Help! Flaring again, when is it time to give in to prednisone

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wishingitaway
New Member


Date Joined Jul 2009
Total Posts : 9
   Posted 7/24/2009 8:52 AM (GMT -6)   
Well seems like i'm flaring again.  Last flare was in sept of last year, did a slight time on prednisone and got off pretty quick.  Just not sure I want to go down that road again, and so soon!  Has anyone rode out a flare without returning to prednisone?  I'm afraid to take it too much for fear I will get imune to it or something.  I have universal colitis and the enemas just are not working.  I am seeing slight blood, and the cramping is getting worse.  Urgency to go has also started.  I've bumped up my 6-mp and my asacol.  Any advise anyone could give would be a big help.  Why do these things come up on fridays when you have to worry about making through the weekend!
 
Thanks!

jewelknit
Regular Member


Date Joined Jul 2009
Total Posts : 32
   Posted 7/24/2009 9:32 AM (GMT -6)   
Prednisone worked for me before but I've been in a flare for 6 mos and went on it 2X w/o much help.  If it helped I wouldn't think twice about taking it.  This is not the way to live.  Just started 6MP.
I'd suggest you speak w/ your GI dr about it.

atj31
New Member


Date Joined May 2009
Total Posts : 5
   Posted 7/24/2009 9:53 AM (GMT -6)   
I too have been flaring for the last 6 months and my Dr has no idea what is going on with me... on to the University Clinical System - I am nervous about it! I get scoped on Tuesday so please keep me in your thoughts. I have never been so sick and uncomfortable before. I have had usually no probelms with pred, but for some reason it hasnt kicked this flare... if you can use it, USE IT. So what if you get the side effects right now? I can't wait to stop bleeding and having uncontrollable bm's.

Speaking of which, has anyone else had such a long flare other than you jewelknit? Like I said, I am so worried and don't know what my options are. Sorry to pirate your thread wishingitaway! I hope you feel better - and whatever your GI says, do it! :)

To our health!
28 YR Old Married.
 
Diagnosed 2000 with Moderate to Severe Left Sided UC
 
Lialda, Immuran and Rowasa daily
Flare 2x a year, prednisone therapy.  Gluten Free diet helps remission.
 
"Skip to the loo..."


jewelknit
Regular Member


Date Joined Jul 2009
Total Posts : 32
   Posted 7/24/2009 10:00 AM (GMT -6)   
atj31, no problem.  I also can't figure out why this flare has been so long.  Nothing seems to be helping and it's especially perplexing because I only(!) have ulcerative proctitis. 

notcryingwolf
Regular Member


Date Joined Jul 2009
Total Posts : 21
   Posted 7/28/2009 1:55 PM (GMT -6)   
prednisone was the worst med I have ever been on!  Effects all parts of life, from how you look, to moods, self control, ect.  First 2 flares that I had, it helped get it right back in remission when combined with Canasa.  Last couple of flares, I tried it without the canasa, and no result.  I will not go back on prednisone.  I started the Specific Carb diet several times... very hard to stay on!  and restarted Lialda with it.  I was getting better everyday, but didn't know if it was the diet or the medication.  I decided to cheat on the diet big time and see what happens... I went a couple of days just wheat/gluten/soy and dairy free, meaning that I was allowing myself rice and rice bread and a little blood came back... then I had some ice cream... dairy and refined sugar (yum) and was in the bathroom all night flaring horribly!!  Medication remained a constant!  I was really hoping that diet didn't play as huge of a role as it seems to because I am not big on restrictions... I have always eaten whatever!! 
 
Maybe you should play with diet a bit before heading back on Prednisone...  Best of luck!
Diagnosised in Feb, 2008 at 29 years old. 
Currently on 2 Lialda daily
Fish oil, probiotiics, D3, Q10, Biotin, Zinc
Experimenting with diets:  Trying sunflower seeds and spinach  as well as gluten/wheat/dairy/soy free


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 7/28/2009 3:06 PM (GMT -6)   
Too often I try to get past it without, but I just get worse and finally give in, usually when the urgency and frequency just get too ridiculous. Don't wait too long, like I do sometimes.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol maintenance for 20+ years; used prednisone & Rowasa for flares.  Probiotics (Ultimate Flora, 50 billion), salmon oil (omega-3) when I can remember. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated wheat/gluten from my diet.
Bad flare in March, used prednisone. Humira denied, started Remicade 4/12 and doing great~ learning what normal is~ wow


blueclassring
Regular Member


Date Joined Feb 2007
Total Posts : 385
   Posted 7/28/2009 10:13 PM (GMT -6)   
If you start experiencing tenesmus(urgency to go every 30 minutes with nothing coming out), you may need the prednisone.  See if you can change your diet. 

Pharmacist as of 6/12/2009.
Diagnosed 8/99. Suffered for almost 10 years. I am currently on the Specific Carbohydrate Diet and am nearing remission. I feel fantastic! I have lossed so many years to this disease.

MED-FREE!!!

Doc wanted to put me on 6-mp or Remicade, but I refused to take the medications! Currently on the Specific Carbohydrate Diet.  I'm in remission and life is like it always should have been.

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