Hi there...I was just browsing the site to see if there was anyone else having no luck with remicade! I have had 3 infusions so far and seem to be just as bad as before I started. Urgency and blood in bm and tons and tons of gas! UGH!! I am a slave to the bathroom, I cant even enjoy going to dinner without staying for at least a half hr after to make sure I go to the bathroom before I get in the car!
I was so scared to try remicade but decided it was best to try and then to find results is disheartening. So many people have a great outcome but I guess it just was not the med for me.
So I guess I am curious as to what other options people have been given. I was told I could start humira next but I have read that if you dont respond to remicade then you may not to humira.
I am staying positive but its tough at times as you all know!
Thanks for your input
32 yr old
Pancolitis since oct 06 told I have crohns-colitis over lap 10/08
waiting on that remission
asacol 12 daily, canasa suppositories, protonix, iron supplement, ativan, Prednisone started at 30mg now on 10mg daily.
Started remicade 4/28/09....no notice of relief yet
Trying to stay positive!!