Do you know the extent of your UC? If it extends beyond the left side, enemas alone are unlikely to control it. If you're unable to tolerate Pentasa and other 5-ASA's (Asacol or Colazal), have you tried Sulfasalazine? It's an older drug, but quite effective for some.
Other treatments you might consider are the immunosuppressants, 6-MP or Azathioprine. They bring a lot of people under control also. It sounds as if you're in the UK, so I believe Remicade may not be available to you, but it has been a miracle drug for many of us.
Are you being followed by a GI consultant? You should be, and you should be having a colonoscopy periodically to monitor your condition and check for pre-cancerous lesions.
Have you seen a surgeon? Most people who have their colons removed now have an artificial rectum constructed from their small bowel so they don't have to wear a bag, but can eliminate on the toilet as usual.
Do you know why your husband is so set against surgery? Does he know how this disease affects your life?
I'm glad you found this forum, and I'm sure others will post to talk about
their dietary experiences. I've found that changing my diet has no effect on my UC, so can't help with that.
Ulcerative colitis forum co-moderator
Moderate to severe left-sided UC diagnosed 2001.
Flared for 5 years, finally in remission with Remicade since March 2006.
Avascular necrosis in both shoulders is my "forever" gift from steroids.
Colazal, Remicade, Nature's Way Primadophilus Reuteri.
"My life is an ongoing medical adventure"