j-pouch surgery

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Date Joined Jul 2009
Total Posts : 15
   Posted 7/22/2009 10:20 PM (GMT -6)   
How many trips to the bathroom are you likely to have after you are done healing from the surgery and everything? Also, are the urges nearly as bad as a UC flare up? I'm at the last straw, I've tried everything besides Humira, and have struggled with UC flare ups for 6 years so I'm wondering if the J-pouch surgery is the way to go?

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Date Joined Feb 2006
Total Posts : 5698
   Posted 7/23/2009 7:18 AM (GMT -6)   
There is no urgency with a jpouch. I have no idea how often I empty my pouch but if I guess it would be 6-8 times per day. Most of those times are when I urinate. Do you know how often you urinate per day? Emptying the pouch is as quick as peeing so all those days of prolonged visits to the toilet are gone. I would recommend a consultation with the best CR surgeon in the largest city near you. Ask your surgeon for a list of his patients to speak to. Visit www.j-pouch.org for more information.

I have a very active life. I enage in a lot of international travel and long distance hiking in the range of 100-200 miles. If the jpouch was not a viable option and was similar with life with UC, I wouldn't be able to do these things. Life with a jpouch is different than life with a healthy colon but life with a jpouch exceeds life with unrepentent UC.

dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free

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