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Malkavian
Veteran Member


Date Joined Mar 2009
Total Posts : 1439
   Posted 7/23/2009 8:00 PM (GMT -6)   
So, I've been using the Rowasa enemas for about a week now, and am doing considerably better. BM's are down from about 3 a day to 1, 2 at most.

Still having some cramping and pain when I go to the bathroom, and added gas, but I can't tell if that's the enema or my intestines. Is there anyway to figure that out?
21, female, diagnosed 3/6/2009
Mild ulcerative colitis from rectum to mid transverse colon
Currently taking Asacol (1200 mg 3x/day), Rowasa and Calcium/D supplements


sirenshooter
Veteran Member


Date Joined Jun 2009
Total Posts : 2012
   Posted 7/23/2009 8:36 PM (GMT -6)   
I always squeeze the air out of the bottle before I do the enema and that helps. But it might be your intestines, I mean, changes are happening in there. Glad you're feeling better
19yr old female diagnosed with UC (pancolitis) in 2005 at age 15
125mg Azathioprine 1xday / 1 Mesalamine enema nightly /
2000mg Fish Oil 1xday / 500mg Turmeric 3xday /
450mg Boswellia 1xday / 400IU Vitamin E 1xday
Arthritis in both knees
Also: asthma, acid reflux, and Reynaud's Syndrome


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5191
   Posted 7/23/2009 9:37 PM (GMT -6)   
Based on my experience I'd say it's your colon cramping/hurting from inflammation, unless something in your diet is irritating it. I don't think Rowasa would cause either except to people who are allergic to 5-ASAs or the sulfite preservative. As for gas, just about anything can cause it, but it tends to seem like the mesalamine enemas are the prime culprit because they don't absorb fully like steroid enemas do. So you still have some liquid waste sloshing around inside & being propelled by the gas at different stages of peristalsis or elimination. A big nuisance, though a lesser evil than bloody mucus ... / Old Hat (30 yrs with left-sided UC ... [etc.])

quincy
Elite Member


Date Joined May 2003
Total Posts : 30999
   Posted 7/23/2009 10:43 PM (GMT -6)   
your rectum is still inflamed....

You may have to be on the nightly for a few weeks. Hang tough.

You may also have some gas from the enemas, nothing like added propulsion in the morning.
I get that sometimes, I don't see it as a neg, however...it is what it is and without the enemas I'd be toast.

q
*Heather* Status: flaring...Asacol 3 twice daily; Salofalk enemas nightly
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Malkavian
Veteran Member


Date Joined Mar 2009
Total Posts : 1439
   Posted 7/24/2009 12:06 AM (GMT -6)   
How should I determine when to start tapering my dose, do you think? I guess when everything's normal?

Also, nothing like sticking something up an already sore butt XD
22, female, diagnosed 3/6/2009, symptoms for 2 years beforehand
Mild ulcerative colitis from rectum to mid transverse colon
Currently taking Asacol (1200 mg 3x/day), Rowasa and Calcium/D supplements


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5191
   Posted 7/25/2009 7:12 PM (GMT -6)   
"Added propulsion", indeed! LOL, Quincy, that's a great way to describe the AM siege!!!!!!!!! RE when is it safe to begin a taper-- definitely wait 'til you get rid of blood & mucus as well as urgency. Good luck! / Old Hat (30 yrs with left-sided UC ... [etc.])

quincy
Elite Member


Date Joined May 2003
Total Posts : 30999
   Posted 7/25/2009 7:27 PM (GMT -6)   
LOL...glad you like it OH, and I must add that "seige" is a good way to describe it. Ha!

Malkavian...you should be absolutely NORMAL for a week at least before even trying to taper.

I have tried fast tapers, slow tapers and all in between. I've learned that no matter what I want, the butt RULES!

Now that's more humbling than sticking meds up a sore butt.

If you have NO improvement after 3 weeks (not meaning perfect, however), you may need either more or added meds.

q
*Heather* Status: flaring...Asacol 3 twice daily; Salofalk enemas nightly
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Malkavian
Veteran Member


Date Joined Mar 2009
Total Posts : 1439
   Posted 7/25/2009 8:10 PM (GMT -6)   
I've definitely been improving since being on them (like I said, fewer bm's/day and all that).

I don't seem to have any blood, not sure about mucus though.

And yeah, I'm getting the 'added propulsion' thing. First thing in the morning it's like my butt wants to turn anything in it into a high-impact projectile.

Mostly, I just seem to be having the urgency and a bit of straining and perchance some mucus.
22, female, diagnosed 3/6/2009, symptoms for 2 years beforehand
Mild ulcerative colitis from rectum to mid transverse colon
Currently taking Asacol (1200 mg 3x/day), Rowasa and Calcium/D supplements


quincy
Elite Member


Date Joined May 2003
Total Posts : 30999
   Posted 7/25/2009 11:46 PM (GMT -6)   
Awesome they're working for you.
 
You'll certainly notice when the symptoms you have left start to lessen...make sure you are absolutely perfect before tapering to every second night.

The purpose of tapering can be to get off the rectal meds (which I don't recommend) or to taper to the farthest apart you're able to do.

The point is that there may be always a time you're on meds...either maintenance or treatment. The dosages and frequency can vary however.

Eventually you'll understand the process and treat your flares earlier and earlier.

quincy


*Heather* Status: flaring...Asacol 3 twice daily; Salofalk enemas nightly
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 

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