Amount of time on Cort enemas

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Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 7/26/2009 1:36 PM (GMT -6)   
     Just wondering how long any of you have been on Cort enemas.  I started them the beginning of June and the doctor said to continue.  Geez, I just hope this doesn't wear away the lining of my rectum.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Meds as of June 09: Colazal (6 per day), 6MP (50 mgm), Probiotic (upped to 3 per day), Fish oil capsule, calcium, multivitamin, Cort enema nightly, Canasa in morning.  Also taking Benicar and Toprol to control high blood pressure.  Getting old is a b****.


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 7/26/2009 1:59 PM (GMT -6)   
At one time I was on them for almost a year (that's why I'm on 6mp now).
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate ALL mesalamines**~Allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis~bulging and herniated discs C5/C6 & C6/C7~Epidural injections (2 series of 3), OA-Celebrex, Tylonel Arthritis and Voltaren Gel
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Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 7/26/2009 2:55 PM (GMT -6)   
     I'm on prednisone, Colazal, 6MP, Cort enemas and Canasa....sheesh...something oughta kick in!     I am getting better but taking a loooong time.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Meds as of June 09: Colazal (6 per day), 6MP (50 mgm), Probiotic (upped to 3 per day), Fish oil capsule, calcium, multivitamin, Cort enema nightly, Canasa in morning.  Also taking Benicar and Toprol to control high blood pressure.  Getting old is a b****.


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 7/26/2009 4:47 PM (GMT -6)   
I know, it's horrible isn't it? You are doing everything that they tell you to do - take this med, take that med but there still is no miracle cure all drug yet. Very frustrating.......
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate ALL mesalamines**~Allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis~bulging and herniated discs C5/C6 & C6/C7~Epidural injections (2 series of 3), OA-Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE
 
 
 
 

 
 


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 7/26/2009 9:23 PM (GMT -6)   

How about cortifoam three times a day plus Anusol?  So far I can really only manage the cortifoam 2 times (just isn't time for resting so it won't run out).  I do manage the anusol 3 times.  BUT - I am not on any other medications now - can't tolerate any of them and tapered and end prednisone a week ago.  Seems to be getting better (less blood and discomfort - leftside).  I think we must be more patient than we are willing to be!!

ElaineNY


 
Senior - diagnosed with proctosigmoiditis - 6/2008   
Cannot tolerate mesalamines.  New specialist (June) - Cortifoam and Anusol three times a day for now.  Hope it works! (finding it impossible to do three times a day however)
 
Probiotic Align, Prilosec for GERD, Gas-X, vitamins, Calcium/D
Tylenol for knees and arthritis.
 
 
 


burnabygirl
Regular Member


Date Joined Jun 2008
Total Posts : 205
   Posted 7/27/2009 12:14 AM (GMT -6)   
I have been using Entocort enema since last October. I used it nightly for 7 weeks then slowly tapered. My doctor started me on it when I told her that I couldn't tolerate Salofalk (Rowasa) enema as well as I did in the past. And I was having terrible abnominal cramps. Entocort enema made me feel much better in just 5 days.
I know I shouldn't use Entocort enema indefinitely but I am still not in remission. I still have urgency and blood, 3-5 BMs a day. I still need it at least twice a week.
In the past week I have as many as 8-10 BMs a day and now I am using it nightly again.
Ulcerative proctitis diagnosed in July 2006. Medications: Salofalk enema nightly.
Remission from Nov 2006 to Oct 2007. Then a bad cold and a bad flare for 1 year till Nov 2008.
Pancolitis diagnosed in April 2008. Current medications: Salofalk enema, Salofalk suppositories, Salofalk tablets 1000mg x 3/day, Entocort enema (tapering).
Supplements: Calcium with Vitamin D, Vitamin B Complex, Vitamin C and psyllium capsules (Metamucil).

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