tiny bit of mucus, vent, scd please read

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Hellokitty
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Date Joined Mar 2009
Total Posts : 765
   Posted 7/26/2009 3:19 AM (GMT -6)   
I know you will think im winging over less than a tea spoon of mucus in my stool but i don't know i just need to. i had a bit of a blip on wednesday night but then my poos went back to being fully formed stools no mucus. I had a little bit of mucus today so now im annoyed. As i am in an experimet with raw foods i guess i just want everything to be perfect.  My bloods were so good. Anyway I jsut needed to get the wing out.
 
If anyone on the scd diet has had a bit of mucus in the fist few weeks of their diets please let me know. Thanks! Im not jumping off my meds anymore as people on the rawfoods diet said that was not wise until you have been doing it for a wile. some people can do that, some people have to wait some people never. If anyone on scd is reading please let me know your experiences. Thanks
Female 32 years old
 
Diganosed ulcerative colitis November 2007
Present medication- jumbed back on pentasa 500mg 1 asacol- remember always treat from both ends- this is really good advice and dont ever doubt it.
Diet- Back on the raw foods.
 
Other medical problems- Born with asthma- no medication taken for this.
dyslexia- found out that many people with learning difficulties also have food sensitivity


Zippy123
Veteran Member


Date Joined Feb 2009
Total Posts : 735
   Posted 7/28/2009 10:52 AM (GMT -6)   
All I can tell you is when I took Colazal I might have a day or two when blood would stop then it would come back again, it didn't stop until I quit taking Colazal and switched to a low dosage of Sulfasalazine. So don't count out some drugs keeping you in a constant flare state even though they are suppose to help.


I think a raw food diet void of protein and fats is wrong for colitis personally, but I'm no expert by any means. Consider a quality Whey powder for protien and amino acids if meat is hard for you to eat. The fats and proteins in red meat help your body heal I think. Watch the sugars and carbs, spicy, and acidy foods. Coconut fats are good too.

princesa
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Date Joined Aug 2007
Total Posts : 2204
   Posted 7/28/2009 12:34 PM (GMT -6)   
Healing from IBD is a long process. Most of us don't see miraculous, cut-and-dried turn arounds overnight. Occasional flare ups of minor symptoms is common as the gut is cleansing and healing. Keep a food journal and see if you can pinpoint a specific food that seems to cause mucous/irritation.
Diagnosed with ulcerative colitis spring 1999. Have been in remission for years with only a few minor blips. Scope on 6/22 showed no inflammation at all.
 
Maintenance dose sulfasalazine. Probiotics, vitamin D, fiber supplement and fish oil caps. George's aloe vera juice and l-glutamine for gut healing. Mostly grain-free and dairy-free low carb diet.
 
 


Hellokitty
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Date Joined Mar 2009
Total Posts : 765
   Posted 7/28/2009 12:52 PM (GMT -6)   
Zippy123


I think a raw food diet void of protein and fats is wrong for colitis personally,

How comes you think this. I don't avoid fats. you can do when when you first start but you need fats as your body cannot make them. Im not an experct yet either so I can ask this question on fats to the raw foods line and get an answer.

Protein I can answer. This is taught in basic nutrition. Your body makes it, Its to do with amino acids and as long as you are getting all your amino acids your body will make the protein ( amino acids are found in plant food as well as in meats). As far as science is concerend I can not find a way to say this is unhealthy. I have looked and can not find a logical answer to why raw foods would cause any one to be dificient in anything. In fact my bloods told me the oposite. (so this is why I have chosen to try it). i have found you can become difficient in B12 and this happens more in vegan diets and vegetarian diets than in meat diets. If we go back to when we were cave men before we started making fire we got our B12 from eating bugs. I do eat fish, smoked salmon works best for me. I have a problem when it comes to things like red meats.


Female 32 years old
 
Diganosed ulcerative colitis November 2007
Present medication- jumbed back on pentasa 500mg 1 asacol- remember always treat from both ends- this is really good advice and dont ever doubt it.
Diet- Back on the raw foods.
 
Other medical problems- Born with asthma- no medication taken for this.
dyslexia- found out that many people with learning difficulties also have food sensitivity

Post Edited (Hellokitty) : 7/28/2009 12:18:19 PM (GMT-6)


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 7/28/2009 4:52 PM (GMT -6)   
I also think you are asking for trouble with a raw food diet.
Isn't it too much to expect an inflamed gut to digest a diet of raw foods?
It's a controversial choice even for healthy people.

Bugs, before fire? Who would know??

Moderation in everything is best. Not that I'm that disciplined...but I wish I were.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol maintenance for 20+ years; used prednisone & Rowasa for flares.  Probiotics (Ultimate Flora, 50 billion), salmon oil (omega-3) when I can remember. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated wheat/gluten from my diet.
Bad flare in March, used prednisone. Humira denied, started Remicade 4/12 and doing great~ learning what normal is~ wow


blueclassring
Regular Member


Date Joined Feb 2007
Total Posts : 385
   Posted 7/28/2009 11:11 PM (GMT -6)   
With the worse of my flare behind me(10-20X visiting several toilets and plenty of blood), the SCD along with cortenemas has me down to 5-6x a day with mucus still present. I believe the bowels need more time to heal. As a result the mucus and blood will disappear with time. If I can get it down to 3x/day, I'll consider myself in remission. Right now, I'm more concerned with getting a scope to make sure all the cells in my intestines are normal.
Pharmacist as of 6/12/2009.
Diagnosed 8/99. Suffered for almost 10 years. I am currently on the Specific Carbohydrate Diet and am nearing remission. I feel fantastic! I have lossed so many years to this disease.

MED-FREE!!!

Doc wanted to put me on 6-mp or Remicade, but I refused to take the medications! Currently on the Specific Carbohydrate Diet.  I'm in remission and life is like it always should have been.


blueclassring
Regular Member


Date Joined Feb 2007
Total Posts : 385
   Posted 7/28/2009 11:12 PM (GMT -6)   
Yes, I still see mucus but have been on the diet for about 4 weeks now.  I was on an Alaskan cruise and I wasn't sure how the food was prepared and as a result am suffering for it now. 
Pharmacist as of 6/12/2009.
Diagnosed 8/99. Suffered for almost 10 years. I am currently on the Specific Carbohydrate Diet and am nearing remission. I feel fantastic! I have lossed so many years to this disease.

MED-FREE!!!

Doc wanted to put me on 6-mp or Remicade, but I refused to take the medications! Currently on the Specific Carbohydrate Diet.  I'm in remission and life is like it always should have been.


Hellokitty
Veteran Member


Date Joined Mar 2009
Total Posts : 765
   Posted 7/29/2009 7:49 AM (GMT -6)   
Im still suprised that everyone says this is wrong and that it will increase my inflamation. my bloods showed no inflamtion. and were all green. They were better than alot of healthy peoples blood work. my doctor was alarmed and said she was going to incorporate more raw foods. but any way im going to do it. if i end up dead then i don't mind i cant stand being sick all the time. i will post the blood test number when I get them. They are amazing. i hope they continue.
Female 32 years old
 
Diganosed ulcerative colitis November 2007
Present medication- jumbed back on pentasa 500mg 1 asacol- remember always treat from both ends- this is really good advice and dont ever doubt it.
Diet- Back on the raw foods.
 
Other medical problems- Born with asthma- no medication taken for this.
dyslexia- found out that many people with learning difficulties also have food sensitivity


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 7/29/2009 9:04 AM (GMT -6)   
In general, digestive capability is impaired when the gut is inflamed. I'd say the majority of folks can't tolerate raw foods while flaring. In the book The New Eating Right for a Bad Gut, one of the main points the author makes is fruits and vegetables should be peeled and everything should be cooked very well - to the point of softness - to aid digestion. However, if you're eating raw and your symptoms are improving, you may be one of the minority - like David Klein - who really does well with the diet.
Diagnosed with ulcerative colitis spring 1999. Have been in remission for years with only a few minor blips. Scope on 6/22 showed no inflammation at all.
 
Maintenance dose sulfasalazine. Probiotics, vitamin D, fiber supplement and fish oil caps. George's aloe vera juice and l-glutamine for gut healing. Mostly grain-free and dairy-free low carb diet.
 
 


Hellokitty
Veteran Member


Date Joined Mar 2009
Total Posts : 765
   Posted 7/29/2009 11:18 AM (GMT -6)   
princesa- could be- i felt amazing for the past couple of weeks. and the minor blips i  had are ok now. but im not going to jump off my meds again with out feeling really confident. Every one on the raw food line said that was dumb and I should have waited. i wouldent say you have to eat raw or you will not be successful- that is not true. Im only telling people if they are interesed. The thing is if im flaring i would not eat harsh salads like kale or raw brocolic, i would only eat fresh ripe fruit. Its easy on the gut as long as you don't eat it with bread or something. I also make my own jucies. when I was just at the end of my flare and still worried about being in pain I did do a 1 day juice diet where I juciced fresh vegies and fruits and just drank for 1 day. for me I would not do that for longer, im too skinny.

Any way everyone is different and you know your own bodies better than anyone,


Female 32 years old
 
Diganosed ulcerative colitis November 2007
Present medication- jumbed back on pentasa 500mg 1 asacol- remember always treat from both ends- this is really good advice and dont ever doubt it.
Diet- Back on the raw foods.
 
Other medical problems- Born with asthma- no medication taken for this.
dyslexia- found out that many people with learning difficulties also have food sensitivity

Post Edited (Hellokitty) : 7/29/2009 10:21:59 AM (GMT-6)

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