Should I take a probiotic?

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UCchick87
New Member


Date Joined Jul 2009
Total Posts : 5
   Posted 7/23/2009 7:04 PM (GMT -6)   
Hi all! I was just diagnosed a month ago with UC and this is my first time on this forum, I am really liking it so far. It is good to know that I am not alone with this terrible condition. I am taking Lialda everyday as well as a folic acid and fish oil. I was wondering who out there is taking a probiotic. I know probiotics are good for you, but do they really make a difference? I want to take anything that will be beneficial to my body without hurting it, only helping it. Let me know what you all take, or at least if you are taking a probiotic. Thanks so much!!

Post Edited (UCchick87) : 7/23/2009 6:34:23 PM (GMT-6)


Rio in Maryland
Veteran Member


Date Joined Nov 2007
Total Posts : 891
   Posted 7/23/2009 7:34 PM (GMT -6)   
Probiotics have helped me (and many other people on the forum). You might need to try a few to see which one works well for you.

I tried a lot of different probiotics before getting to VSL#3. VSL#3 is a strong probiotic, so if you do start it then I'd recommend increasing the dose gradually.
Rio, 33 year old male. Diagnosed with UC in 2006
100 mg Azathioprine (stopped), 4800 mg Asacol
VSL#3 & Primadophilus Bifidus, Metamucil
Vitamin E enema or Asacol suppository occasionally


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 7/23/2009 7:36 PM (GMT -6)   
Just about all of us are, I think. The one I'm taking is listed in my sig...for some reason, I have trouble remembering the name! There's very little chance a probiotic will hurt, so I think it's wise to take one. I think mine helps at least some.
Status: Remission since late May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently taking Apriso (4 pills ONCE!! daily), Rowasa twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (25 mg).


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 7/23/2009 7:44 PM (GMT -6)   

Main problem is they can give you gas but that gets better after a while - for me about 2 weeks!

ElaineNY


 
Senior - diagnosed with proctosigmoiditis - 6/2008   
Cannot tolerate mesalamines.  New specialist (June) - Cortifoam and Anusol three times a day for now.  Hope it works! (finding it impossible to do three times a day however)
 
Probiotic Align, Prilosec for GERD, Gas-X, vitamins, Calcium/D
Tylenol for knees and arthritis.
 
 
 


wrxBRAH
Regular Member


Date Joined Mar 2008
Total Posts : 312
   Posted 7/23/2009 7:49 PM (GMT -6)   
I took one for 2 weeks from GNC site (acidopholous or something like that). I didnt notice any changes as far as my UC but it made my butt itch like no other. I was having to itch so hard and often that I would make myself bleed. Needless to say the bottle ended up in the trash can.
Male 29yrs old

Currently taking:
Prednisone - 30mg
Asacol - 4800mg
Imuran - 100mg


UCchick87
New Member


Date Joined Jul 2009
Total Posts : 5
   Posted 7/23/2009 7:52 PM (GMT -6)   
Woahhh I am definitely not going to take acidopholus then! Thanks for all the other probiotic names, I will try a couple and see which one works best for me. I guess it takes a little while to figure out what is best for you.
Amanda
22 years old
diagnosed June 29th, 2009 with UC
Status: flaring up
UC Meds: 4 Lialda's (2 for breakfast 2 for dinner), 2 fish oil, one folic acid


Rio in Maryland
Veteran Member


Date Joined Nov 2007
Total Posts : 891
   Posted 7/23/2009 7:59 PM (GMT -6)   
Yes, it can take a few tries till you find what works for you, but you also might need to be patient and give the probiotic a bit of time to have an effect.

By the way, I just read your signature and noticed that you just got diagnosed with UC a few weeks ago. When I got diagnosed I was in a daze for a while, so it's great to see that you're already taking the initiative to educate yourself and find some answers. That's the best way to be.

Hope you're fine soon.
Rio, 33 year old male. Diagnosed with UC in 2006
Azathioprine (stopped), 4800 mg Asacol
VSL#3, Metamucil
Vitamin E enema or Canasa suppository occasionally


ickypoo
Regular Member


Date Joined Dec 2008
Total Posts : 224
   Posted 7/24/2009 5:52 AM (GMT -6)   
There is nothing wrong with acidophilus (Lactobacillus acidophilus). The problem is that not all probiotics are created equal. Unfortunately they are not regulated or part of the treatment regimen within the medical community, so it is something of a free-for-all at present. But there can be no doubt that a good quality probiotic can make a world of difference.

I should start another topic on what to look for in a probiotic since this type of question pops up fairly regularly.
Diagnosed with UC in 1990.
Current Meds: Sulfasalazine & Folic Acid.
Supplements: fish oil, flax oil, glucosamine, CoQ10, fiber, aloe vera juice, probiotics.
Other: Raw Milk for breakfast. Currently exploring a raw milk fast one day/week.


HM
Regular Member


Date Joined Sep 2008
Total Posts : 211
   Posted 7/24/2009 7:07 AM (GMT -6)   
I have tried a few different probiotics. I beleive they do make a difference and should be taken (just my opinion after managing a health food store for four years and seeing the difference it made in people). I use the align brand currently and when I asked my GI about it he relpied,"oh yes I should have told you to take that".

36/f   proud single mom of 2

Diagnosed with GERD/Acid Reflex 2002

Diagnosed with IBS 2007

Diagnosed with Arthritis 2007

Diagnosed with UC, then Crohn’s 2008, now the GI isn't sure which is it exactly...he calls me a strange case.

Diagnosed with Generalized Anxiety Disorder 2008

Current medications: Asacol 2 tablets 3X daily, Imuran 50 mg daily,Endcort 3mg 2X daily, Pentasa 2 500mg caps 2X daily, Prilosec 20 mg 2X daily (if needed), Cymbalta 60 mg daily. 05 mg Zanax (if needed) Probiotics, Calcuim/Mag/Vit.D. Flinstones multi with Iron and Vit. C 500mg daily


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 7/24/2009 8:49 AM (GMT -6)   

My gastro doc gave me a months supply of Align even before it was readily available in the stores.  I liked it right away - firmed up my stool in a week or 10 days.  After the month I tried Primal Defense and had too many side effects - gas mostly - and went back to Align.  Research online will tell you more about each one.

ElaineNY


 
Senior - diagnosed with proctosigmoiditis - 6/2008   
Cannot tolerate mesalamines.  New specialist (June) - Cortifoam and Anusol three times a day for now.  Hope it works! (finding it impossible to do three times a day however)
 
Probiotic Align, Prilosec for GERD, Gas-X, vitamins, Calcium/D
Tylenol for knees and arthritis.
 
 
 


Yavw
Regular Member


Date Joined Feb 2009
Total Posts : 29
   Posted 7/24/2009 3:04 PM (GMT -6)   
Probiotics are all I take, it does seem though that different kinds work for different people, but my recommendations about them are:

Don't get discouraged if it doesn't work immediately. Try them for at least a week and then try different kinds too.

And try to find one that has at least 10 billion cfu's per serving. And try to take at least 20 to 40 billion throughout the course of the day.

And cfu's are more important than one that is refrigeration required, although there seems to be a correlation between higher cfu's and refrigeration being required. But it's a good idea to refrigerate them anyway, to guarantee they never get above room temperature.

And thanks to fruitgirl for mentioning the probiotic you take, I call it Dr Murray's brand. It's really worked for me.

UCchick87
New Member


Date Joined Jul 2009
Total Posts : 5
   Posted 7/24/2009 7:25 PM (GMT -6)   
Hey everyone! I just wanted to say thank you so much for all the replys. I will definitely take this all into consideration when finding a probioitc.
Amanda
22 years old
diagnosed June 29th, 2009 with UC
Status: flaring up
UC Meds: 4 Lialda's (2 for breakfast 2 for dinner), 2 fish oil, one folic acid


LuckyLindy
Regular Member


Date Joined Feb 2009
Total Posts : 226
   Posted 7/24/2009 11:51 PM (GMT -6)   
Many people talk about VSL#3, Primal Defense, and a few other "Premier" probiotics ... but these are VERY expensive. For example, VSL#3 can easily run you $100/month. This wasn't readily in my budget, and I've found that many of the store/internet brands are just as effective. My favorites are Culturelle, Align, and Threelac (some people have problems with this one though). These three aren't cheap, but $20/month seems much more reasonable than $100.
33 year old male
diagnosed severe pancolitis in 2004, unresponsive to all drugs
turned down recommendation to have j-pouch surgery
have been mostly symptom free since 2004 via diet modification (removed all carbs)

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