Pregnant and crying...

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spluxa
Regular Member


Date Joined Nov 2008
Total Posts : 183
   Posted 7/27/2009 12:37 PM (GMT -6)   

Guys, I need your help. I know, it's probably hormones playing form my pregnancy, but I can't stop thinking about it. I'm 12 week pregnant right know. My UC is not getting better. Besides Colazal, I had to use cortifoam on 7-8 weeks for one week, and now I use it once when it's getting worth… I can't getting rid of the pictures in my mind of cleft lip or if baby is sick. I need advises, may be from experience, how to make these 9 month easier and not to heart a baby. Diet wasn't helping even before pregnancy. And if I ask someone who doesn't know about UC, they say that whatever happens, I MUST NOT taking these drugs…Now, I'm thinking that i shouldn't get pregnant at all...ok, I need you support cos nobody else seems understanding the whole issue!!! cry  


Diagnosed with left-sided UC on Sept 08 Colazal 5x2day, Lialda 2 per day (so unusual to take just 2 pills)
Canasa 1 supp. every nigh Cortifoam 1 at night
Vitamins: Zinc, B complex, Fleexsead Oil capsules, Multi. Digestive Enzymes (helps a lot)
***I'm not sick with UC, it's UC sick with me!***






suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 7/27/2009 12:41 PM (GMT -6)   
First, do not take advice from well meaning friends and family about your use of RX during your pregnancy. Your GI and OB/GYN will work closely to ensure your baby is safe. A healthy mother has a better opportunity of having a healthy baby than a sick mother does. Many women who take medication for UC have gone on to have healthy babies. I am sure some will come around and provide you with reassurance.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 7/27/2009 12:49 PM (GMT -6)   
spluxa, the 5-ASA's (Lialda) and oral/rectal steroids have been used for decades during pregnancy with no ill effects demonstrated. They are seen as safe for both mother and baby.

Pamper yourself and try not to stress, although I know that's hard. If you're up to it physically, exercise such as walking can help reduce your stress at the same time it prepares your body for labor.

Congratulations on your pregnancy! I'm sure our moms will be here to tell you about their beautiful babies and how they managed their pregnancies.
Judy
 
Ulcerative colitis forum co-moderator
 
Moderate to severe left-sided UC diagnosed 2001.
Flared for 5 years, finally in remission with Remicade since March 2006.
Avascular necrosis in both shoulders is my "forever" gift from steroids.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. 
"My life is an ongoing medical adventure"
 


spluxa
Regular Member


Date Joined Nov 2008
Total Posts : 183
   Posted 7/27/2009 12:55 PM (GMT -6)   
Thank you Sue and Judy! I'm really warring about Cortifoam. Mi GI and OB/GYN saying something like if it's needed bad enough, then I have to take it. No guarantees for the health of baby. I'm so tired to make this decision.
I'm pretty active during the day, but when it comes to bedtime, all this thinking and warring starts..
Diagnosed with left-sided UC on Sept 08 Colazal 5x2day, Lialda 2 per day (so unusual to take just 2 pills)
Canasa 1 supp. every nigh Cortifoam 1 at night
Vitamins: Zinc, B complex, Fleexsead Oil capsules, Multi. Digestive Enzymes (helps a lot)
***I'm not sick with UC, it's UC sick with me!***






suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 7/27/2009 1:11 PM (GMT -6)   
That makes sense, everything is scarier when the sun goes down! Try not to worry. I know it's hard but remain focused on the positive.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


AmyWaffle
Regular Member


Date Joined Jun 2009
Total Posts : 173
   Posted 7/27/2009 2:22 PM (GMT -6)   
I never took cortifoam while pregnant, but I did take about everything else! I was on large doses of prednisone, asacol, and azathioprine and I was so fortunate to have two perfect baby girls. Although I did flare with both pregnancies so bad I was sure I was going to birth them into the toilet!
I'm sure your pregnancy will be fine! You need to get your UC (and your understandable worrying) under control--so get lots of rest and do what your doctors tell you, not what your 'friends' tell you!!
Feel better!
UC since 1996 (age 20)
Mommy of 2 sweet little girls.
My life is one big flare.

Asacol, Azathioprine, Prednisone, Rowasa
First Remicade 6/22/09


spluxa
Regular Member


Date Joined Nov 2008
Total Posts : 183
   Posted 7/27/2009 2:32 PM (GMT -6)   
Thank you Amy Waffle! You post helps a lot!
btw, which one is worth, oral steroids or rectal?
Diagnosed with left-sided UC on Sept 08 Colazal 5x2day, Lialda 2 per day (so unusual to take just 2 pills)
Canasa 1 supp. every nigh Cortifoam 1 at night
Vitamins: Zinc, B complex, Fleexsead Oil capsules, Multi. Digestive Enzymes (helps a lot)
***I'm not sick with UC, it's UC sick with me!***






puffed rice
Regular Member


Date Joined Feb 2008
Total Posts : 495
   Posted 7/27/2009 3:11 PM (GMT -6)   
Hello,  I have 3 children and I flared really bad with the first and last one.  I took Salofalk tablets throughout my whole pregnancy with all three kids.  With the first child I used Salofalk enemas nightly while flaring.  With my Third child I used Cortifoam up to 3 x a day and I also used most nights the Hycort enemas.  I also did the Vitamin E enemas, Just empty capsules in the cortifoam applicator and insert, it helps alot for bleeding and inflamation plus its natural.
I increased my probiotic intake to morning and evenings, that helps alot plus I continued to take MEtamucil daily to bulk things up.
Bread and Flour products were a major problem to me so I cut them out and my flare slowly improved until things were normal again, which was around the 5th month with my last child.
 
All of my children were healthy.
 
If you live in Canada you can look up the motherisk website they have a hotline # in which you can call and they will tell you if the medication you are perscribed is safe for your baby or not.  They operate out of Sick Childrens Hospital in Toronto and they do tests and studies on most of these medications.  They are extremely helpful and I Have called them with every medication that I was put on and all were safe to the baby.  Most rectal medications are safe but if unsure look them up plus there are other websites that rate meds with a letter rating.
 
I hope this helps.  Try to relax and exercise as well stress just causes UC to get worse.
 
Take Care
Diagnosed with Ulcerative Colitis 1995
Salofalk Tablets  2pills -3xday
salofalk suppositories or cortifoam nightly when needed
Bio-K Probiotic (evening) ultimate flora critical care probiotic (morning)
multivitamin
metamucil nightly
cut out all wheat-finally in remission


tooth fairy
Regular Member


Date Joined Jan 2008
Total Posts : 98
   Posted 7/27/2009 8:55 PM (GMT -6)   
I'm 28 weeks along now and taking tons of UC medicines. I'm feeling great and baby appears to be growing well. All the ultrasounds and tests so far indicate I'm carrying a healthy little girl.

If you're not getting good support from your current OB, find a high-risk OB-GYN to consult with. Many doctors aren't familiar with the studies on UC medications and pregnancy, and they really shouldn't advise you on these medicines.

It took a lot of discussion with a few different OB-GYN's before my husband and I felt comfortable going into a pregnancy. I found that doctors' knowledge varies WIDELY. After we did our own research, my husband and I decided that we were ok with getting pregnant, but that I should be in remission prior to trying, and that I should stay on all of my maintenence medicines.

--
Oh, and you can relax about baby's cleft palate. That stage of development is completed at the 6th week--ages ago for you now! Also, I have never seen a good study linking cleft palate to UC medicines.

Try to relax, you are a fantastic mom and are making the very best decisions you can for your developing little munchkin. Don't let people with less knowledge than you throw you off your A-game, or convince you that you've made a bad choice. Stick with professional advice from doctors who really know what they're talking about, and trust your instincts. Those two won't steer you wrong!
Erica, 32
Pancolitis, diagnosed July 2006, at age 29
(Colonoscopy January 2008 showed active disease just in sigmoid and below!)
Imuran & colazol daily; Rowasa and/or canasa rectal meds as needed for maintenence
Currently pregnant-due October 2009


AMK77
Veteran Member


Date Joined Mar 2008
Total Posts : 678
   Posted 7/27/2009 9:45 PM (GMT -6)   
Take a deep breath - you and your baby will be fine! I have a 6 month old. I cannot take any meds b/c I'm allergic. I did take a short round of pred while I was around 14 weeks pg. That put me into remission and I stayed there. I completely forgot about UC while I was pg. Please please try to relax and enjoy your pregnancy. I know it's hard to do, I'm a huge worrier. My husband would always tell me, it's out of your hands.
32 yr old female
Mild Pancolitis
UC since 2000 - in remission for most of those 8 years med free.
Cannot tolerate mesalamine. Currently take probiotics and fish oil. Trying Applied Kinesiology & supplements.


spluxa
Regular Member


Date Joined Nov 2008
Total Posts : 183
   Posted 7/28/2009 6:23 AM (GMT -6)   
Guys, Thank you very much for you warm support and advises!! I really appreciate what your wrote! I feel better now just to knowing that I have support group like you all!
Diagnosed with left-sided UC on Sept 08 Colazal 5x2day, Lialda 2 per day (so unusual to take just 2 pills)
Canasa 1 supp. every nigh Cortifoam 1 at night
Vitamins: Zinc, B complex, Fleexsead Oil capsules, Multi. Digestive Enzymes (helps a lot)
***I'm not sick with UC, it's UC sick with me!***






kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 7/28/2009 6:42 AM (GMT -6)   

As a Grandmother of four just want to send your  big ((((HUG)))).  I am sure your doctors will take good care of you and your baby!!

ElaineNY


 
Senior - diagnosed with proctosigmoiditis - 6/2008   
Cannot tolerate mesalamines.  New specialist (June) - Cortifoam and Anusol three times a day for now.  Hope it works! (finding it impossible to do three times a day however)
 
Probiotic Align, Prilosec for GERD, Gas-X, vitamins, Calcium/D
Tylenol for knees and arthritis.
 
 
 


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 7/28/2009 9:58 AM (GMT -6)   
being pregnant is hard enough without adding all this craziness of being sick on top of it i know.

I got pregnant before i had surgery and i was on 100mg of immuran, alot of asacol (i cnat remember) 800 of lamictal and 100 of phenobarbital. Asacol and lamictal are supposed to be safe but phenoborbatil and immuran are not. Biggest side effect being neurological damage. I think you are past this stage but one of hte most important things i was told to do before getting pregnant was to start taking folic acid, 10mg a day. Of course it wont hurt now, it helps the babys brain and development.

Anyway, i was lucky in that my UC went into remissiion during pregnancy.
But anyway, other than him trying to come out early, and some random bleeding (a result of the meds) and two bouts of high blood pressure at the end, i had a pretty easy time.

He was born with a few problems, NOT med related, little stinker got stuck! But he came through and he's 4 right now, and absolutely perfect! Hes been speaking in full sentences for almost 3 years and he can add and subtract and multiply so no brain damage here!
So anyway, calm down (i know thats like telling you to climb mt everest) the baby will be ok!
Since you have UC you can be classified as high risk i was and i was able to get ultrasounds every month at first then every 2 weeks for the last 2 months. I was also able to get 2 3d ultrasounds which show much more detail. Those will help you with anxiety over probelms you think the baby might have. And we worried about the cleft lip thing too, but its such an easy thing for them to fix, so even if worse case scenario the baby is born like that, it can be fixed easily, we asked the dr, lol.

GOOD LUCK!!!

saposs
Regular Member


Date Joined Nov 2008
Total Posts : 339
   Posted 7/29/2009 12:48 PM (GMT -6)   
hi... just relax and enjoy.
Earlier whenever we used to decide to start a family i used to get tensed abt the health of the baby due to medication i am on... but after reading so many experiences i think we should not worry much.

Try not getting tensed during your pregnancy! enjoy!!
UC forum : Dx Jan'2009: Canasa suppositories 1000 nightly - worked for 2 months then re-flare
13 may: canasa 1000 X2 daily for 2 weeks; 30May: LialdaX2 started on 30th may.
Symptoms: Mucus, blood, constipated (not always), Lots Gas
Also started Probiotic from 23 Mar & fresh Turmeric root from 25 March'09- stopped both on 10th May
Thyroid Forum: Dx in Dec'08, levothyroxine from 50mcg to 75 mcg in June'09 :-(


spluxa
Regular Member


Date Joined Nov 2008
Total Posts : 183
   Posted 7/29/2009 4:12 PM (GMT -6)   
Again, thank you all fro your comments and sharing experience. I feel more confident now :-))
Diagnosed with left-sided UC on Sept 08 Colazal 5x2day, Lialda 2 per day (so unusual to take just 2 pills)
Canasa 1 supp. every nigh Cortifoam 1 at night
Vitamins: Zinc, B complex, Fleexsead Oil capsules, Multi. Digestive Enzymes (helps a lot)
***I'm not sick with UC, it's UC sick with me!***






Lynn27
Regular Member


Date Joined May 2005
Total Posts : 351
   Posted 7/30/2009 8:34 AM (GMT -6)   
I am currently 31 weeks pregnant and taking all kinds of meds. I flared in my 2nd trimester and was hospitalized for 2 weeks on IV steroids. I am still on prednisone tapering down and continue on my other meds also. my baby boy is growing great..he is actually bigger then he is suppose to be which is great. I haven't gained alot of weight but he sure has. Try not to stress just makes things worse...as you know. I had a US at 12 weeks that checked for downs and other disorders...it made me feel better knowing he was okay. Good luck with your pregnancy!!!!
Ulcerative colitis (whole colon)
since 2002
 Feeling well....as normal as we can I guess!
 
 
  • 6MP 50mg daily
  • Rowasa enemas when needed 
  • Flinstone vitamins
  • Asacol 3 pills 3 times a day


AmyWaffle
Regular Member


Date Joined Jun 2009
Total Posts : 173
   Posted 7/30/2009 9:00 AM (GMT -6)   
Lynn27 said...
I am currently 31 weeks pregnant and taking all kinds of meds. I flared in my 2nd trimester and was hospitalized for 2 weeks on IV steroids. I am still on prednisone tapering down and continue on my other meds also. my baby boy is growing great..he is actually bigger then he is suppose to be which is great. I haven't gained alot of weight but he sure has. Try not to stress just makes things worse...as you know. I had a US at 12 weeks that checked for downs and other disorders...it made me feel better knowing he was okay. Good luck with your pregnancy!!!!


My OB doc told me that they actually use prednisone to make the babies bigger and make their lungs develop, if something has gone awry. I was on it a bunch with my last baby and she was 10 days early but didn't look it--she was definitely ready to go! So that may be a side effect of pred while preggers (which TRUST ME you will be thankful for), a shorter gestation!
UC since 1996 (age 20)
Mommy of 2 sweet little girls.
My life is one big flare.

Asacol, Azathioprine, Prednisone, Rowasa
First Remicade 6/22/09


pam222
Veteran Member


Date Joined Jun 2009
Total Posts : 985
   Posted 7/30/2009 12:29 PM (GMT -6)   
I was on Asacol and Prednisone during pregnancy and my baby is perfectly healthy. The first 16 weeks were terrible for me. I was sick all the time. Morning sickness combined with UC is the worst. I did not feel too bad during the second trimester, though. Good luck and congratulations
26 year old female
Diagnosed with unspecified UC 11/08 by flex. sig. as I was pregnant at the time and did not want to be put under for a colonoscopy
Breastfeeding my baby boy (born 4/8/09)
10 mg Prednisone AM, 10 mg PM (tapering from 60mg a day)
Started Remicade 6/11/09 (2 infusions so far)
Was on Asacol (2400mg or 3600mg a day) for 6 months with no success


sgirl
Regular Member


Date Joined Jul 2009
Total Posts : 417
   Posted 7/30/2009 4:26 PM (GMT -6)   
Congrats on your pregnancy!

I am currently 25 weeks and found out I was pregnant during the middle of the worst part of this flare up. Worrying is normal and don't feel bad about it. My pregnancy so far has been full of worry, I had a previous loss at 33 weeks (cord accident, unrelated to UC) and then after googling pregnancy and UC (bad thing to do!) was scared to death that I would lose the baby due to my active UC. So far baby has been fine, in fact she's better than I am! There's no indication of any abnormalities on her.

I am on Lialda 4xdaily, 20 mg of prednisone and 1 mg of Robinul when needed. I asked many dr's and pharmacists on the use of Prednisone during pregnancy as what I found online made me nervous to do so. All said it was completely safe, the studies that were done ages ago were inconclusive and there's been no evidence that it can cause cleft palates. Lialda is completely safe as well. However all this mediction is doing is keeping my UC from getting worse, it's barely keeping things at bay as it is but I can't get on any other meds. My GI wanted to put me on Remicade, of which his partner and my OB were all 150% for, but he got a second opinion from the "expert" at the mayo clinic and she said absolutely not, it is not safe (even though its cat B) and she says I need to be in the hospital receiving IV steroids. But my GI doesn't think I'm that bad yet, which I agree. Another thing, baby's health depends a lot on your health, do what is necessary to stay as healthy as possible. Oh and my GI also said that yogurt and Mint tea can help a lot with symptoms and pain management.

Sorry I know I'm rambling... Trust your Dr's and if something they say or do sets you on edge or makes you uncomfortable, let them know it and get a second opinion if necessary. Nothing I can say or do will make the worry go away, but remember that stressing about it only makes things worse.

Good luck!!
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