Testimonials of long-term, low-level pred side effects?

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BenY
Regular Member


Date Joined Aug 2007
Total Posts : 60
   Posted 7/24/2009 10:02 PM (GMT -6)   
I appear to be stuck on prednisone (~8mg) with few obvious options left. Has anyone here been on a low-moderate (say <10mg) prednisone use for more than 2 years, and if so, what effects have you seen? This dose is too low for moon face, night sweats/wakening and manic-ness. But, I have experiences back acne, stomach pain, and bone loss. Anything else to look forward to?

I know everyone has horror stories about pred. I'd like to keep this discussion to the effects of low-level, long-term use. And not to what side-effect are listed on the label (which is everything) but what people have experienced personally.
Ben, 40

Symptoms diagnosed 4/07. Currently taking daily 8mg Prednisone, 100mg 6MP, calcium w/Vit D, 1/2 Prilosec (protects stomach from prednisone), Fosamax (trying to build bones back up from prednisone effects), Retin-A (helps with back acne from prednisone use), probiotic, multivitamin.


AMK77
Veteran Member


Date Joined Mar 2008
Total Posts : 678
   Posted 7/24/2009 11:12 PM (GMT -6)   
I would rather have surgery than deal with the side effects of long term pred use.
32 yr old female
Mild Pancolitis
UC since 2000 - in remission for most of those 8 years med free.
Cannot tolerate mesalamine. Currently take probiotics and fish oil. Trying Applied Kinesiology & supplements.


LuckyLindy
Regular Member


Date Joined Feb 2009
Total Posts : 226
   Posted 7/24/2009 11:45 PM (GMT -6)   
I somewhat agree with AMK77. 5 years ago when I tried prednisone, the side effects didn't stop until I was completely off. It took almost 2 months to taper from 20mg to 0, and I was achy and felt awful until a few days after the last pill.

However, if you are not noticing any side effects, and it gives you relief, then maybe it's not so bad. Has your doctor recommended periodic bone scans to make sure your mineral levels are increasing?
33 year old male
diagnosed severe pancolitis in 2004, unresponsive to all drugs
turned down recommendation to have j-pouch surgery
have been mostly symptom free since 2004 via diet modification (removed all carbs)

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