Worried about side effects of meds

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New Member

Date Joined Jul 2009
Total Posts : 1
   Posted 7/26/2009 10:12 PM (GMT -6)   
I have been diagnosed for 4 years and have spent about 8 weeks in the hospital with flares.  It seems like every new med they put me on causes a side effect that then I have to treat with another med.   At one time I was on 15 different meds.  After a 4 week stint in the hospital 2 years ago and a trip out to Virginia Mason in Seattle I was diagnosed with a secondary case of gastric paresis.  I was given the option of living my life on intense meds or having a stomach tube installed.  I cried for days and went off all my medications.  I was flare free for a year and a half but I started flaring again in May.  My doctor put me on Asacol and Mesalamine enemas.  I was doing ok until my stomach started acting up about a week ago.  I started with pain and nausea and ended up with uncontrollable vomiting that landed me in the ER for 2 days.  Has anyone had a side effect like this from Asacol?  Now I have been put on prednisone, reglan and anucort.  I'm just worried that all of this is effecting the rest of my body.  Has anyone else had problems with Asacol or an intolerance?

Regular Member

Date Joined Jul 2009
Total Posts : 170
   Posted 7/27/2009 1:44 AM (GMT -6)   
Sounds like you have had a a rough few years. I have had colitis for 15 years now and I have not got on with any meds, so basically I have uncontrolled colitis. I have tried steroids which made me incredibly anxious and out of control, I have tried pentasa which makes me vomit and asacol gives me headaches and nausea. I am currently trying asacol foam enemas which I am currently having trouble retaining.

So I am now considering going on the IBD remission diet or the SCD.

I hate taking meds for anything, I like to be as natural as possible so having colitis is hard for me to get my head around. It's either the diet works for me or I am seriously considering surgery to get some quality of life back, a life where I don't have to think about taking any meds.
Ulcerative colitis for around 15 years (Im am 28 years old now)

15 years of untreated colitis

I am taking Asacol foam enemas 2 x a day

Calcium 3 x a day for osteoporosis

Actimint pre and probiotics 6 x a day

My biggest concern BOWEL CANCER :O(

Regular Member

Date Joined Nov 2008
Total Posts : 183
   Posted 7/27/2009 5:22 AM (GMT -6)   
I agree with you. 5ASA just don't work for me...I'm being in flare since I was diagnosed, it's 2 years now. So, next step is 6mp and so on...I'm pragnant right now, so I'm taking my Colazal and sometimes cortifoam when It's getting worth (which I hate myself for!). My GI wants to put me on these BIG drugs when I have my baby. My concern is, in order to getting rid of these symptoms, I', actually poisoning my body and killing my other organs... sad On the other hand, there is still slight chance that they will find cure for the UC...
So, I don't know what is worth, surgery or taking these drugs year after year waiting for our medicine to find something.
Diagnosed with left-sided UC on Sept 08 Colazal 5x2day, Lialda 2 per day (so unusual to take just 2 pills)
Canasa 1 supp. every nigh Cortifoam 1 at night
Vitamins: Zinc, B complex, Fleexsead Oil capsules, Multi. Digestive Enzymes (helps a lot)
***I'm not sick with UC, it's UC sick with me!***

Veteran Member

Date Joined Mar 2008
Total Posts : 1202
   Posted 7/27/2009 7:55 AM (GMT -6)   
There is always a risk/reward review when drugs are involved. Many have intolerance for 5ASA's. Some drugs will give you a chance for normalcy, and a chance to really live your life. My daughter has no current side affects to the big drugs she is taking, but it seems worth it to us to see her go to school, work out, and EAT whatever she wants. There are many drugs to try and many stories of successes. Good luck on your journey.
Daughter,15 diagnosed 1-08 w/ UC .
Previous drug sampling: Asacol, Prevacid, Flagyl, Prednisone- 50mg to 0, 4 major flares '08.Hospital four x. Low residue diet,
6MP, Colazal , Cortifoam enemas,
Trying probiotics, Niferex, fish oil, Magnesium, Acupuncture.
Remicade 10mg per kilo@ 8wks, since 10-08. Still on 6mp and Colazal

Regular Member

Date Joined Jun 2009
Total Posts : 173
   Posted 7/27/2009 10:05 AM (GMT -6)   
I am so sorry to hear about your rough time with UC. I hope they can find a drug that helps you without side effects. Prednisone is the only drug I have taken for UC that has given me side effects. I didn't realize you could have an allergic reaction so long after being on a drug. Thanks for sharing your story and I hope you stick around the forum.
UC since 1996 (age 20)
Mommy of 2 sweet little girls.
My life is one big flare.

Asacol, Azathioprine, Prednisone, Rowasa
First Remicade 6/22/09

Veteran Member

Date Joined Apr 2009
Total Posts : 654
   Posted 7/27/2009 5:08 PM (GMT -6)   
I had horrible side affects on just about every drug I've tried.  I had severe stomach pain, vomitting, joint pain, neck pain, and headaches on asacol and lialda.  I can't take any 5 asa's.  Started getting the samething with imuran.  Just tried remi.  Very bad chest pain, joint pain,  I feel like I'm having a heart attack and I only had half a bag of remi(my first time) on Thursday.  I feel like crap.  I hope you have better luck.  Sometimes I think the drugs are worse then UC.  Oh, I'm on 20mg of pred(about a month now).  I swear I'm going crazy.  I have no patience.  I'm SO IRRITABLE. devil My poor husband and Kids.  Good Luck!
Mom of Three(Two Boys and One Girl)
29years old
Ulcerative Colitis(severe whole colon)
Diagnosed March 2009
Allergic to Asacol, Lialda, and Imuran
Currently on Pred and Remi
Remi not going to well!(I think I had a reaction the first infusion they want me to try again)

Veteran Member

Date Joined Mar 2008
Total Posts : 2855
   Posted 7/27/2009 5:11 PM (GMT -6)   
Sorry you are suffering.
Did you know that Asacol is pretty much like aspirin? it just has a special coating that keeps it from dissolving until it gets to your colon, and into the ph level found there. Then it does its work to reduce inflammation, just like aspirin, but topically down in your gut. Maybe that will help you not worry about it so much, it's really a relatively mild drug but with a special coating.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol maintenance for 20+ years; used prednisone & Rowasa for flares.  Probiotics (Ultimate Flora, 50 billion), salmon oil (omega-3) when I can remember. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated wheat/gluten from my diet.
Bad flare in March, used prednisone. Humira denied, started Remicade 4/12 and doing great~ learning what normal is~ wow

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