Is everyone skinny with IBD

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Hellokitty
Veteran Member


Date Joined Mar 2009
Total Posts : 765
   Posted 7/23/2009 12:33 PM (GMT -6)   
Hi everyone,
 
I was at the clinic yesterday and everyone there with IBD was really skinny. Im skinny so Im wondering if everyone is skinny?
Female 32 years old
 
Diganosed ulcerative colitis November 2007
Present medication- jumbed back on pentasa 500mg 1 asacol- remember always treat from both ends- this is really good advice and dont ever doubt it.
Diet- Back on the raw foods.
 
Other medical problems- Born with asthma- no medication taken for this.
dyslexia- found out that many people with learning difficulties also have food sensitivity


TLB37
Regular Member


Date Joined Dec 2008
Total Posts : 79
   Posted 7/23/2009 12:39 PM (GMT -6)   
I wish i was lol but i'm not . I'm trying to lose some weight right now i have lost 28lbs
    Female 37
 
   20 years of Ulcerative Colitis
 
  meds,  2 Lialda, 3 Azathioprine, 1 Celebrex, Cymbalta, Mirtazapine,
               TLB ( :


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 7/23/2009 12:58 PM (GMT -6)   
Nope. I'm 5'8", have a very large frame (broad shoulders, etc) for a girl, and am what I would consider a healthy weight for my height and frame.

I would like to add (this is the "edited" part) that when I was flaring, I lost a LOT of weight.  I started flaring in November, and by the end of January, I was 25 lbs below my pre-pregnancy weight, and I'd gained about 25 lbs during pregnancy.  I had lost quite a bit of my baby weight before I started flaring, though, because I was breastfeeding.


Status: Remission since late May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently taking Apriso (4 pills ONCE!! daily), Rowasa twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (25 mg).

Post Edited (fruitgirl) : 7/23/2009 12:20:35 PM (GMT-6)


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 7/23/2009 1:05 PM (GMT -6)   
No, not everyone is thin. I'm a bit overweight, actually. My GI says that the higher in the colon the UC starts, the more likely you are to have trouble maintaining weight, and the thinner you may be.
Judy
 
Ulcerative colitis forum co-moderator
 
Moderate to severe left-sided UC diagnosed 2001.
Flared for 5 years, finally in remission with Remicade since March 2006.
Avascular necrosis in both shoulders is my "forever" gift from steroids.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. 
"My life is an ongoing medical adventure"
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30674
   Posted 7/23/2009 1:15 PM (GMT -6)   
I inherited my thinness and was always lower than the low range of normal weight-wise all my life till I got UC....then I plummeted to 109 on a 5'8 frame. Not pretty.

I've since gained my weight back...and more! Being middle aged helped me to feel normal weight. I was 20 pounds heavier a few years ago, now I'm in the normal range around 140.

q
*Heather* Status: flaring...Asacol 3 twice daily; Salofalk enemas nightly
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Hellokitty
Veteran Member


Date Joined Mar 2009
Total Posts : 765
   Posted 7/23/2009 1:18 PM (GMT -6)   
Im glad to hear that some of you are over weight. I wish I was a little over weight but I never have been. Im always skinny. Even when I ate burgers and frys. I never budg over 114lb. That was my max weight. When your skinny you feel a bit vunerable in the world. Im also 5 foot 1 and I just feel that Im a weakling. I want to feel strong. I feel that if you are a bit heavier then you feel stronger

Do you guys feel that you are weaklings?
Female 32 years old
 
Diganosed ulcerative colitis November 2007
Present medication- jumbed back on pentasa 500mg 1 asacol- remember always treat from both ends- this is really good advice and dont ever doubt it.
Diet- Back on the raw foods.
 
Other medical problems- Born with asthma- no medication taken for this.
dyslexia- found out that many people with learning difficulties also have food sensitivity


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 7/23/2009 1:23 PM (GMT -6)   
Nope, I don't feel like a weakling. Like I said, I've got a pretty broad frame for a girl. If I happen to put my hand on another woman's shoulder for some reason, I usually think they feel really small! I also have a 20+lbs nine-month-old that I haul around all the time, and I've always done quite a bit of physical work. When I was flaring, however, I did feel really weak. My son often got fussy at night, and the only thing that calmed him was walking around the house with him...I was too weak to do that, and he was under 15lbs at the time.
Status: Remission since late May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently taking Apriso (4 pills ONCE!! daily), Rowasa twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (25 mg).


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5968
   Posted 7/23/2009 1:29 PM (GMT -6)   
     I have ulcerative proctitis and even though I am eating normally, though healthy, I have lost about eight pounds since the beginning of this flare about six weeks ago.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Meds as of June 09: Colazal (6 per day), 6MP (50 mgm), Probiotic (upped to 3 per day), Fish oil capsule, calcium, multivitamin, Cort enema nightly, Canasa in morning.  Also taking Benicar and Toprol to control high blood pressure.  Getting old is a b****.


quincy
Elite Member


Date Joined May 2003
Total Posts : 30674
   Posted 7/23/2009 1:33 PM (GMT -6)   
No, I don't feel like a weakling....but 114 pounds for 5'1 is the norm on the if you're large boned.

If you're wanting to increase strength, work on muscle tone and balance....eventually as you get older (trust me on this), you will gain a different kind of weight.

I do understand, however, what you mean by feeling vulnerable....since I've gained the weight, I feel like I have more presence. Probably because everyone always complained about me being sooooo skinny. I think it was more that I didn't have the curves that made me look like "more".

I'm now "thicker"....not necessarily curvier. But after 50, I feel I've earned it, but can work on my waist being a bit smaller. That means working on it..sigh.

LOL!!!

q
*Heather* Status: flaring...Asacol 3 twice daily; Salofalk enemas nightly
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


basa0806
Veteran Member


Date Joined Feb 2005
Total Posts : 2103
   Posted 7/23/2009 1:52 PM (GMT -6)   
While I was flaring I was 118 lbs on my 5'4'' average/smaller frame. Once I got into remission, I started gaining weight like crazy and now I'm probably on the verge of overweight. I'm sure if I ate right and actually liked to exercise I could drop the weight pretty fast.
Sam(antha)
20 year old college student diagnosed with UC in March 2005
Remission since January/April 2006-->THREE YEARS!!!!!
Meds: 3 750mg Colazal 2x daily, 25mg Amitriptyline, 75mg Effexor XR for GAD, ortho lo
"If you don't like something, change it. If you can't change it, change your attitude."
Maya Angelou


Hellokitty
Veteran Member


Date Joined Mar 2009
Total Posts : 765
   Posted 7/23/2009 1:55 PM (GMT -6)   
Thanks for that advice quicy. You do have alot of good advice, i always read your threads .The raw foods form told me the same. They told me to take yoga. i stress alot so this will help my mentality. I would like to be 115 though. I just hope I don't flare so that i can gain this weight. I know its a crazy achievement for someone who is eating raw food.
Female 32 years old
 
Diganosed ulcerative colitis November 2007
Present medication- jumbed back on pentasa 500mg 1 asacol- remember always treat from both ends- this is really good advice and dont ever doubt it.
Diet- Back on the raw foods.
 
Other medical problems- Born with asthma- no medication taken for this.
dyslexia- found out that many people with learning difficulties also have food sensitivity


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 7/23/2009 2:00 PM (GMT -6)   
ok I do not have UC, but I feel like the only person in the world that Doubled, yes doubled! their body weight with crohns...LOL But I was never a skinny, but I do miss my muscles, and my ablility to run a marathon.
Forum Co-moderator - Crohn's Disease:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


quincy
Elite Member


Date Joined May 2003
Total Posts : 30674
   Posted 7/23/2009 2:02 PM (GMT -6)   
You're welcome..thank you for the kind words.

Look at the big picture, but just be aware that it takes baby steps for it all to eventually come together.

Yoga is good for mental focus, and remember that stressing is/can be a habit that feeds one's needs. Worrying is difficult to stop, but with you to place yourself as an observer making yourself the guinea pig...some of your stress might stop.

Some people worry no matter how sure a fact is....again...trust is difficult.

If you do this experiment and it's not successful completely, look at the parts that are. Use the parts that are successful and change it a bit.

Remember, it's not all or nothing. It's finding what can work and changing what doesn't.
If your decisions and worry is based on guilt or that you're not doing things right...you're not understanding the complexity of UC , the mind, emotions, food intake, relaxation, distress.  They can work against each other even if one thing is working...believing it isn't makes it more so.
 


quincy


*Heather* Status: flaring...Asacol 3 twice daily; Salofalk enemas nightly
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


mudua
Regular Member


Date Joined Apr 2007
Total Posts : 459
   Posted 7/23/2009 2:08 PM (GMT -6)   
I was very skinny when I was diagnosed with Colitis but after I was put on medication I started gaining weight and developed a moon face which I only recently lost after drinking cinnamon tea

quincy
Elite Member


Date Joined May 2003
Total Posts : 30674
   Posted 7/23/2009 2:17 PM (GMT -6)   
but mudua, your weight gain was from pred....sucks for sure.
*Heather* Status: flaring...Asacol 3 twice daily; Salofalk enemas nightly
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Hellokitty
Veteran Member


Date Joined Mar 2009
Total Posts : 765
   Posted 7/23/2009 2:54 PM (GMT -6)   
Well I will try raw foods for gaining weight. There are some people who eat 3000 calories eating raw. i know i wont gain anything if im flaring.
Female 32 years old
 
Diganosed ulcerative colitis November 2007
Present medication- jumbed back on pentasa 500mg 1 asacol- remember always treat from both ends- this is really good advice and dont ever doubt it.
Diet- Back on the raw foods.
 
Other medical problems- Born with asthma- no medication taken for this.
dyslexia- found out that many people with learning difficulties also have food sensitivity


AMK77
Veteran Member


Date Joined Mar 2008
Total Posts : 678
   Posted 7/23/2009 3:11 PM (GMT -6)   
I wish I was thin! But I don't wish for a flare that could get me thin. I could stand to lose 30 pounds. When I had my bad flare in the beginning I did lose 20 pounds.
32 yr old female
Mild Pancolitis
UC since 2000 - in remission for most of those 8 years med free.
Cannot tolerate mesalamine. Currently take probiotics and fish oil. Trying Applied Kinesiology & supplements.


Mitzo
Veteran Member


Date Joined Dec 2007
Total Posts : 536
   Posted 7/23/2009 3:20 PM (GMT -6)   
I have never lost weight even in a flare. I am a robust but not fat size for my height.
23 years of UC which started after quitting smoking. In and out of flares which are usually triggered by antibiotics. Latest issue is endless diarrhea without blood or mucous.

 


Rio in Maryland
Veteran Member


Date Joined Nov 2007
Total Posts : 891
   Posted 7/23/2009 3:35 PM (GMT -6)   
When I was having a severe flare last year I lost 15-20 lbs, and my waist size dropped from 32 inches to 29 inches - skinny. I'm back to normal now.
Rio, 33 year old male. Diagnosed with UC in 2006
100 mg Azathioprine (stopped), 4800 mg Asacol
VSL#3 & Primadophilus Bifidus, Metamucil
Vitamin E enema or Asacol suppository occasionally


Blue220
Regular Member


Date Joined May 2008
Total Posts : 191
   Posted 7/23/2009 3:36 PM (GMT -6)   
I'm normal, but I carry my weight differently. I am 5'9" and 140. When I was sick, I was about 115. I looked really bad. Really gross for my frame.

I was so happy to gain that weight back after the flare but it took FOREVER. I was on dance teams and competition teams pre colitis, so I've always been fit. I don't know. I have a hard time keeping my weight in the normal range because I go through the drama of this illness a lot sometimes.
22 years old

Diagnosed with moderate/severe UC June 2007, I've had it since December 2006.

Taking Lialda 3x a day<---NOT ANYMORE. I got pancreatitis from them (?).
I stopped taking Lialda 8-19-08. Ugh!
All I take now is just my 3 Entocort, and 1 iron pill in the afternoon.

NOW back on Lialda as of 8-30-08, not the cause of pancreatitis.
Going in for an endoscopic ultrasound on 9-19-08 to check things out.
Still on Entocort and iron. Yay...

Haven't been on here in a while (finally graduated college).
Update as of 5/26/09 - Now taking Imuran 100mg/day.
Taking Caltrate, iron, A, D, and B12. I still take 2 Lialda a day.
At least I'm off the Entocort.


Jen O
Regular Member


Date Joined May 2009
Total Posts : 136
   Posted 7/23/2009 3:36 PM (GMT -6)   
I have had 2 flares. I lost 20 pounds in each, down from 135 to 115 the first time, Prednisone brought be up to 140. I was working out to get in good shape, take care of my body, etc in between the flares. I got down to 125 and was nice and cut, muscular, etc. So, went into another flare, that time down to 105! Way too skinny on my 5'2" frame. Pred brought me up to 126 this time around.

I, this time, though am having a hard time getting back into working out. I am just exhausted. I don't know if this is the new meds or what. Sticking around 126 for now, but this time my muscles aren't very toned, not feeling strong or balanced, etc. My PCP wants me to see a nutritionist, so I have an apt in a couple of weeks. We'll see what she says.

Jen
Age 34, Diagnosed with UC September 2008
Current Meds:
Prednisone currently on 5 mgs, will quit on Wednesday 7/15/2009!
Started Azathioprine 100 mgs 6/22/2009 and Apriso 4 tabs daily 6/11/2009
Biotin 5 mg
Vitamin D 2,000 IU per day
Calcium 1500 mg per day
Flaxseed Oil 2000 mg per day
Multivitamin
Also tried: Remicade, Asacol, Rowasa, Cantasa


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 7/23/2009 3:38 PM (GMT -6)   
I was always thin even before Uc and in fact, I remained super thin up until about 6 months ago. I'm 5'6" and for the most part my weight was around 110-120lbs. It wasn't until about 6 months ago that I started to gain weight. So much weight that it scared me! I'm thinking oh great! NOW what??? lol I am now at 142lbs but I don't look overweight. In fact I look healthy for a change!
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notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16403
   Posted 7/23/2009 4:00 PM (GMT -6)   
I've always been a petite person but I could stand to lose about 5 pounds right now.
Diagnosed with mild proctitis in March 2007: Treated with Canasa (as needed)
December 08: Began treating with Asacol 400mg (9/day) + Canasa 2x/day - Anemic
May 09: Off Canasa, taking Asacol (9/day)
Back on Canasa every other night + Asacol (9/day) + Probiotics + Iron
Reducing to 6 Asacol/day + Canasa + Probiotics + Iron - So far so good!!! -SPOKE TOO SOON! Back to 9/day...


Tofu4Dinner
Regular Member


Date Joined Jul 2009
Total Posts : 29
   Posted 7/23/2009 6:25 PM (GMT -6)   
I'm 5'2". When I was initially "blessed" with UC I lost 20lbs in about 3 months and got down to 105lbs. My first remission sent my weight back up to 120lbs. I have mostly stayed in the 124lbs range but UC came back last month and I'm down to 120lbs. I'm too afraid to eat and when I do it's in the toilet within 30 minutes. cry
2000 - Diagnosed with UC
Asacol - didn't help - quit taking after 8 months.
Prednisone for 1 year - weakened my teeth to the point that some broke - quit taking.
2004 - Remission for 9 months! Woot!
2005 - Began taking Strattera for ADD and colitis went back into remission!
June 2009 - off the Strattera and colitis is back.
July 23, 2009 - Canasa suppositories - 1000mg x 2 a day


Tofu4Dinner
Regular Member


Date Joined Jul 2009
Total Posts : 29
   Posted 7/23/2009 6:32 PM (GMT -6)   
Kitty,

I saw this on your signature this: "dyslexia- found out that many people with learning difficulties also have food sensitivity".

I also have dyslexia and learning disabilities and I had never heard that people like us also have food sensitivity. I have had food allergies and sensitivity all my life. I'm 47 now and back when I was a kid the doctors just dismissed my protestations that certain foods made me feel ill. Hot dogs and luncheon meat gave me violent headaches as did chocolate.

Tofu
2000 - Diagnosed with UC
Asacol - didn't help - quit taking after 8 months.
Prednisone for 1 year - weakened my teeth to the point that some broke - quit taking.
2004 - Remission for 9 months! Woot!
2005 - Began taking Strattera for ADD and colitis went back into remission!
June 2009 - off the Strattera and colitis is back.
July 23, 2009 - Canasa suppositories - 1000mg x 2 a day

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