New Member: Hi, I'm Hank

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Hank Green
New Member


Date Joined Jul 2009
Total Posts : 4
   Posted 7/24/2009 1:13 AM (GMT -6)   
Hello all, just introducing myself. I've been lurking a bit, and it seems like you've got a good thing going here. So, a bit about me:

I was diagnosed back in 2006, I had a fairly quick remission with Asacol, but have had flare-ups since them. I'm in the middle of one that's been going on for about six months. Having colitis, of course, sucks. But I get along fairly well as I work from home and don't have a very severe case.

What I'm mostly concerned about are the costs. I have a $400 a month prescription drug habit, and no end to that in sight. It's my second biggest expense, and that's no good for my family. I was diagnosed while in school. Once I graduated, I lost the insurance, of course. Then I tried to go get other insurance but, since I had UC, I was rejected by all of the major providers. I'm now on the state's catastrophic insurance program, but this obviously doesn't cover prescription drugs.

If anyone could point me to threads on getting asacol for cheaper, that would rock. If people have had luck with particular Canadian pharmacies, I (and my wife) would thank you very much for your advice.

I'm also interested to hear about people's experience with diet. I know there has to be a connection there, and I've seen it myself. The one really weird reaction I have is beer (which I love) and makes my colits HORRIBLE. Like, don't leave the house for a few days horrible. So I'm completely off beer. Vodka soda, though, treats me fine. Weird.

Anyway, no caffeine (rare exceptions), no seeds, no raw fruits for veg, and probiotics...that's what I do. But this flare up has been going on for a long time, and I'm ready to try something new. I'll be looking around, but, again, if there are any suggestible threads, I'd love to see them (the search function kinda sucks here.)

Thank you all so much for coming together in this place.

Hank
29 - Male - Montana
Diagnosed left-sided UC 2006
Present medication - 3x3 Asacol - 1x Canasa when things are going extra poorly - Imodium for confidence - acidophilus
Insurance - The kind the Montana gives you when you get rejected by the private jerks enough times. Allergic to sulfa, so I'm stuck with a $400 a month drug bill
Diet - No Beer :-(. Everything except raw fruits / veg and anything with seeds.

BTW? Why do they even put sesame seeds on hamburgers, it's the meanest thing ever.


kate22
Regular Member


Date Joined May 2009
Total Posts : 217
   Posted 7/24/2009 2:41 AM (GMT -6)   

welcome hank!

i am in the same boat as you are per the insurance thing!  it is crazy expensive.  as far as diets are concerned, there are several out there to try.  some work for some people.  i have recently tried the spiinach and sunflower seed (actually sunbutter!) diet.  i think it is helping some!  i don't know much about getting asacol for less...maybe your doctor could offer a suggestion, or you could contact the manufacturer?!


UC since 1994
4 Lialda/day, 15 mg prednisone and tapering (down from 40 mg), rowasa, folic acid, VSL#3, flax oil, vegetarian diet


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 7/24/2009 3:11 AM (GMT -6)   
Welcome to HealingWell, Hank. I'm glad to hear at least you're doing well healthwise, even though our meds can put anyone in the poor house.
 
Proctor and Gamble makes Asacol, and does have an assistance program:
 
 
Here's the web site for Canasa:
 
 
I hope you'll find the information and support here helpful.
Judy
 
Ulcerative colitis forum co-moderator
 
Moderate to severe left-sided UC diagnosed 2001.
Flared for 5 years, finally in remission with Remicade since March 2006.
Avascular necrosis in both shoulders is my "forever" gift from steroids.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. 
"My life is an ongoing medical adventure"
 


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16038
   Posted 7/24/2009 8:21 AM (GMT -6)   
I am in the P&G Patient assistance plan. If you make under a certain income and don't have insurance you will qualify. I get Asacol for free. You can also order from Canada. There are a lot of Canadian Pharmacies that have Asacol for half of what we pay here.
Diagnosed with mild proctitis in March 2007: Treated with Canasa (as needed)
December 08: Began treating with Asacol 400mg (9/day) + Canasa 2x/day - Anemic
May 09: Off Canasa, taking Asacol (9/day)
Back on Canasa every other night + Asacol (9/day) + Probiotics + Iron
Reducing to 6 Asacol/day + Canasa + Probiotics + Iron - So far so good!!! -SPOKE TOO SOON! Back to 9/day...


jewelknit
Regular Member


Date Joined Jul 2009
Total Posts : 32
   Posted 7/24/2009 9:27 AM (GMT -6)   
Hank, sorry about what you're going through.  I have had ulcerative proctitis for 25 years and when it's flaring it's awful.  Have been in a flare for 6 months (came on after I had a bad stomach flu) and nothing has helped.  I am on rowasa enemas, colazal and just started 6MP.  Had been on enemas, prednisone... nothing worked.  Can't get to work before 10AM and am tired...  Finally decided to see a nutritionist next week (so expensive) but can't go on like this.  Have lost weight and I'm too thin to begin with.  Will let you know about diet.  Have a feeling it will include no dairy (which I already cut out), fried foods, caffeine...among other things.

Hank Green
New Member


Date Joined Jul 2009
Total Posts : 4
   Posted 7/24/2009 11:35 AM (GMT -6)   
jewelknit said...
Have a feeling it will include no dairy (which I already cut out), fried foods, caffeine...among other things.

AGH! is NOTHING sacred!

Judilyn said...
Proctor and Gamble does have an assistance program

Fortunately for me, I don't qualify. Leave it to P&G to make me ambivalent about being more than 200% above poverty.

I've heard good and bad things about online Canadian pharmacies. I don't know which ones are safe, and I'm not sure how to approach my doctor about getting an appropriate prescription when this is not precisely legal.
29 - Male - Montana
Diagnosed left-sided UC 2006
Present medication - 3x3 Asacol - 1x Canasa when things are going extra poorly - Imodium for confidence - acidophilus
Insurance - The kind the Montana gives you when you get rejected by the private jerks enough times. Allergic to sulfa, so I'm stuck with a $400 a month drug bill
Diet - No Beer :-(. Everything except raw fruits / veg and anything with seeds.

BTW? Why do they even put sesame seeds on hamburgers, it's the meanest thing ever.


jewelknit
Regular Member


Date Joined Jul 2009
Total Posts : 32
   Posted 7/24/2009 11:51 AM (GMT -6)   
I think you should first find out whether Canadian pharmacies will accept a prescription from a dr in the US.  If they will, get the prescription and do what needs to be done.  Are you sure it's not legal?

jewelknit
Regular Member


Date Joined Jul 2009
Total Posts : 32
   Posted 7/24/2009 12:01 PM (GMT -6)   
Look at www.rxpersonaluse.com  Text of FDA Import Bulletin

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16038
   Posted 7/30/2009 10:36 PM (GMT -6)   
I hate to promote a pharmacy but I do order from CanadaDrugs.com quite oten and while it does take a few weeks to get your medication, it is reliable and the medication is legit. They have a guarantee that you will receive your package in 21 days and if you do not, they will reship free of charge. CanadaDrugs has always supplied me safe drugs. I think they get them from the manufacturers so they are able to give them to you for less. They don't say Asacol on the pills but they did keep my condition at bay.

I called my doctors office and said please call my prescription into my pharmacy and I gave them the 800 for canadadrugs. I've done this multiple times with various drs.
goodluck.
Diagnosed with mild proctitis in March 2007: Treated with Canasa (as needed)
December 08: Began treating with Asacol 400mg (9/day) + Canasa 2x/day - Anemic
May 09: Off Canasa, taking Asacol (9/day)
Back on Canasa every other night + Asacol (9/day) + Probiotics + Iron
Reducing to 6 Asacol/day + Canasa + Probiotics + Iron - So far so good!!! -SPOKE TOO SOON! Back to 9/day...


wodin
Veteran Member


Date Joined Jul 2009
Total Posts : 524
   Posted 7/30/2009 11:12 PM (GMT -6)   
I just recieved a letter from my HMO saying they were going to substitute Balsalazide (Colazal) for my Asacol. They seem to think it is as effective as Asacol, and the only reason they do such a thing is to save money. You might ask your GI about a less expensive med.

Wikipedia has this to say about it:
"Balsalazide is an anti-inflammatory drug used in the treatment of inflammatory bowel disease. It is sold under the name 'Colazal' in the US and 'Colazide' in the UK. It is also sold in generic form in the US by several generic manufacturers."

"It is usually administered as the disodium salt."

"Balsalazide releases mesalazine, also known as 5-aminosalicylic acid, or 5-ASA, in the large intestine. Its advantage over that drug in the treatment of Ulcerative colitis is believed to be the delivery of the active agent past the small intestine to the large intestine, the active site of ulcerative colitis."

Post Edited (wodin) : 7/30/2009 11:15:42 PM (GMT-6)

New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, April 20, 2018 5:48 PM (GMT -6)
There are a total of 2,953,759 posts in 324,038 threads.
View Active Threads


Who's Online
This forum has 162105 registered members. Please welcome our newest member, babsy998.
362 Guest(s), 6 Registered Member(s) are currently online.  Details
Not Around, Through, owleyes, kit49, Tim Tam, Crazyick, irish4me