nothing you can say on here we haven't all been through. I just did another stool test 2 weeks ago. Hang in there, we are all here for you. Let us know what the doctor says and if he puts you on any medication. But I would start on the probiotics as soon as possible. Don't get the new "colon health" meds that are coming out now, they hardly have any probiotics in them at all. Until then (((((((HUGS))))))
Emilie
*~~*Emily*~~*
Diag. Aug 06 (Proctosigmoiditis), finally diagnosed with Fibromyalgia 12 August 08, Paxil (1 a day) for Depression & anxiety, Azathioprine, Morphine (three a day) for pain, Flexeril (three a day), Tramadol (as needed for breakthrough pain), Fioircit (for migrains), Phenergran (for nausea), Omeprazole (for gerd from the pred), Ambien (to actually get some sleep every once in a while), Calcium (for osteopenia), aloe juice (2Xs a day), B-12 (injections weekly and tabs daily), Folic Acid (1 tab daily), Tylenol Sinus (three times a day, darn you Florida), Acidophilus (of course).

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