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SocalJohn
Regular Member


Date Joined Oct 2008
Total Posts : 160
   Posted 7/27/2009 2:38 PM (GMT -6)   
Everyone on here talks about Remicade, but all my GI doctors have only been talking about Cyclosporin. Does anyone here have any experience with it?

Capsid
Regular Member


Date Joined May 2004
Total Posts : 300
   Posted 7/27/2009 3:12 PM (GMT -6)   
Yes, I was given a course of it after I failed to respond to IV prednisolone. It worked very quickly for me and then I continued on it for several months whilst I started on azathioprine.
Mark
 
200mg/day azathioprine


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5182
   Posted 7/28/2009 8:37 AM (GMT -6)   
Keith (KS1905) has posted about 2 courses of Cyclosporine that helped him a few yrs back, if you want to look up his threads. He has a very fine GI who subspecializes in IBD treatment. / Old Hat (30 yrs with left-sided UC ... [etc.])

AnnaG
Regular Member


Date Joined Apr 2008
Total Posts : 191
   Posted 7/28/2009 1:05 PM (GMT -6)   
Yes I have noticed more people seem to go on to remecade than have cyclosporin,I thought this was beacause remicade (infliximab) seems to be offered routinely in the US for UC, where as it is not the case in the uk,also I when I had cyclosporin they made it clear it was a last shot, if it did not work,I would have to go for emergency surgery,I remember them telling me it had only a small chance of sucess,It is quite toxic and has to be administered carefully,I had 5 days IV,then 3 months oral,my blood had to be monitered every week to check the levels in my system,I felt pretty crap while I was taking it,but it did buy me enough time,for my colon to heal a bit,(it was so bad at this point the lining had started to degenerate),and for the Azathriopine to kick in,so I guess you could say it worked for me,but it is not an experience I would like to repeat.
41yrs old,mum of 3,servere left-sided UC since 2006,
Tried most things alternative,scd diet,low residue,etc
Had,ascol,pentasa,rectalmeds,prednisolne,IVsteriods,Cyclosporin
currently taking Imuran 100mgs daily,movicol 1 satchet daily

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