Oh you're welcome! Thank you so much for the kind words.
It seems you're between a rock and a hard place regarding your UC since med treatment is very limited.
There are a few on the forum who are limited regarding meds and have experimented and found some success with variety of non-traditional meds, etc.
You might have to tread in that territory....or consider the biologic meds (Remicade) or the immunosuppressants of Imuran, methotrexate or 6MP.
Some are using a diet that includes spinach and sunflower seeds...something worth experimenting...the diet initiator is ucfromutah.
Have you ever been on any rectal meds in the past? Again...worth considering strongly if you've never been on them. That should vastly help the accident incidents.
Fibre supplements can help to bulk the stool and somewhat slow down the peristalsis...well, actually strengthen it to a better rhythm. As well...probiotics are a huge must to keep the flora of the digestive tract balanced.
Some food changes can help you with some symptoms....simple changes can do a lot.
An antispasmodic can help with the spasming and automatic wonky rhythm of a stressed and flaring colon/digestive tract.
Have you had stool samples done?
It's good you're seeing a new GI who will hopefully be able to help get you more on track considering your life situation is very tenuous on a stress level and commitment level. One's butt rules I think...add anything it doesn't like and we're toast.
Again, my condolences to you.....I do hope you have a support system in place to help you get through this.
Regarding the imodium, please just take just enough to help you in situations rather than dosing yourself so that you don't go at all. Maybe small doses will be just the thing...at least until you see the GI and help you function with what's going on now.
Keep us posted as to how you're doing.
*Heather* Status: flaring...Asacol 3 twice daily; Salofalk enemas nightly
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux); Effexor XR 75mg(depression); Pulmicort/Airomir (asthma)
~vitamins/minerals/supplements; Probiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!